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Tired of hurting

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:37 AM in New Member Introductions
After reading several posts, I've decided that I may be lucky...comparatively speaking.

I had surgery for scoliosis in 1979 when I was 14. The low back pain I had been having went away and I was in good shape for several years. During my second pregnancy I started having problems with sciatica, which I believed to be due to the heavy load I was carrying at the time. Once I hit my 40's the low back pain and pain in my right hip increased in severity. I no longer have periods of pain free days with the occasional flare up. Pain has become my constant companion, but I AM still able to function. There is no comfortable position for me. I am lucky enough to have a job (teaching) that allows me to change position often although I spend most of my day on my feet.

I am trying to find a physician that deals with adults in my position. I am waiting to hear back from the one my GP referred me to, but they don't seem to be in any rush. I'm not even sure what kind of physician I should be seeing.

Although I wouldn't wish this on anyone, it is certainly nice to know there are others out there who understand. I feel misunderstood and alone sometimes and it is nice to know I'm not.


  • I think that most of us here have shared your experience of feeling alone and misunderstood. We may have family members that try and understand but unless you have experienced it for yourself it is impossible to really understand. I was wondering if your GP has done any testing at all to find the source of your pain? Maybe it will be something that will be a fairly easy fix. There are less invasive procedures to try depending on your diagnosis so it doesn't always end up in surgery. My experience has been that a good Pain Management doc was able to get to the root of my problem but it is not the same for everyone. Sometimes back issues can be quite a challenge to diagnose so it really requires persistence on our parts. Sometimes we need to go to multiple docs before finding anyone that can and will help us. So try and keep a positive (easier said than done) attitude until you are able to get a diagnosis. I have found that stress increases my pain levels. You may need to be proactive in your own care and find a doc that is willing to make your care a priority on your own. I know that some insurance requires your GP to send you to a specialist. If so, call the GP daily until you are able to get in to see someone right away. If not, make some calls on your own to find someone that will see you in a reasonable amount of time. I wish you luck and please keep us posted.
  • Welcome to Spine-Health. You've found a great place for info, advice, support and friendship.

    You might want to schedule an appointment with a fellowship-trained spine surgeon, someone that only works on spines. They can be a neurosurgeon or orthopaedic (mine was ortho).

    I assume you haven't had and MRI yet? Have you had x-rays? Have you been told at all what they suspect might be happening?

    I think many, if not all, of the members here have found themselves feeling alone and misunderstood just like you at one time or another and have found relief talking with other Spine-Health members. Nobody can understand what you're going through like fellow spineys can.

    Anyway, I'm sorry for the reason you found us, but glad you did. Take care.

  • My GP has been trying to treat my pain for the past several years. He sent me to a teaching hospital that has a spine center for physical therapy, but insurance wouldn't pay and I couldn't afford $200 twice a week for 12 weeks. I'm really trying to limit the pain meds I take. I have a pretty high tolerance already so most meds don't begin to touch the pain. I will give in and take something when I have to even if it only takes the edge off, which is usually the best I can hope for.

    I am a little confused about MRIs. I was told that I could not have one because of the rod in my back. Is there some way they can deal with that now? That would definately open up some possibilities.
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. i am so sorry you have had that experience with the teaching hospital. i have been using them for many years for treatment, including surgery, and never paid a cent or met anyone who payed anything. :? perhaps try another, they are all different!! i am sorry you are experiencing chronic pain. ~X( it must be very difficult working and having the pain all the time!!! i hope the forum holds some answers for you or atleast some comfort... :D good luck in your quest for pain relief! Jenny :)
  • With the rod in your back, they can do an MRI with contrast dye that might show okay, but not real good. You're right that the metal causes blurring on the MRI in the spaces where the rod is. A CT scan works well. I've had a myelogram where they put dye into the spine like an epidural shot and then CT scan so that the dye spreads out in the nerve roots and they can see more. It's uncomfortable and hurts some with pressure.

    Is your pain more in one area, low or higher, or just all up and down your spine??? I was told that when they put metal in that your body tries to cover it over sometimes, thinking it's a foreign body that shouldn't be there. Maybe you have bone spurs that are pressing on things causing pain. I have a good friend that has curvature but hasn't had the surgery to correct it, but she has a large bone spur that causes her alot of pain. She's scared of surgery and pain meds and is trying to just make it, but so far, the pain comes and goes for her.

    Bone spurs can sometimes be seen on really good xrays. Has your GP done xrays of your back to see what those look like?
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