Today was an eye-opener. I'm sitting here at the PC, because lying in bed isn't helping. I'm exhausted and yet the pain is outrageous. It's burning and pulling at my brain. The room is nearly spinning from medication and yet sleep is nowhere in sight. I just gave up and took a sleeping pill, but having learned a likely name for what is causing so many of the symptoms along with the pain lately, I thought I would ping to see if anyone here is familiar with it: Complex Regional Pain Syndrome (CRPS), formerly known as Reflex Sympathetic Dystrophy (RSD).
It seems that the hyperalgesia that the skin doctor diagnosed, along with the odd issues with feeling too hot at weird times, and needing air blowing on me along with swelling in my shoulder and neck, and waking up the past few weeks most days with 3 of my fingers in my left hand numb all point towards this possibility to explain what's going on with the chronic pain.
What isn't good is that two of the standard treatments for this, the epidural injections of anti-inflammatories and the physiotherapy (which made my heck hurt much worse) ... were completely failures. There is some sort of block, though, which may help. Anyway, now I'm trying to get my Primary Care physician to send me to a good neurologist, as the PM (Pain Manager?) whom I saw on Sunday is only interested in how I'm dealing with the current doses of the cocktail of medications for the pain that is on my current plate of treats each day. He just doesn't care much about the side effect things...
After spending some time catching up with one of my private and friendly advisors, who is in town (a thoughtful and kindly anesthesiologist), and after he performed an exam and gave me some trigger point injections for the shoulder, did some analysis and came up with this. It's no joke and does help explain some things.
Anyway, if anyone has some form of this, ideally related to a neck injury causing chronic pain (22 months, every waking hour), please do let me know. I'd love to learn from your experiences.
NB off to try sleeping some more... anyone up for some late night pain poker? Ciao and Feel well, all :-)