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Hello there! My name is Patricia, I'm 25 years old and I'm from Brazil.
I was diagnosed last year with an Arachnoid Cyst that starts from D12 to L3, and a degenerative condition of my discs from L1 to L4. The cyst is 9cm long, 4cm wide and 1,7cm thick (L X T X AP)
I have little help from my family and live with my boyfriend, I work from home and I'm an illustrator. Most doctors have never seen my condition before, at least not one that big in that specific place. I suffer daily with pain whenever I'm standing up or laying down, my legs are always tingling and my right leg is always very swollen and pale. I have severe headaches and my arms often just hurt, they feel painful too. I didn't do a CT scan of the thoracic region so I don't know if I have a cyst there too, I should get it checked within this month though.
I have felt back pain since I was a child, but my parents never really paid attention to it until I was struggling to do basic things, like standing up or taking a bus. I can walk normally but it hurts my back, sitting down feels alright though. My cyst is not trauma related, I didn't suffer any spinal accident.
I'm here asking if anyone can point me out to a place in this forum where I can find people in the same condition as me, or if you know someone personally that is in the same situation as I am.
Thanks in advance and forgive me if my writing is confusing, it's 6am and I couldn't sleep because I'm very scared about my future.