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hi all. i am looking for some guidance as to what to do. i am a 28 year old mother of 4 kids and suffer from severe pain. i was diagnosed with scoliosis when i was 12, ddd when i was 21, facet arthritis at 21. i struggle with muscle spasms, knots in my back, muscle weakness, sensitivity to touch, loss of sensation from my waist to my knees (i can only feel pressure but not the actual touch sensation), migraines, spinal pressure build up, loss of sensation in random places on my feet, no internal sensation when having sex (sorry for the tmi), i cannot feel when i go pee, i can barely tell when i need to go, and more pain than i can control. it is taking a toll on everything. i am on cymbalta, lyrica, lortab, tizanidine, imitrex and bupap. last year i had a 2 level spinal fusion (l4/l5, l5/s1) and a left si joint fusion. things were ok for a little while after each surgery. a car wreck last november threw things out of whack again. trying to get in with an orthopedist here in town has been a nightmare in itself. things have been in complete chaos and it is getting worse. i cannot even sleep in my own bed anymore. i have to sleep on the couch and even that is disturbed sleep. i am at my whits end with everything. any ideas or suggestions would be helpful. thanks.


  • Ashley, I truly admire you. I understand your pain and you have four young children who I am sure don't understand mommy's in a lot of pain and I am sure they are your world. Please make sure you have a good support group, spouse, parents, in laws, friends etc who are well educated on chronic pain. I can not imagine what you are going through but if you ever need to just talk please feel free to PM.
  • Ashley, I just got your PM and responded.
  • well, i got in with the orthopedist. they took xrays and are scheduling me for an mri. they also set me up for pool therapy. that is the one form of physical therapy i haven't tried yet. i am also being referred to pain management. once the mri is done i will know more. he said the xrays looked ok but the mri will tell him more. things are still frustrating though. i just want answers. i also went to a neurologist. that was a complete waste of time. he said that just by looking at me my migraines are caused by me clenching my teeth. i only clench them when i can't tolerate the pain any longer. i don't normally have them clenched. he ignored everything else. the tremors, twitches, and loss of sensation.
  • dilaurodilauro ConnecticutPosts: 9,859
    Please take the time to read this post and refer to it when you have questions

    At the bottom of this post, I have a forum thread that you should read

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    Ron DiLauro


    Here is a link that I know will be good reading for you: Chronic Pain Treatment Step by Step
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
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