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c5/6 cervical spinal stenosis

Maryh1435MMaryh1435 Posts: 2
edited 10/23/2015 - 2:25 AM in Back Surgery and Neck Surgery
Hi All, I am new on here but am really hoping to hear from others who have cervical spinal stenosis. My history is complex and long! Had back problems since age 11 which were never really resolved until 25 had a scan that showed DDD in lumber spine. Then aged 35 I herniated my L5-S1 which caused a rare condition Cauda Equina Syndrome - life changing disability followed with permanent foot drop and lower back, bladder and bowels affected. I had 2 surgeries in a year but still left with issues there. I had to give up my job, so did my husband as we had 3 children, and I have slowly re-adjusted to my life which daily is up and down, I say I am part time disabled, I walk with a stick but sometimes 2 depending on the pain I'm in and how long my journey,. The specialist I saw in the UK said I would never be able to predict a 'normal' day ever again as the after effects of CES vary massively day to day. However last year I suddenly developed heavy heavy (walking through water feeling) legs, I didn't understand but I felt it difficult to walk and when I did I suffered terrible cramping pains in my legs, they fatiqued instantly and I struggled with getting up stair or even walking to the toilet, my legs also burned! Front of my feet burned (like scalded burning) also, and I developed a stiff neck, that progressed into a feeling of being stabbed in the neck it was terrible pain! I had headaches and balance problems and began dropping things and struggled using my right hand (I remember struggling to write Christmas cards) and when to docs thinking the hands must be arthritis - my GP sent me to Oxford and they scanned lower spine and said its not your lower back, so I went home thinking this is all in my mind! But yet it couldn't be as on a trip abroad for a rare 1st time away just me and hubbie it all came on ten fold! We had to hire a wheelchair as I literally couldn't walk! Back home I went to Oxford again who looked at me as if I were a hypercondriac! But arranged a full spinal scan, and then last week a consultant in clinic (not one I've meet before) casually says you have spinal stenosis and disc herination at C5/6 and something about thecal sack compression, I was gobsmacked when he said this was the reason for problems with legs, cramping pains, nerve pain in legs and arms and my balance issue, I'm supposed to have a epidural nerve block next week - but not sure I should? And he said he could operate but it might not stop what is happening??? Help!? Anyone have this and it go away? I'm suddenly really disabled by it, no nerve pain killers work but it's also the struggling legs I'm mentally struggling with as I actually need a wheelchair at times just to be able to go out, I'm scared what the future holds now, is this going to go away with an op? Or injection? I don't understand how it can stop?? Sorry for rant, I'm really worried that this is it for my struggling back and legs, I don't want to stay like this x


  • KayKKay Posts: 50
    edited 10/23/2015 - 5:15 AM
    One thing you did not say is how old are you now to reference you last lumbar surgery. I am a victim of Cervical Myelopathy (CM)and I can tell you that if you DON'T have surgery of your C-spine your symptoms can worsen further. You have to make the difficult decision of what you can and cannot live with. I have spinal cord damage from a delay in surgery 5.5 months after my symptoms started but I did not want my symptoms to progress to walker, wheelchair or cane. Most of my symptoms stay dormant until I aggravate my neck cause I have had 3 injuries since the surgery. You will still have to be very careful with your neck whether or not you have surgery. I will never do an Epidural again! That is what put me into CM earlier than need be. I had canal stenosis,DDD and 2 herniated C5-6, C6-7 discs and had an ACDF in 2009. Epidural is not treating the cause of all your rather dangerous neurological symptoms. The surgery does not guarantee decrease in symptoms especially the longer you have lived with this disability. Your body is telling you damage is occurring to your spinal cord and the sooner you have that surgery the sooner the damage will hopefully be controlled. I feel for you.
  • SavageSavage United StatesPosts: 5,476
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