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Rod Removal Surgery

I have neurofibromatosis, along with dural ectasia and vertebral scalloping. I had a fusion of T10-L4 in May of 2011. I'm still having extreme pain, to the point where I can't sleep, and the doctor is considering removing the right side hardware. Has anyone had this done? What can I expect?
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Comments

  • gaj399ggaj399 Posts: 270
    edited 06/19/2013 - 8:50 PM
    I wish I had some info for you, there are others who have had rods taken out that will probably jump in when they see your post. I have had plates and screws removed in my neck, but this was caused by a herniation of the level below each time.

    I'd like to at least welcome you to spine health and take a good look around. There is so much information to be found. You may even find info on hardware removal if you type key words in the blue box at the top of the page.

    I wish you well and hope all goes well.
    Gary
  • AllMetalAAllMetal Posts: 1,189
    edited 06/20/2013 - 10:30 AM
    Obviously, as you can see... I still have lots of hardware in my back. However, I did have to undergo so "revision" where parts were taken out and new parts added... The recovery was a BREEZE compared to the fusion before hand. I mean, I didn't go skipping out of the hospital by no means, but knew what to expect (pain wise) and was surprised that really the worst pains were just the incision pains, and then was the weeks of just soreness, but I must say it was weeks, not months... and the recovery pretty smooth and quick. Best of luck to you.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
  • Hi,

    I saw the surgeon yesterday and pending insurance approval, we will be proceeding with removing at least some of the right side hardware. It's unknown if he will remove the entire right sided hardware or just partial. My scoliosis is dystrophic , so I'm not quite sure how that plays in with recovery and stuff. I'm still pretty freaked out, but nowhere near as I was for the initial fusion.
  • I hope it all goes well for you, I'm assuming they are removing some of the hard ware in hopes of pain relief? I hope it makes a big difference for you. Keep us updated.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
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