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Quadruple laminectomy to remove 5.2 cm tumor

Looking for others that have had a quadruple laminectomy in their T-Spine .  I’m one year post op and on round 4 of physical therapy.  Suffering from chronic pain in t-spine, rib cage, left arm, left arm weakness.  Difficulty/ horrible pain with sitting or standing for any length of time.  Had left sided weakness prior to surgery due to the tumor.   Just thought I’d have more quality of life than I have now. 

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Comments

  • memerainboltmemerainbolt IndianaPosts: 6,357

    hi bankinbabe
    welcome to spine-health

    what does your doctor say when you tell him how you are doing? 4 rounds of physical therapy is no less exhausting and has to be frustrating.
    is your doctor ordering the pt? i might be time to make a lot of notes and go talk to him.

    please click on the welcome link below and tutorial for more information to get you started.
    welcome to spine health


    in the meantime, go to the top right of the page to the search box and key in thoracic tumor, scroll down to spine-health, and there you will find other discussions on this topic. 
    Sandra
    Veritas-Health Forum Moderator
    ---------------------------------------------------------------
    Please read my  Medical History
  • All 4 rounds of PT were ordered by my surgeon.   I have lengthy discussions with him about every other month.  He feels there is clearly some residual nerve damage from the tumor that causes my left trapezoidal muscle to be triggered which in turn puts pressure on my brachial nerve branch.  This causes the pain/cold water feeling from my neck to my left thumb.  

    We have also discussed that the muscles, tendons, ligaments in my t-spine no longer completely tie in my rib cage to my spine to give it stability.  Thus my rib cage is continuously strained trying to compensate.  

    I also asked about other patients that had a similar t-spine procedure and what their post op status was .  My surgeon is a fairly renowned neurosurgeon in Nashville and practices in a large neurosurgery network .  His response was that my procedure in the thoracic spine is so uncommon that no one in their network has performed one.  That I am the one and only so they have no other reference points.  

    I’m having an emg done in a few weeks as well as more MRI’s to see if there are any further changes, for instance in the curvature of my spine due to lack of stability.  I just thought I might find someone on here that had had a quadruple laminectomy in their t-spine that might have some suggestions or incite.  

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  • Update.... had follow up MRI 3/10/18 .  Noticed some slight kyphosis in the region of the laminectomy.  Was referred to a spinal reconstruction specialist for X-rays and measurements to get a ‘baseline.’  The kyphosis is much much worse when I’m standing ( I was laying down for the MRI).  My spine folds over at the site of the quadruple laminectomy.  Rather than getting a baseline I was told that I needed surgery immediately (as soon as he has an opening) or fixing the issue would be ‘complicated .’ The non-complicated surgery which will take place 5/14/18 is pins/rods T2–T10 and a 3 column osteotomy at T7 .  No doing anything for 4-6 months post op.  At least I’m not going batty, I really was better 6 months ago and there is something very wrong that is causing my pain.  Hind sight is 20/20 had we have consulted with the reconstruction specialist prior to removing the tumor he would have advised us to pin and rod due to the location of the multiple laminectomies .... thus I post again just in case someone with a similar situation reads this.  Might save months of frustration :) 

  • I am curious to hear how your results are from latest operation?  I have 5 disc laminectomy (T5-T9) and have been living with up an down pain for 8 years.  No one quite knows what to do with me...and I have some of best docs in Boston.  Non malignant tumor removal, 3 surgeries, left side torso fully numb...fun stuff.  I have asked many times about stabilization and most say because "Thoracic" area its stabilized by the rib cage...as I sit typing things again on pain meds I am not believing thats the case.

  • I would love to connect with either/both of you!

    My first surgery was in 2007, when spinous processes T5-T9 were removed to access spinal cord for micro dissection of scar tissue. Revision surgery in 2009 increased range to T4-T10. I did relatively well for years, but then had a quick decline (wheelchair dependency and loss of bowel/bladder control are major indicators before each surgery).... Last September we joked that the 3rd time would be the charm, and after they resected my pet arachnoid cyst I am now missing T3-T11. Even my surgeon's PT had never seen someone standing upright without hardware or fusion - but I rocked it for months! Built up to 5 mile walks, and was delighted!!

    But about a month ago spasming got worse again and it's hard to fill my lungs (breathing out is fine - inhaling is a chore!)....

    Please let me know if you have any tips or tricks!

    Bankinbabe, I'm very interested in your EMG results and any further procedures. Thank you!

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