pulling the plug on my meds and miserable

pulling the plug on my meds and miserable

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Anonymous (not verified)
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pulling the plug on my meds and miserable

ok so I decided to pull the plug on my meds, not all at once by any means but I just need to vent...it's aweful Sad

I need to see where I'm at and how much I can stand to try and WORK!! I need to work...anyways I was scared and finding out that's rightfully so! I'm hurting pretty bad & feeling guilty because I broke down last night and had to take an additional med at 2am because I couldn't take it anymore.

How the heck am I going to work? but I can't ruin my family either. The problem is there is no rhyme or reason to the nerve pain. I know some triggers but sometimes it just doesn't matter I can be doing nothing and it gets completely INSANE!

thanks for listening!!!

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lulusheart
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Last seen: 1 year 10 months ago
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Joined: 06/19/2008 - 5:36pm
Don't be so hard on yourself!

Smile Hi! did that include your nerve pain medication? just opiates? are both causing you a problem or can you get by with just one and think clearer? having severe pain can fog your head as well as you found out! i hope perhaps it will only be a matter of trial and error to figure out how to adjust your meds and still control pain without being totally off. how many hours does your work entail? perhaps looking at some of these questions and rethinking your meds will still give you some pain coverage and yet allow enough hours for you to work. good luck and don't be so hard on yourself! Jenny Smile

PRIESTESS
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Last seen: 4 years 6 months ago
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Joined: 06/17/2008 - 11:42am
I

understand the desire to come off of meds...been there , done that , gave back the t-shirt.... Wink Just make sure that you are keeping in contact with your doctor throughout this time....also , sometimes we stop our meds too early and we end up actually making our recovery time longer. Pain goes up as well as stress levels , throw in lack of sleep...not good for a body trying to recover....been there , done that too. Please take care of yourself and please keep us posted as to how you are doing. Best wishes , Miki

shar51
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Joined: 06/20/2008 - 2:46pm
nerve pain

I know about that nerve pain.....you don't have to do anything...it will just strike you for no reason....are you taking anything for the nerve pain?? I have tried to stop my Lyrica before and the nerve pain was too much to take. I've decided that I am going to have to stick with it. After the Lyrica adjusted in my system I didn't have any side effects....

Sharon

LillyDePlume (not verified)
Title: Member
I've tried repeatedly to get

I've tried repeatedly to get off Oxy since it wipes me out, but the nerve pain always drives me back. Sad

pettynme (not verified)
Title: Member
thank you

you guys are all so very sweet...I appreciate your experiences and also some very goods points, thiings I hadn't really thought about.

Jenny, Yes just opiates for now. I'm down to just under 50%. My back is worse so they were definitely helping w/that too. Both meds are not causing me any problems per say, I'm just unable to work taking opiates & honestly I don't know if I'm aloud to take my nerve med, if not that will be last to go anyway so I'll have to find out now come to think about it.
My work is a minimum 4 hr shift, I haven't worked since last summer. You're right though I've got to try to find a balance. I have to figure out how to do that & do it without taking extended release pain meds ever.

Miki, love the pic of your eyes. You always have some pretty pics....& the first person on these boards to welcome me last summer when I officially became a spiney.... Smile If I do not take any meds & then can do nothing what's the point? If I need to take meds to do things then you're right it's too soon.
so I will make sure I keep a heads up
I do have my doc in touch if needed & will keep in touch on this thread as I go along.

Sharon, I take Lyrica & alot of it. I've gradually had to have it increased since last Sept. I had been taking Neurontin pre-op. In Jan. I tried to switch back to Neurontin and it was a drastic difference. I'm like you now I'm used to it & really don't have the "loopy"weird feeling side effects anymore

Lilly & all of you guys it really helps to hear folks who can relate. I can hardly describe it to people who try but just cannot relate...

So again thank you all and hopefully I can figure out how to find some balance it's just so difficult & not from a dependant standpoint but from a pain standpoint.

PRIESTESS
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Last seen: 4 years 6 months ago
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Joined: 06/17/2008 - 11:42am
Oh

thank you very much....you are too kind. I am glad that you are keeping in touch with the doc through this time....please do keep posting to let us know how you are doing. If I can ever be of any help then please shoot me a PM and I will always be more than willing to do what I can for you. Take care hon....Miki

pettynme (not verified)
Title: Member
thanks

I appreciate the support. I have decreased my pain meds again. I spoke to my work today & I think if I can start a lower dose of Lyrica I can stay with that med, thank goodness. The pain is still about unbearable at times & I'm pretty "testy" which will pass.
So basically still miserable but still trying to fight it!
we'll see and I'll check in along the way.
Have a good night!

John
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Joined: 06/20/2008 - 4:07am
Keep trying, you will do it.

Although the notion of no medication is an understandable objective the reality is far different, and as you say finding that level of pacing without the increase of pain an eternal goal for every one here, the balance is in finding what works for you, through trial and error, this may well be doing less things on the basis that work for you is important, many have tried and failed to endure with no medication.

I have taken increasing volumes and types of medication for many years and adapted in how I perform as a consequence, as you say none of this is easy adapting to the simplest of tasks when enduring the myriad of side effects and attempting to act normally, many here are doing just that and doing a very good job. Misery can lead to depression and we all want to stay well clear of that if possible, I take medication to combat medication now and those objectives I had when I started are long gone, I am working and gleaning the benefit as a consequence, my functionality is limited and my finite capacity shared to all those with reasonable expectation.

At present I am surviving and exceeding my capacity at the behest of working, this is the choice I make the alternative is not to push as hard and live a more limited life, that daily balance is problematic and so day I do get it wrong and have no ability to stand at all. I like the way through trial and error your medication is being attuned to your needs and changing medication and sticking to it is always fraught and you should acknowledge the effort and success you have made. Pain is indiscriminate it cares not that you are trying harder and sometimes increases just because it can and this is hard to take.

All my years of experience and every changing strategies have never reduced my pain only my own ability to cope with it all, perhaps this is the best we can hope for and not the expectation I had all those years ago when it started. I have learned more about myself than I knew existed and it has developed that drive as a consequence. Every day is new even to myself, and we should all be proud of our achievement in adverse situations, we all share that success and we know how hard it can be and the effort required.

Be kind to yourself. John

mcafgr
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Joined: 08/04/2008 - 7:30am
I take Morphine Sulfate,

I take Morphine Sulfate, Hydrocodone, Soma, and at night , amytriptilyne. I tried to get off the opiates, but the pain was just too severe, to a point where I could not sleep at all!!! So back to the amber bottles I went!

Spoke to my doc about it and he said that pain is there for a reason, and the reason he prescribed them in the first place was so that I may function, at least a part of the time anyway.

He also told me that his job is to get rid of 50% of the pain, if he has done that, then he did his job.

Good luck though with the process, its a tough one I know!

pettynme (not verified)
Title: Member
well

I had my daughters b-day party with the in laws so sat and sun in preparation I took & needed my total doses of meds.

today back down to 30% and doing NOTHING but still with pain I'd like to rip that pi$$er out of my leg.

John thx for the great encouragement I know I can "not" take this stuff but I need to at times to get through major things (which now adays is going to WalMart, cleaning a little or for a quick lunch)the fine line is for balance. & yes you are right everyday is different with or without pain meds for me. I talked to my clueless brother tonight although he means well his comment was "well it's good to see what your pain really is" ok I know what the leg pain is it's just how horrible can I stand it?

It's daunting how bad it could be without even the Lyrica which he doesn't understand it's not like a broken bone pain.

mcafgr
thanks for sharing your experience. It's not that I have anything against pain meds & I don't know if you work(I haven't in a year) but I cannot take any regular scheduled opiates to work my job. I can't sit or reach, bend, or lift with or without them either because either way that activity aggrevates the nerve pain and my back but I'm trying to muddle through that too. Good heavens I can say the meds were definitely helping my back ALOT!!

So if I didn't have to work I don't think I'd be so eager & would probably go back to the amber bottles ;)but I feel like I need to make all efforts I can so I don't feel like I'm ruining my family.
I'm glad you have found something that works for you. God willing I will too!!

Thank you all I'll keep posting it helps alot to just talk about it!!

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