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Things are suddenly happening

staceyboosstaceyboo Posts: 9
edited 06/11/2012 - 8:54 AM in Chronic Pain
I am new here, I have spondylolithesis L5 since I was 13, but since after having my 3rd baby, things had rapidly declined.My MRI scans now show that my L5 is smashed to bits.I have had to UP my medication these last couple of days,as my pain levels were at an 11. Over the weekend I received a letter stating that a group of surgeons have gotten together to discuss my condition and they feel that my condition needs URGENT attention.

I've been told all my life that there was nothing that could be done for my back, no surgery was going to help. So why have these surgeons got together and suddenly want to help me?

I'm very nervous and scared, and feel alone in this :(


  • I had my first MRI about 15 years ago when I was having severe neck pain. I was referred to an orthosurgeon who explained the issues but said it was not operable. Each MRI I've had every few years they said not operable. This year the MRI was bad enough and I had a 4 level ACDF (anterior cervical discectomy with fusion). Things do change. Make sure you're comfortable with your surgeon, write down and ask lots of questions. Get other opinions if you think you need them. If they think you need urgent attention, then you need to pay attention.

    I hope you hear more soon.
    4 level ACDF C4-C7 5-2-11, laminectomy & discectomy L4-L5 1/26/12, ALIF L4-5, L5-S1 12/10/12.
  • Hang in there Stacy. If your pain level is 11 (10 being the highest) then you obviously have something serious going on. Please follow up with your doctor/doctors immediately.

  • My gosh, I can only imagine what you must be thinking and feeling.......but, if the surgeons think it's urgent, you may best go along with them IF you're comfortable. I sure hope you get relief and please keep us posted.

    Think of you and support hugs!!

  • Look in the FAQ section at the top of the page, and there is a link preparing to meet with a spine surgeon and also a link to 38 questions you should ask before having surgery. This will be a great place for you to come up with a list of questions to go in with, so your prepared for your meeting and understand what they are discussing. I would also take another person with you, as two sets of ears are always better than one. Good luck and keep us posted. AS Julie said if your pain level is a 11 you might consider going to the hospital, as 10 is the highest you can have on the scale, and being in that much pain would be very difficult for anyone to comprehend or understand anything.
  • I am sure you are scared and nervous wondering what is going to happen. This is good though that they are discussing you and are going to be able to do something. Did they give you a date for an appointment? Will be thinking of you and hope everything goes well.

    >:D< Karen
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • I agree with everyone above. With Robin, that if your pain is that high, that you can't move, stand, or do anything, that maybe you should go to the hospital, as 10 is supposed to be the worst pain we've ever had (so really, this would be your new 10). With Karen, in that it's a good thing that you have a few different doctors going over your case. With KarenD in that yes, things change, and obviously this latest MRI showed something that hasn't been there before. I also just wanted to add that you are not alone, we are here rooting for you, and understand what you're going through! Try not to worry too much about it, I know, easier said than done. With a group of doctors brainstorming about you, I'm sure you will get the best treatment. I hope you don't have to wait too long to get your appointment!! good luck, and let us know what is going on! In the meantime, curl up with your heating pad or ice pack, get as comfy as you can and take care!
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • Thank you everyone who's replied.

    I received a letter several days before this letter, and it is an appointment with a spinal specialist, but dont know if he's also the surgeon. Its this friday, 1st July. I will keep u updated on what happens.

    Tamtam, thanks for the pointer, will check out FAQ, and yes I have someone coming with me, my best friend. I did have loads of questions that I wanted to ask, but now my mind has gone blank,lol.
  • I saw my spinal surgeon, and am afraid to say that it was a very quick meeting. Basically he said that I need to have a CT scan so they can see the fracture of my L5 better, and then he said that he would perform a fusion on it, but we would talk about that after the CT scan. So now I should get an appointment in the next 2 weeks.
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