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PLEASE Help doctors STILL unsure of diagnosis. Pain is not improving.

steph010302ssteph010302 Posts: 2
I could REALLY really use any advice on what my issue may be. My pain has gotten WORSE the past week after an epidural injection for my leg pain by my pain Dr.
A little history:
- When did this first start?: 4.5 months ago
- Your age: 25
- Was it the result of an accident or trauma?: May have been caused my jumping off a counter I was only 6 weeks postpartum and the pain started just hours later.
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc): Physical therapist and Neurosurgeon
. Which doctor did you start with?: Primary Care Physician
- What Conservative treatments have you had? Which ones?
. Physical Therapy: Yes
. Ultrasound / Tens unit: Yes
. Spinal Injections: Yes (SI Joint) x3, the first two seemed to help by about 50 percent, the third was different he did an epidural injection and it did NOTHING. :(
. Acupuncture: No
. Massage Therapy: Yes
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc): MRI, (nothing) X-rays (nothing)

- What medications are you currently using? (details, dosage, frequency, etc)
. Name of Medication Lyrica 25 mg 2x a day for almost 2 months and tramadol 50 mg 2x a day

- Has surgery been discussed as an option? (If so, what kind) No
- Is there any nerve pain/damage associated? YES
- What is your doctor’s action plan for treating you? continued PT.... I feel like they are having a difficult time figuring out what is wrong and I have major anxiety sometimes depression because of it. The pain is draining. It is never sharp but CONSTANT all around my right leg, generally the front of my thigh, back of my calf, sometimes a little in the right groin area, or knee and two toes. ALL ONLY ON RIGHT SIDE. It isn't usually sharp but more numbing, pressure, burning sometimes, achy nerve/ muscle pain. HELP I need to figure this out. It originated as pain in my right SI joint (for a few days) but then just in my right leg. Hasn't went away for 4 1/2 months. Would appreciate ANY opinions. TIA!
Stephanie B


  • dilaurodilauro ConnecticutPosts: 9,832
    that you have not had the diagnostic tests (MRI, X-Ray) or that the results were negative.

    I guess, the answer to that does make a big difference. The fact that you indicated that you have some nerve damage would make me believe that there is some nerve impingement by a disc. Assuming that is correct, then it makes sense that your pain is not improving. Until you correct the source of the problem, the pain may just continue. But since the doctors are not indicating any surgery, that would imply that a spinal nerve is not being impinged by a disc. Which sort of brings me back to the start.

    Right now, the only action plan established by your doctor is physical therapy. How often do you go and for how long?

    The hardest thing is identifying the actual problem. As I said in my opening, I am not sure about the status of your diagnostic tests. I think until that is known it would be difficult for any one, any doctor to provide a formal diagnosis.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • LymeFairyLLymeFairy Posts: 2
    edited 08/24/2015 - 5:30 AM
    Hey sweetie. Have you ever heard of Chronic Regional Pain Syndrome ? From a brief look, you might fall into that category. If so, I have had horrific non stop nerve pain for 3 years from late stage Lyme disease that they missed. The basic test, the Western Blot is not accurate and said I was negative. Wrong. I don't think this is the case for you. But you may also have a weakened immune and heightened pain response due to genetics living in toxic mold or being around other toxins. Our make ups are so different. If you fixed the initial injury but pain persists, it could be CRPS. And it could last a long time. Unless you get lucky like me! I recently did ketamine I've over a few weeks and can walk for the first time in years!! I'm on a crazy high dose of narcotics and they never got my pain below a 5-7, but now I can lower them and my pain is a ZERO right now. There is hope. No matter what they call your pain, fibromyalgia, sciatica, whatever. Pain is pain. And if there's no help with chiropractic or if it's spreading for "no reason" there's a reason. And there's help. I was 28 when I "lost my life". Over night. I woke up unable to lift my left arm and the pain spread like wild flowers. I was a healthy YOGA TEACHER. It made no sense and doctors were stumped. I know a lot about the body, the mind connection, disease and pain. There's hope honey. I promise. Xo let me know how I can help. Xo Krysten

    Welcome to Spine-Health
    Please click on link for helpful information!
    ~ spine-health moderator, savage

    Chronic Pain Lymie of 3 years finding relief from Ketamine IV There's hope.
  • LymeFairyLLymeFairy Posts: 2
    edited 08/24/2015 - 5:30 AM
    New to this. Look up CRPS

    Nobody on the forum is medically qualified all responses will be based on members personal experiences only

    Liz, Spine-health Moderator
    Chronic Pain Lymie of 3 years finding relief from Ketamine IV There's hope.
  • First, Thank you very much for the responses. To clarify yes I had MRIS and XRAYS both showed no major abnormalities or bulging discs nothing that would be causing all the pain, really just some mild arthritis. I have been doing PT for about 2 months and were only working on strengthening techniques now I just feel as though it hasn't done anything... and I do all I'm supposed to at home religiously. I meet with my doctor tomorrow afternoon and am going to bring up CRPS tomorrow I had never heard of it but glad to hear a happy ending story, it's so frustrating not to have an answer to what is going on and living with pain. Thanks again.
    Stephanie B
  • itsautonomicitsautonomic LouisianaPosts: 1,802
    I actually thought same lymefairy, I am so happy ketamine worked for you. Injections or coma?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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