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SI joint dysfunction ... Will I always have this pain?!

Mandycandy27MMandycandy27 Posts: 1
edited 03/09/2015 - 11:06 PM in Sacroiliac (SI) Joint Problems
I am a 25 year old female ...no injury... That had intermittent pain for 4 months and after being stubborn I finally went to see a Dr. My pain at the time was in the back of my right hip . He diagnosed me with piriformis syndrome gave me some Meloxicam and sent me to Physical therapy... Lots of stretching later I had temporary relief.

After switching insurance I had to see a new doctor who thought it was trochanteric bursitis... Right hip xrays normal so I was referred to ortho. I found a well recommended hip specialist who couldn't find a reason it could be my hip but perhaps my back instead and diagnosed me with facet syndrome. More Physical therapy later I was getting better. My pain had moved closer to my spine.. But of course that relief was temporary and the pain came back worse then ever. I couldn't sleep without taking ibuprofen and I had to give up working out.

I saw a spine specialist that believes it to be SI dysfunction. He recommended the steroid shot which my insurance won't pay for but I was desperate. I paid out of pocket and after a week I do notice a difference I would say at least 50% . At my 2 week follow up appointment he just told me I could get another shot or just wait it out . I don't want to spend another 700$ out of pocket up front if it's not even guaranteed to help further and he left me feeling like this could be the rest of my life. Help! I thought about trying Chiropracter by I'm not sure I believe in any of that.

I don't know where to go from here . I just want to be normal again ....


  • LizLiz Posts: 7,832
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    Spinal stenosis since 1995
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  • Hi Mandy, I completely understand you... I'm 27, have been dealing with SI joint dysfunction for 1 year and 7 months. I have tried steroids shots (two rounds), regular physical therapy (2 months twice a week) , ART, and platelet rich plasma injections (one round) . Everything helped me for some period of time or helped reducing my pain, but all the symptoms and pain came back after a while.

    After trying so many things, I started feeling super frustrated and sad! I didn't know what to do, so believe me! I know how you feel...the good news is that 2 months ago I finally found a great therapist!!! she is a Physical therapist with a degree in Kinesiology that uses Pilates as rehab. Her approach is helping me A LOT! because she is focus in how I move and how i use my body, and is trying to fix the movement patterns that provoke my muscle imbalances (All that names like SI joint dysfunction, piriformis syndrome, etc are examples of muscle imbalances). Now I feel a lot better, I'm not "normal" but since week 1 with her I have noticed a huge reduction on my pain. For example, this week I had 5 days in a row without pain AT ALL. We have to understand that this is a really slow process, but we are too young to give up!!!! So my advice is : find a doctor or therapist on kinesiology, or at least a therapist that uses pilates as rehab and that understand about muscle imbalances.

    - Dani
  • Tink1982TTink1982 Posts: 9
    edited 03/28/2015 - 9:54 AM
    Hey Mamdy!

    I have had SID for over 15 years. Been through the entire range of treatments from physical therapy, to injections, SI belt...I never tried a chiropractor because my insurance would never cover the cost. So I cannot comment on whether that would help or not.

    And because I am diabetic I have to limit my injections as they can cause my blood sugar to soar. I also have chronic kidney disease in stage 3 so both my nephrologist and PM Drs will not use NSAIDs. So my treatment is fairly limited.

    Both my PM and GP call this a Chronic condition.

    I have a great PM who helps to manage my pain. So don't stop trying to find relief! I currently take Opana for my pain and it does help. And even though I did not want to strart this type of medicine for many reasons it just came down to a quality of life issue! Medication, physical therapy and very limited use of steroid injections have all helped me to cope.

    I know you are frustrated. I know you are exhausted from being in pain all the time!

    Would you be able to see a pain management specialist? I am not sure if your spine specialist is actually a PM doctor or not. I hope you have the option of finding another doctor. In my experience, my condtion has been chronic but manageable with a doctor who is willing to work with you to find what works for YOU.

    Good luck and let us know how you are doing!
    Have a magical day!
  • Hi
    Sorry you are all dealing with this kind of pain, for me it is a pain
    I never felt before and I have had pain for a long time.
    What I wanted to mention is there are some great posts with a lot
    of information on here that others have give great suggestions and
    very good information.
    I had brought up these symptoms to several other Doctors before so
    You might want to check those out and also there are some really
    informative videos that helped me convince my Doctor to do some tests
    for SI joint. I had been doing TP that just aggravated it, walking got so bad,
    just a bunch of things that I was told to do that if it is in fact SI it was
    the wrong direction to go.
    Anyway I just got an injection in that area and after this since it did help for
    a bit I am going to go to a program that just focus's on that SI joint.
    I am just telling you what I know and what great things and people that
    have helped me. Your Doctor is of course the one to guide you the right direction
    but it sure doesn't hurt to have knowledge so you can discuss it with them and
    hopefully figure it out.
    Sorry for rambling it is just such a hard thing to deal with and I wish you all the very best at getting help.

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