I'm 20 and in a wheelchair due to muscular dystrophy and osteoarthritis. I had a full spinal fusion in January of 2005 and have had no real complications following this besides leg pain that had been vaguely diagnosed as sciatica and I have been on tramadol for 4 years to manage the pain.
Recently, as in the last 2-3 weeks, the numbness and tingling in my legs have gotten worse. Prior to this, my right leg experienced the most symptoms, hurt the most, was a bit numb on the outside of my leg/foot. Now both legs are numb on the outer sides and I am experiencing severe and sharp pricklike pains that just started a few days ago. I have constant tingling/burning in my right lower leg. I have never had back pain chronically until this started, and for the past few days my lower back has been extremely painful. The tingling and numbness are present even when back pain is treated w/ meds like tramadol, vicodin and baclofen (which help my back but not legs).
I went to the ER twice for this. First hospital didn't know, did CT scan, still didn't know what was up and sent me home. It got worse and a week later, today, I went to a different hospital and was told to see a spinal specialist after being prescribed some pain meds. I am numb in my saddle area and have tingling/pricks in that area, as well. I am scared if I don't treat this soon I will have permanent nerve damage and persistent pain. No indication of bowel/urinary loss. No new weakness in my feet or legs, either.
I moved from GA to NC and I just got Medicaid approved, so I am now only able to get a primary care doc who I can't see until June 18th. I am scared to wait this long! First off, any idea of whether or not this is a dangerous situation, like cauda equina? Secondly, what could these symptoms indicate? The doc at the ER today said my spine was fused in a way that I probably couldn't herniate or slip a disc, but tha tnerve compression was present and suggested muscle spasms in my back. I used to sit in an electric wheelchair and since moving I have not had that chair. Could lack of back s upport contribute to my symptoms?
Sorry for the long post, but as you can see, I am quite concerned about this and it's causing me great anxiety. I can't even sleep at night because of the sensations
Any help or advice would be much appreciated.
PS: Another question - is it okay for me to have an MRI with a rod in my back? I feel like an MRI would complete a diagnosis.