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hello from a newbie :-)

Maureen E.MMaureen E. Posts: 19
edited 05/19/2015 - 5:59 AM in New Member Introductions
Hi everyone,

I just found this site today and immediately wanted to join. A bit about me, I was born with mild cerebral palsy which mostly affected my balance and walking. I began having severe lower back pain in 1992, was then diagnosed with spinal stenosis. I had surgery on my back, a laminectomy with bone fusion. Several years after that I was then diagnosed with degenerative disc disease. Back in younger years I worked as a secretary, married, gave birth to two healthy sons who are now both married and have children. And me? I'm now age 63 and living in a nursing home.......I sure didn't see that happening to me at this age; I feel like I don't really have a life anymore. The pain in my lower back and legs has gotten so bad that today my doctor has started me on Fentanyl patches because the previous pain med was no longer working.
I am mostly in a wheelchair now but also have a walker that I'm supposed to use more now. I just finished up some physical therapy/rehab and they want me to continue at home doing the same exercise routines they showed me and to walk every day with my walker. And that's me. Hope everyone is ok.


Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:

  • - When did this first start?
    - Was it the result of an accident or trauma?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
    - What Conservative treatments have you had? Which ones?
    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
    - What medications are you currently using? (details, dosage, frequency, etc)
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are
I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 05/19/15 12:01 est


  • SavageSavage United StatesPosts: 5,427
    edited 05/21/2015 - 5:58 AM
    Do you live in the nursing home? Or are you there for therapy?...., since you mentioned p/t they want you continue at home.

    It is difficult when it seems like our body is betraying us. But we are still in control....with how we will respond, and learn to care for ourselves.

    Sometimes that means learning to ask for help. Sometimes people surprise me with how they assist me..they just need to know what to do.....like grocery shopping....
    There are also social services that may benefit you, at no cost to you....as they are aware of resources that may be available to you.
    They are a part of my support system.

    On this site...if you use the....search.....upper right on page...you will find a post called .......the blend.....
    You may find it helpful in finding ways to cope.

    You are not alone! Hang in there
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Yes I do live in the nursing home. I've been here for three years now. I recently had serious respiratory problems and was sent to hospital via ambulance where I stayed for a week and then released back to the nursing home. There is an excellent physical rehab/therapy dept. in this facility and because I had been in hospital I was able to receive more physical therapy to improve both upper and lower body strength. After a certain number of allowed visits, the therapy has been discontinued, but they gave me some papers with details and diagrams showing the exercises I can and should do on my own to keep my body fit even though I'm in a wheelchair. Thanks for your response. :-)
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