After reading several posts, I've decided that I may be lucky...comparatively speaking.
I had surgery for scoliosis in 1979 when I was 14. The low back pain I had been having went away and I was in good shape for several years. During my second pregnancy I started having problems with sciatica, which I believed to be due to the heavy load I was carrying at the time. Once I hit my 40's the low back pain and pain in my right hip increased in severity. I no longer have periods of pain free days with the occasional flare up. Pain has become my constant companion, but I AM still able to function. There is no comfortable position for me. I am lucky enough to have a job (teaching) that allows me to change position often although I spend most of my day on my feet.
I am trying to find a physician that deals with adults in my position. I am waiting to hear back from the one my GP referred me to, but they don't seem to be in any rush. I'm not even sure what kind of physician I should be seeing.
Although I wouldn't wish this on anyone, it is certainly nice to know there are others out there who understand. I feel misunderstood and alone sometimes and it is nice to know I'm not.