I am new to this site looking for anyone to talk with who may have similar pain or anyone in general...Over the past 10yrs I have looked around on the internet for forums but most seem to be more about drug use rather than people really suffering from chronic pain. I know that sounds harsh as I am very aware of how easy it can be to over do narcotic pain meds when in pain, depressed & bedridden. I was very naive in the beginning & did not take my 20mg Oxycontin the way it is prescribed & instead took it when I was hurting & ran out...However, i did know I could not ask for more until the refil date but I had no idea what withdrawals were...I LEARNED A VERY HARD LESSON!! From that day forward my wife & I bought a safe & she keeps my meds in there & lays them out for me each morning. I am no longer on Oxycontin although I was up to 30mg twice a day before coming off a year ago as they were not really helping me. I still take 10/325 Oxycodone (Percocet) twice a day...I actually split the pills & take a half every 6hrs which seems to work better.
I have suffered from neuropathic pain for over 10yrs now...since about 2004. My pain runs down my left side (exactly left of center) from chest to left foot getting exponentially worse the lower it gets leaving my foot feeling like it is either sitting in bed of hot coals or in a vat of liquid nitrogen (burning cold). However, the most debilitating pain is probably the left side of my penis, scrotum & anus...If I sit still with the right clothing on I can get comfortable but as soon as I try to move & things start rubbing together it gets very uncomfortable to painful! This is one of the main reasons why I have been in a bed or in a recliner for the past 10yrs. My wife & I cannot be intimate at all due to the fact erections are beyond anything else the most painful thing I have to deal with! Even soft touch on my left leg is extremely uncomfortable to painful & the feeling of being touched will linger for minutes to hours depending on the situation.
I am very lucky to have a wife who truly loves me & does everything she possibly can to create an environment in which I can be as comfortable as possible. Despite the fact she is disabled herself from a near fatal car wreck a year after we were married...She was in a come for 38 days due to severe TBI Traumatic Brain Injury...She shattered both legs (rods to repair), shattered her left hip (replaced), pelvic bone (plates), left arm several plates & her face & skull had over 200 fractures that required over 125-150 small titanium plates & screen to repair including an orbital fracture & her lower jaw being broke in 8 places. She has made an incredible recovery over the years but is still permanently disabled much like a stroke victim with her left side being severely impaired...But she has been very lucky to escape without any chronic pain probably due to the fact she had her seat belt on & did not injure her back or neck! CRAZY LUCKY! However, her drive to rehab & get back to "normalcy" was that of a Hollywood movie as she did not allow anything to slow her down...She is my HERO!! I will not lie we had struggled at first dealing with her brain injury being so young 24yrs old...It robbed her of her University education 4yr degree & she was not sure who I was in the beginning but we pushed through it. Only to be knocked back down with my spinal cord injury!!
I have a small 1/4" white mark on my spinal cord visible under MRI where my spinal cord was damaged due to a slipped disc & I have been in a bed for 10yrs yet my wife's entire body was crushed & she rebounded...This weighs heavy on my mind all the time despite the fact I know why. Although, this feeling of not being able to recover as she did has waned over time especially lately as my pain has drastically increased which tends to refocus one's attention.