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10 most painful medical conditions

terror8396tterror8396 Posts: 1,832
edited 05/04/2013 - 8:36 PM in Chronic Pain
this is from a web site called "Health Friends Magazine" and what they state are the 10 most painful medical conditions according to their doctors on staff. don't shoot the messenger. i googled this and a lot of sites used these diseases.
1. arthritis
2. pancreatitis
4.achalasia-swallowing problem
5.frozen shoulder
6. kidney stones
7. decrum disease- pain in wrist, elbow, hips
8. hidradentos-sweat glands
9.trigeminal pain-face pain
10. cluster headaches
it was interesting that back pain is not among the health issues mentioned. i have had pancreatitis which was due to a botched gall bladder operation. they did not get all of the stones out so i had to go back and they used this contraption to get the remainder out. bad pain and throwing up all of the time. could not keep any food down for 5 days. i also had numerous kidney stones, one where the hydrostatic pressure caused my kidney to split open. this was the worse pain ever. a friend had cluster headaches and he uses a spray which is a narcotic antagonist. back pain can be severe for me especially during my first and second fusions. i could not walk and had to get out of my car when i was driving to work because the pain was so bad, far worse than a blown disc with sciatica. i have family members who have had cancer and this was the worse as far as i was concerned. so it could be worse.
I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.


  • I agree with you on the cancer. I watched both of my grandmothers suffer the effects of the cancer and the treatment both equally painful. Are cluster headaches similar to migranes? I would imagine they would be more so since they're on the list. I've had migranes ever since I was diagnosed with epilepsy when I was 12. Fortunately I only have one every few months. Interesting list the website has though. Some of these I've never heard of.
  • charlie6017charlie6017 Posts: 412
    edited 05/05/2013 - 8:19 AM
    I also watched cancer eat my Father away to nothing......115 pounds at death and he was 6'1" and 220 lbs healthy. I can't imagine having that. I have been fortunate and never yet (knocking on wood) had to deal with gall or kidney stones. Many have also said they can be a horrific experience. I don't envy anyone that has had any of those things or worse.

    Jon, you say you have the pain where your 1st and 2nd fusions are.......is this due to bone spurs or something? I'm just curious. I also have had some spurring issues.

  • the pain comes from damage to the sciatic nerve down my right leg. it runs from the butt down to above the knee and the two toes next to the big one are paralyzed. i also have pain across the middle of my back and right buttock. the damage was so bad along the nerve, it has gotten worse over the years. my last fusion last year affected my left leg. the neurosurgeon did something with the bone graph and now the left leg is numb from the hip to the lower thigh. no pain here though, just numb.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • ...have osteoarthritis of the spine though? I doubt they could put "back pain" on the list because they'd have to use the entire ten on stenosis, herniated disc, spondylosis, ddd, etc. So really, if I'm right, then we're on the top of the list actually. I know my spine is falling apart from osteoarthritis of the spine, along with other things of course. Am I just blowing smoke here?

    I've also noticed recently how my back feels to the touch. I've had spine fusions and laminectomies from L3-5 and when I feel along the base of my back along my scar, it's flat, almost indented, until I get to where I still have lamina at L2. Isn't that weird? I sometimes, like last night, have significant pain in that area where the lamina are missing. That confuses me.

  • dilaurodilauro ConnecticutPosts: 9,859
    edited 05/05/2013 - 2:32 PM
    I was surprised that Arthritis was at the top. I have had enhanced, degrading, accelerating arthritis in all of my joints for the past 5 years. The culprit, was all the previous spinal surgeries I had. Arthritis painful? You bet, its one of those gnawing in your face type of pain. But was it worse then sciatica or other spinal problems I had? No. I could deal with the arthritis pain, but some of the back pain, no.

    Though, with all of my surgeries, the spinal ones were to me a lot easier than some joint replacements. My total hip replacement was a breeze, but having both of my shoulders totally replaced. That was hell. Over 18 months in physical therapy and the most painful therapy I have had. Shoulder surgeries are nasty, and the more that is involved the more nasty it gets.

    I have only watched people with cancer surfer, but being associated with so many medical professionals, they all tell me, that bone cancer is extremely painful, more so than the other types.

    But you know what..... We could have a hundred different lists and we might get a hundred different responses. Pain like many other things is subjective. Whats painful to you, may not bother me a bit and the same in reverse.

    Bottom line, any chronic problem is PAINFUL. Simple.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I had my right shoulder reconstructed after a motorcycle accident and you are right dilauro, shoulder surgeries are horrendous. I wound up with a frozen shoulder and RSD ( now called Chronic Regional Pain Syndrome) and oh boy- talk about pain that you can't even begin to imagine. I used to want to cut it off with a chain saw literally- in fact i begged the doctors to do just that because i could not imagine living that way for another second....
  • 450exc4450exc Posts: 1
    edited 05/05/2013 - 7:08 PM
    6. kidney stones, this is my ten I compare all pain to. I have had stones 4 times and they bring me to my knees.
  • charlie6017charlie6017 Posts: 412
    edited 05/06/2013 - 3:15 AM
    Ron is absolutely correct, as any chronic pain is enough to compromise anyone's quality of life.

    When I first started having neck problems in 2007, I thought the problem was in my right shoulder because that's where the pain was at that time and I couldn't raise my arm above shoulder level. The P.A. that examined me said she thinks it could be my neck. So I went to my Neuro and they ordered a MRI on my neck. I ended up having C5-6 and 6-7 fused that Fall. :-/

  • thoracic spine painthoracic spine pain Posts: 566
    edited 05/06/2013 - 4:32 AM
    I looked after and watched three people die fron cancer, The first was my boyfriend's mother, she refused to take pain meds and had an horrific death.

    The second was my boyfirend's father, who had covered being riddled with cancer, the stupid doctor told me it was just normal being a geriatric until I told him we had enough money for a specialist who came the next day ,to the house. and put him straight into hospital where he died. I have enormous guilt for not bringing him home but he was paralised and I couldn't lift him by my self. I was in the UK and had a water bed sent form London. He had enough pain meds. We used to bring him a different bottle of wine every day and glasses and have a drink beside his bed and talk.
    He accepted it and died peacefully and wanted to join his wife again.

    The third was my beautiful younger sister. She never accepted it and fought it all the way, she had too much to live for. In the end I asked her and she said she wanted enough meds to kill the pain. The nursing staff were exceptional as was the doctor, they were used to dealing with pain, hospice for the dying, so they gave her as comfortable death as possible, and she looked at peace when she died although I know she's up there somewhere, or down here sometimes, still giving me advice as well as a hard time.

    First list

    .1.arthritis - had it at least the pain goes away sometimes - guess it's how bad you are
    2. pancreatitis - never had it but my dog has and I'm sure he's not in as much pain as me - it goes away
    3.shingles - never had them
    4.achalasia-swallowing problem - don't know
    5.frozen shoulder - this is a joke, you can't even feel the pain 'cause your shoulder won't move. It's not pain - for me it was totally pain free
    6. kidney stones - heard these are bad but Coke dissolves them, Drink a tons of Coca Cola - there are remedies on the web it disolves them
    7. decrum disease- pain in wrist, elbow, hips - don't know
    8. hidradentos-sweat glands - never had it
    9.trigeminal pain-face pain - never had
    10. cluster headaches - had one full blown migraine where I wanted to vomit from the pain, had cluster headachec for ages it goes away - it hurts, muscle relaxants help - it goes away- absoulutely nothing compared to thoracic spine pain.

    Who put the list together?
    My list
    1. Cancer
    2, Spine pain - sciatica hurts like hell - thoracic is a nightmare I hope it disappears and you think the rest of your life is going to be like this. Want to vomit from the pain.
    3 burst appendix
    4 Mental illness - trauma - PTSD - warfare - bullet wounds - mine shaft wounds - where you think everyday for the rest of your life is going to be like this and there is no way out
    5, Knee pain when there is no cartilage left and they won't operate because they think you are too young
    and you think the rest of your life is going to be like this

  • i posted on my original list the source of the article. if you reread it you will see the name of the article. it was health friend's magazine. i got it when i googled the worse pain. for my part, kidney stones were the absolute worse pain i have ever had. it was so bad i had to ask my wife to stop the car so i could get out for more room. not only is it horrible but one tends to barf when one passes a stone. you are on hands and knees barfing at the same time. it was the only pain that made me groan out loud. if you think er's are bad with back pain, go to an er with a stone, they do a lot of tests to make sure you are on the up and up. they look for blood in the urine and they watch you pee so you don't put blood in the urine. they take x-rays and the best one was a cat scan. then they give you taradol which is a naisd which for me was useless. when i complained they finally gave me morphine. so basically your private parts have to fall off before they treat you with hard core narcotics. that is why i went to the same hospital so they had a record of my stones and my urologist. nothing and i mean nothing comes close to a stone with respect to pain. i also had gall stones and they still don't touch kidney stones.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Makes a whole lot of sense! If it can take rust off of chrome wheels (it does!) then I'm sure it can eat up kidney stones! Like I was saying earlier, I am glad I haven't had kidney stones and don't want anything to do with that!

  • paininohioppaininohio Posts: 240
    edited 05/06/2013 - 6:01 AM
    Jon, that sounds horrific! I've thankfully, knock on wood, never had kidney stones. I do remember my father-in-law was in the hospital for them once and he threw up quite a bit. I wouldn't wish that on anyone!

    I think for me, at least, one of the most painful things is a severely infected tooth on the weekend with no access to a dentist. This one particular time was real bad, I lived with an ice pack on my face for two days. NOTHING helped, absolutely NOTHING. Luckily, they didn't try to make me take antibiotics before they yanked it, they just yanked it. Actually they ended up taking 3 because they couldn't figure out exactly which tooth it was and that in itself was torturous, it took them over an hour just for one tooth. (I should also mention that it wasn't one in the back, this was my front teeth which i think are more sensitive) I guess that's probably why my gall bladder surgery didn't bother me too bad compared to that. LOL (it was close together time-wise)
  • it wasn't the stones as much as i had a bunch of them that blocked the uretha and due to hydrostatic pressure, my kidney split. definitely felt them then. they could not put me in the bath due to my kidney splitting so they pulled them out. unfortunately they did not get all of them out so i was passing them for a week after. in the hospital, i had to beg for a shot. you just had one, and i retorted, i need another one a....ole. they gave me the shot so they would not have to deal with me and my swearing at them. when i got home is when i started passing the other ones. i kept on taking them to the urologist. my kidney did not feel right for over a year.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Sandi, sorry I just realised you had shoulder surgery and had pain from your frozen shoulder. We are all different and my frozen shoulder was good for me. It stopped me moving my shoulder - except during the exercises, but I notice drs tick it off on their lists because it must cause people considerable pain. I also had acupuncture to try and unfreeze it but it still took 18 months and then one day, like they say, it just went and I could use my shoullder again.

    I didn't feel any pain from my frozen shoulder, probably because my thoracic pain is so bad.

    There is a new book out on pain research that my physio recommended but it was around $250.00, must be for med students. I can't remember the title. She said that research says that you can only feel the worst pain in your body and don't really feel any other pain. I know that my ankle was badly broken in my accident but I didn't feel it. I think it was because my of my thoracic pain.

    I know kidney and gall stones 'cause a lot of pain, my friend's husband was hospitalised and was in agony. After a few days when the hospital couldn't do anything except pain relief, she did some research on how to get rid of gall stones on the web and it said drink a whole lot of Coca Cola. She made him drink it.

    It really worked for him and did disolve the stones which allowed him to pass them. He was fine within three days.
  • The key word for us is "Chronic". There are lots of bad pains but if you can make them go away you forget all about it. What about tooth pain? Many of us have had that and it can be bad but you go to the dentist and they fix it. Even a bad headache can drive you nuts after a couple days.

    I got bursitis in my shoulder at a fairly young age and many agree that is bad pain. One shot and I was fixed!

    Whenever I start thinking I'm a wimp or that there is some kind of mental problem with my back and tailbone I remember all the other pains that I could get to go away. Some of them even occured since my back injury and they went away.
  • This is sooo true. In the past year I've had my gallbladder out and also had a spinal cord stimulator implanted. while I felt the pain from those surgeries, my normal pain was gone, I could tell that I was improving because my back pain came back.
  • They woke me up in the operating room and all I remember saying is "PAIN" the femoral nerve block the anestisa Dr did, did not work. They knocked me back out and I came to as they were wheeling into the hospital room, took 2 days to get the pain under control.
    Thoracic spine pain - As far as your dog's pancreatic pain, I'm amazed at how dogs can handle pain. I came home one day and my german sheperd/pit bull mix was standing in the back yard staring at the ground wouldn't move or make a sound. Got him to the vet and they did emergency surgery and found one of his kidney's had actually ruptured from cancer. Even after the surgery he would occasionally whimper but that was it, He lived for another 21/2 years before I had to have him put to sleep as the cancer had spread everywhere. He was still wagging his tail up to the end.
    laminectomy c4/c5 2008, ACDF c4-c7 Jan 20 2014 sched
  • i forgot but when i woke up from my last fusion in may where they went in from the side, they asked if i could move my legs, as i moved them i had the absolute worse pain ever, worse than a stone. the problem is that it lasted for a couple of weeks. when i had to go to the bathroom, i tried to get into my walker and i screamed because it was so bad. my dr said he never had this happen before, but a couple of days later, he said some surgeon friends said it happened to their patients. my left leg after a year is still numb from my upper thigh to my knee. the pain is gone but i told my wife that is the closest time i though about killing myself. i could not live with that pain at all, everytime i moved i screamed. i wore a brace at night and it made it worse when i woke. it gives me chills just thinking about it. the dr said he hd to pound the cadavar bone and the metal into the area because it was so cramped, i think that is what caused the pain, irritation of the nerve. never again.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • TSP -Yeah, $250 does sound like textbook prices. I don't know if there are any in your area, but close to me is a store that sells used college textbooks, where almost everything is under $20. I would think if there are any colleges or universities in your area that offer a nursing/medical degree, there is probably one of those stores, it could be worth seeing if they have it.
  • thoracic spine painthoracic spine pain Posts: 566
    edited 05/08/2013 - 3:08 PM
    Thanks for your input. When I looked up the book on Amazon and ABE it had only just been published. There were no second hand copies but that might have changed as it was about a year ago.

    Dogs are amazing - maybe my boy is in pain but he doesn't complain.

    T9 crushed, my T5 is crushed around 80% and my spine looks like yours. My physio has started working on the one above and the ribs that are joined to it. She says the one above is taking all the pressure from my crushed spine. It seems to be working. First time in 7 years I have woken up in the morning and have not had to stay in bed until the painkillers kick in.

    She also taped my T4 to stop me twisting my spine. This thoracic pain is till driving me crazy. But even a couple of hours without intense pain is like being in heaven, and gives me a bit of hope.
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