Since I rarely sleep at night, I take this time to read what others like me are doing to deal with their pain. My life has taken such a turn and I wonder if anyone feels the same.
I read the posts and it seems like so many are able to or push themselves to function at a much higher scale than myself.
I had an ACDF in March 08. Pain has returned only worse and affecting both sides not just the left. Low back pain L4, L5, S-1. Diabetic Neuropathy, Vocal cord paralysis, Burning pain from Neck to toes, migraines, extremely weak legs which cause me to fall down. Anyway I will get to my point.
My day consists of perhaps reading the posts on this wonderful site I have found. Getting coffee ready. Maybe folding towels after hubby does wash. Then basically sitting in my recliner with the shades pulled as the sunlight makes the migraines worse, trying to distract myself from the pain. I do try to walk around my house (lower lever) to keep blood clots from forming in my legs. I use a walker and a wheelchair. I don't go out unless I have a dr's appt. I don't go out to eat as I choke on my food and I drop virtually everything. I have tried a tens unit, aquatherapy to strenghen muscles, physical therapy, traction, injections and nothing seems to work. I cannot drive anymore and to go out even to the dr. makes my pain levels increase terribly. I used to love to take baths and relax. Now that has become a necessary chore which requires assistance. I guess I have been getting down on myself because I think I should be able to do more. I live in cotten pjs as clothes in general make the burning pain worse. Socks and shoes cause agony. I know I am sounding like a real whiner and I apologize for that. Does anyone else spend their days like I do? If so would you let me know. I do try but if I stand too long my legs give out. I feel like I am so unproductive. The surgeon says at this point he does not feel operating on lower back is warranted. I have nerve damage in left leg and foot. I have myelopathy which I noticed there is new discussion on this topic "great idea". Anyway I guess I just wondered if anyone else seems glued to their recliners. I also think accepting my disabilities must be a gradual thing one does. Perhaps I am in denial and I imagine many of you have faced this.
Well I am sorry for the long post. I have been thinking of posting this but I didn't want everyone to think I was lazy and could not handle pain. I used to have a very high pain threashold. I do see a PM dr. I take zoloft, percocet, lyrica (which I do not like side affects) and methodone. PM dr has discussed a spinal cord stimulator and pump.
Thanks for listening I guess I just needed to vent.
Have a good day all