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Beyond Pain

Hello everyone my name is liam ,I am 46 and I have suffered low back pain for twenty years.It started with my back locking up and pounding pain with reduced mobility but these days the pain is centered on the very bottom of my spine and right ON my spine.It is a pain I find hard to describe.It is like a burning pain but at the same time it is ice cold and is a pain beyond any other ever felt.It is relentless and extreme and drives me out of my mind.I cannot think straight for it.I cannot read, walk, rest,watch tv or do anything else because this pain utterly and totally overwhelms my body and mind.It consumes my entire existence.It causes me to roll in circles in bed , I cannot sit for more than minutes and I cannot walk more than minutes.This pain makes me grind my teeth and feel like I literally want to die.It makes time slow to a crawl and a minute is like day.
I cannot find the words to accurately describe this pain.
I take Oxycodone 80 mg twice per day plus a top up of fast release Oxycodone 20mg up to four times per day and even all that cannot stop this pain when it is really bad.
I have had pain killing injections into my spinal facet joints but I had a bad allergic reaction to it.I have had physio.I have lost two stones in weight and that helped a bit.I try to keep active but it becoming impossible.
I really am desperate now.
Does anybody here know what i am trying to describe? Has anybody any advice?


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

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    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Spine-Health Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Doctor Advice Health Center The Resource tab, has many important features. You can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    Health Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

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    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dilaurodilauro ConnecticutPosts: 9,875
    without details, all I know is you are taking a heck of a lot of pain medications. But we dont know if you ever had surgery or even a diagnosis, just that you have pain
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Forget it, I didnt come here to be judged about how many pills i am taking. YES I am taking a heck of a lot of pain pills because i am in horrific pain ! They are prescribed by a doctor. i dont need people like you making it worse.Forget i ever asked for advice and help.
    OUCH !
  • Hi. I'm a chronic back pain sufferer. I'm from England & have been living in the states for a number of years now. I've never 'spoken' on a forum before but especially sitting up in pain at night I've found this site to be so helpful. I know you were hurt by this moderators response but I've read many of his comments & he's struck me as being incredibly compassionate & knowledgable. My father (75 years old) has also suffered with 'this condition' for much of his adult life...his back now looks like a scenic railway but he plays high handy cap golf 5 times a week & rarely takes pain pills anymore! (I just wanted to throw some hope out there!)
    Anyway... I'm writing to beg you to 'stick with it' as there is a huge amount of help & advise available on this site. Believe me I know what it's like to be in agony all the time & how desperate it can make you feel. You need support. The English medical system is so completely different to the one here in the USA & some understanding is needed. Here they are raised with insurance plans & specialists seem to be on every corner. You have to be very careful who you choose & who you trust with your health. There are so many choices you learn to be responsible for your own care. This was a VERY long learning curve for me. In my experience in England most patients (I've ever known) cant recite exactly what's wrong with every disc & joint..I didn't even know what S1 L4 even meant & I come from a family with chronic back conditions, myself included! I do know that almost every diagnostic tool, therapy, medication etc they discuss on this forum ARE available in England. If you have a backward thinking GP you may not know this..I'm just saying incase you haven't been presented with options. I know my dad had to push for an MRI & request appointments with top specialists in the field to research his condition & options.
    I'm no expert on anything except the living nightmare of chronic pain. In my experience, you reach a point (& you seem to be there & i got there a while ago!) where pain pills just aren't enough & you need more help.
    Please stay on this site & learn everything you can. Go to your GP with as much information as you can gather & don't take no for an answer! There are fantastic specialists in the UK & it sounds like you need to be sent to one (& it won't cost you an arm & a leg like it does here!) the National Health Service belong to you. My grandfather was in the 2nd world war & always said they were rewarded with a national 'free' health service because they earned it! I know we criticize it but believe me the alternative I've been experiencing over the last few years in the USA makes me realize how wonderful it really is...sometimes you have to push a little. GP's don't always know how to deal with major problems..doctors are like that everywhere...

    I hope you're still looking at this site & this helps some. Living in pain is a nightmare but you can make it far more tolerable.
    Best wishes.
    Osteoarthritis & DDD.
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