I'm almost 5 months with my Lumbar SCS and love it.
I was getting 75% pain relief.....BUT that is when I was titrating off the powerful fentanyl patches. It took me 3 months to safely taper from the 100's down to the 12's and now I'm done with them.
I have Lortab on hand for breakthru pain, but since I don't use the patches anymore, I am going thru the Lortab faster than I should be.
Now I am getting maybe 50-60% pain relief with the SCS.
My CONCERN: Are my body's pain signals figuring out how to get around the stimulation (meaning the honeymoon is over) OR is my body still needing the opioid that I've since tapered off of?
Everything was PERFECT when I had the 25mcg patches on hand. They covered the 25% of relief that I wasn't getting from the SCS (75%)
I do not want to ask my Dr for more patches.
I think the Dr is of the impression that the SCS is supposed to completely get rid of the pain and is even thinking I should be lowering my dose of Lortab for the breakthru pain.
What do YOU take for pain with your SCS.
In particular 'BURNING' neuropathy pain.
I do not want to get back on Neurontin and Lyrica (they messed me up bad 4 yrs ago)
Oxycontin is wayyy too expensive and I didn't really care for it and I pay out of pocket for my meds.
Is there just a simple med that I have overlooked that targets burning nerve pain that can be taken on an 'as needed' basis.
I just don't know how to approach my Dr about this.
If I sit on my A$$ all day and don't do anything, I can get by, but I have aLOT of responsibilities and I must be active. I WAS able to do all these things WHEN I had the cocktail of Fentanyl 25's and Hydrocodone on hand for 'as needed' during the times my body required extra exhertion
(Caring for horses, business meetings at office, housework, being a 'mom'...?)
But now if I do any of the above on a given day, then I am pretty much bedridden the next day or 2. And this is WITH my $100k unit in my butt!!
Does anyone else have pain meds on hand that pick up where the SCS leaves off?