Some of you may remember my previous posts or not re: a huge L5-S1 discectomy and decompression for cauda equina symptoms (now confirmed post op by another hospital!)
I wanted to find out from other patients with CES on other symptoms or similar they experience post op..I know people suffer in different ways due to the level of damage and other factors.
I have seen a neurologist who confirmed CES due to the huge L5-S1 paracentral disc bulge which had squashed the cauda equina nerves and crushed S2 left nerve..and im lucky to walk which was not a good sign as the neuro dr was shocked. I find I cannot stand for long periods of time to the point the back goes into spasms and shooting pains plus constant pain in the buttock and down the leg. My walking has deteriated and now use 2 sticks to walk. Im getting huge spasms in the left inner & outer calf, the quads and whats weird is my 3 outer toes fire off and contract which feels stange. I find the left leg is like electric especially when I lie down...and sitting is not much fun either as its like an air bag of pain has gone off!!!
A year on plus after surgery Im still suffering perineal numbness, numbness in the left buttock which goes all the way down to the back of the left calf, sexual dysfuntion and now a daignosed overactive bladder.
What worries me the most is the amount of spasms in the leg and the shear amount of pain in the back and legs. The Dr's have put me on Lyrica/Pregabalin 600mg a day but i feel is not making any real difference. There is hardly any disc left at L5-S1 due to the rupture but the dr's wont fuse the L5 as it would cause more problems do the other degen discs..so I have to put up with living with chronic pain and mechanical problems.
I feel people in the UK with CES have no real support from the Health Service which may differ or not from other countries?
Sorry if this is alot to digest, just difficult to get any real answers just "CES with S2 radicupathy, chronic pain".
What tops it off I have Hypermobility.
Look forward to hear other peoples thoughts and experiences.