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cant get help

edited 06/10/2015 - 3:10 AM in Lower Back Pain
I am 41 yrd old and for the past 2 1/2 yrs I have been living with pain that is so unbearable at times i really feel like finding a way to make it stop. I have been to my GP doc, spine specialist, radiologist, and even rheumatologists because i was lucky enough to develop rheumotiod arthritis in my lower back. I went for an MRI and every kind of blood test there could be performed. I have had x-ray after x-ray and all these doctors say that there is nothing wrong with me. I was refered to two different pain management specialist who turned me down saying I was not a candidate for pain management as I sat there crying uncontrolably from the pain I live with on a daily basis. I had to quit my job because I am unable to stand for long periods of time. I have a string hanging above my bed to hang my leg in when the restless symptoms start thats send pain radiiating through what feels like my entire body. One day i decided I was going to look at my MRI results for myself through our patient portal on my doctors website. It states that not only is the damage from the rheumatoid visible, I also have a large hemangioma on my L4, and a smaller one on my L3, also visible is early onset of osteoporosis in my sacrum, S1, that is spreading into the illiatic wings. But then at the bottom it says "MRI normal"... HOW is it normal with all of these things visible on the MRI. I cant get anyone to help me and the pain is so incredibly bad that if it wasnt for my loved ones and my children I would have already found my own solution. Dont get me wrong, i am not mental and that is not the answer I wish to have< just an explination of how great the pain is. This is not a pain anyone could bear for very long. I need some help and I need a doctor that is gonna take this serious. My wonderful fiancee has been vidio taping me as I sleep to show how much pain im in constantly. I live in Louisville, Ky and if anyone can give any suggestions for a doctor that can help me I would so much appreciate it. I am willing to travel a reasonable distance, wish it was infinite but im not rich and on a low budget. I do have insurance so that isnt a problem. SOMEONE PLEASE HELP!!!


  • sandi123ssandi123 Posts: 456
    edited 06/10/2015 - 4:16 AM
    But there is a find a physician feature at the top of the page. You can search by state or type of doctor.

  • itsautonomicitsautonomic LouisianaPosts: 1,807
    Since you have said you have seen multiple doctors with no help , i would look towards the teaching hospitals / prestigious hospitals in your areas to go to. If the pain is bad enough to consider suicide as an option to escape it you need to get some answers and from there can get correct treatment. Nothing wrong should not equal pain you cannot bare for 2 1/2 yrs. Educate yourself about whats on the MRI, track your pain levels see if the increase correlates with anything, research doctors in your area or within your travel distance ( the spinehealth search does not weed through or list only the best doctors you have to do your own research ), look at your options for travel and act now as the best hosptials/Drs usually have longest wait time. Advocate for yourself don't sit back and continue downhill. Doctors are proven wrong every single day, you are not alone many of us were told nothing is wrong early on in our search for what is going on.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • SavageSavage United StatesPosts: 5,476

    Please take the time to read this post and refer to it when you have questions

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