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Does anyone know what this means....

wildfire_101wwildfire_101 Posts: 68
edited 06/11/2012 - 8:44 AM in Back Surgery and Neck Surgery
I have already written posts on here before so i am not going through my whole back story of what happened and whats going on.. If anyone whats to know they can read my other posts...lol Anyway i have a question for everyone...Yesterday all of the sudden i started getting this burning, and i mean burning, pain in my lower back and top of my right butt cheek... I havent had this so far except for in my leg which is related to my RSD issues...And it was pretty much centered right where most of my pain has been so far.. So can anyone tell me what this might be and what i can do to some how relieve some of the pain?


  • I'm sorry, but I can't remember your story and I am not sure if you have had surgery or not. But, your pain sounds like nerve pain. Usually when I hear burning, shooting, stabbing, it makes me think of nerve type pain.

    Without knowing more that is my best guestimation.
  • if you have been diagnosed with RSD officially (Bone scan/other tests), my understanding is that RSD can spread to other areas. I would call your doctor's office for advice.

  • To answer the other question from jayhawk no I have not had surgery on my back yet.. I am waiting to get into another doctor for a 2nd opinion and then see if that is what is going to help my situation....I have already done all the other conservative measures so far... And i just had an EMG about a month ago and no nerves were compressed at that time... But like i said that was a month ago.. And now to answer buckeyeback's questions no I have never had a bone scan or anything like that done before... They have only diagnosed it from the way my leg looks every time i go in there and from what i tell them as in how i feel and the pain i experience.. But according to the many specialists i've seen so far there is no test that really can tell you 100% if you have RSD or not...This is something that i have been dealing with for the last 2yrs and it has never gotten better not even a little bit... And i have been on many different meds and some helped a little and some none at all...Anyway my PT told me in a few visits that I might have the beginning stages of RSD in my back because of all the sensitivity that is there.. He said the sensitivity on the outside of my back is not related to my disc issue...So to be totally honest i really dont know....I just want the pain to go away and have my body start to heal.. The routine knee surgery i had done 2 yrs ago (in which started all of this) I still haven't healed from and its been 2yrs...So i just try to take it one day at a time and that is all i can do...
  • Sorry you seem to be going down a long, and winding, road to find out what is causing your pain and discomfort. I hope you get yourself a answer soon. A lot of us on this site have long standing, or recurring problems we are dealing with so you are not alone.

    We can not pull up a list of your posts on this site without being on your buddy list. Very strange way to do things but thats the way its done.

  • Gotcha,...a bone scan can verify the RSD diagnosis from what my doctor told me. Clearly, if you have pigmentation changes and burning sensations that would lead me to believe you have some RSD going on. My doc told me that half the time it will get better and possibly go away, the other half of the time it won't and could spread to other areas. A bone scan is not any more invasive than an MRI with contrast. Actually there is no "pinging/hammering" going on either.

    I've been researching the Sinuvertebral nerve and its involvement with discogenic pain that not only causes back pain, but can cause multiple dermatonal radiculopathy via feedback through the nerve root it is connected with. It could be a pain generator and possible RSD cause. Google it, it may be a part of the puzzle.

  • I have disc issues from my L3-4 to L5-S1. I haven't experienced burning too much in my back and buttock but my feel constantly feel like they are on fire. I know in my case it's from nerve issues. I wish you luck!! I'm going to go have to look up RSD I've never heard of it...
  • I have had RSD and it is in remission for most part. My diagnoses on more than one occasion was confirmed with a 3d bone scan using dye contrast. They are looking at the bone as RSD can damage the bones, as what happened in my case. I had in my right foot and it damaged the foot. I was lucky in that my doctors put me in aggressive treatment once the diagnoses was confirmed with the bone scan. Between getting injections in the sympathetic nerve in the back and physical therapy, first starting in water. In that therapy I had to learn to go through touch sensations. Was rather brutal but it had to be done. Most importantly when they suspect RSD is the joint or affected limb has to get moving. So now I have still sitting under a plate as they can see the dye pooling around the plate on the uptake, so no matter what that joint i am constantly moving. Lots of surgeon shy away with patients with confirmed cases of RSD, for they don't want that on them, with poor out comes. But more importantly if it is RSD you need to be in therapy and get with a doctor who specializes in the disease.
  • If you click on "My account" and get into your profile. You will see an option for "Medical History". Put that information in there. Then when anyone clicks on your user id they can see it. Then you don't need to type it over and over. Please do not put it in your signature like some people do.

    That will make your forum life easier.

    wildfire_101 said:
    I have already written posts on here before so i am not going through my whole back story of what happened and whats going on.. If anyone whats to know they can read my other posts...lol
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