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Myelomalacia,other spine issues...scared!!!!!!

aimee roseaaimee rose Posts: 18
edited 08/11/2015 - 10:02 PM in New Member Introductions
Hello there,
I am a 43 year old female and was diagnosed with Myelomalacia of the cspine..degenerative disc(could be an old fracture from an auto accident years ago), with spurring, other hemorhaging issues in tissue My spine in this area is distorted also. I have been doing a ton of research, with very little answers. My family doc, not my chiro, found the issue on xrays, followed by an mri. she is wanting to contact the neurosurgeon herself to go over my case,which tells me it is an emergency situation. I have severe pain in my left shoulder blade,neck sometimes down my arm..i also have numbness and weakness in my forearm, wrist and fingers. now im having some tingles on my right side also. I have had several abdominal surgeries , but spinal surgery has me terrified and the worse part is waiting for answers.
Any advice? thoughts on any of these issues?


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • get the operation done if there is compression.
    I have myelomalacia in the. C. 2. Area.
    God. Bless.
  • Don't read the internet on myelomalacia, you'll be thinking you'll be in wheelchair in months, and almost none will be. There's a good group on facebook if you are interested. Wait and see what the neurosurgeon says, and then get a second opinion if you have time.
    You didn't describe any myelopathy signs, which include lower limb weakness/heaviness, stumbling, etc. Do you have any of those?

    ACDF w/Corpectomy C3-6 12/8/14 ; Laminectomy C3-6  5/19/2016

  • I have numbness, tingling severe radiating pain from posterior shoulder blade down to fingertips on the left side. I can no longer feel my pinkie, ring finger or other fingertips on the on the left side (my dominant side). I am also experiencing tingling in legs and right arm when bending head down. I finally got a copy of my MRI, which includes spondylosis, disc displacement and protrusion, kyphotic deformity, moderate canal stenosis, facet athropathy, the list goes on and on. All these issues start at C3 and continue to T2. I am surprised my report did not read, "Wow, you're spine is a hot mess!" lol...I'm terrified of spine surgery, but I am thinking it would be better than living in pain everyday..I have to be proactive in my health, no one else will be. I see my neurosurgeon tomorrow and I am anxious as to what will be said..
  • MikethepikeMMikethepike Posts: 244
    edited 08/16/2015 - 10:24 AM
    at times it burns. It seems all my muscles are tight.
    Arms and shoulders are very tight.
    Do those that have myelomalacia exercise at all.
    It seems when I over do it I have a bad day the next day.
  • I know what you're saying!! I can't even vacuum the floors, do the dishes, laundry, work at my deskjob(I'm off work right now though) without being in excruciating pain that evening or the next day. Sleeping is pretty much non-existent anymore..as soon as I get comfortable, it feels like my spine is grinding against the bed, pillow, etc. Have you had surgery or been offered surgery?
  • How did your neurosurgeon visit go?

    ACDF w/Corpectomy C3-6 12/8/14 ; Laminectomy C3-6  5/19/2016

  • aimee roseaaimee rose Posts: 18
    edited 08/20/2015 - 7:26 AM
    Hi TwynnB,
    The neurosurgeon appointment went well. I will be having ACDF w/copectomy on September 9th, with a possibility of posterior fusion as well, depending on my range of motion. There are so many things to get done before surgery, it is finally sinking in how major this is. I need to have it done though, as my symptoms are progressing. How did you do after surgery? I noticed you had the same surgery as I am expecting to have. Any tips to aid in recovery or before surgery that I should be aware of?
  • TWynnBTTWynnB Posts: 265
    edited 08/20/2015 - 12:21 PM
    I thought the corpectomy would be insanely painful (Hel-LO, they took a vertebra body out!), but it really wasn't horrible. I have learned I have a high tolerance for pain though. Make sure you take drugs as directed! You can follow most of the threads on here that discuss bendy straws, recliners (I stayed in one til about 6 weeks, but I'm a side sleeper), soft foods, etc.
    I haven't recuperated well, but I am definitely an abnormal case so I won't scare you :).
    I am grateful my surgery was 4 days after I saw the surgeon, so I wouldn't have too much time to research and panic. It really wasn't too bad though!

    ACDF w/Corpectomy C3-6 12/8/14 ; Laminectomy C3-6  5/19/2016

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