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Pain Pump surgery coming up

Hi I was reading pain pump notes I have been in pain for a very long time 6 car accidents. not my fault ok!  any way i have Lupus dx 7 years ago. Osteoarthritis though out my body. have a replaced knee 2 years ago. Fibromyalgia, neuralgia and a lot of other crazy stuff. i worked hard all my life until 5 years ago i was no longer able to walk because of pain and Lupus . I was on meds at work and learn to bear the pain until my Lupus caught up with me and sent me to bed for 6 months. I have a long story I wont yet get into, but  I have helped a lot of people with my past pain and 23 surgeries. (but I need help now, )  please I am scheduled  to get the pain pump .

 I am scared and have put it off before. I don't know anyone with lupus that has the pain pump . I am afraid it will cause an infection or my Lupus will react and send me back to bed again. does anyone have one who has moderate to severe Lupus symptoms? I am taking a lot of meds right now, . but i a not getting relief, to long on meds. I don't feel them in my head no cloudy stuff but i do forget a lot of stuff. That I hate . so will I feel the meds with pain pump I don't want it if I do. I saw on here some people do,  

The meds are affecting my organs so i do have to change something. i have been on medicine since my first Car accident in 1985. Drunk driver hit me bad. but i came back and worked hard and did sports even, I tried the stimulator for 4 years it  kept on breaking, had it taken  out, I actually felt better having out of my body.  I am at a point now if i go watch my grandsons game i have to lay down for two days because the pain is so bad just from that. I want some life back maybe go back to school finish my masters. can i do that with the pump. can I hold my grandchild and not feel like Im going to drop him,   So any advice from any one with this issue? I will be waiting. Thanks for letting me join u.



  • memerainboltmemerainbolt IndianaPosts: 6,479

    hello vikingmom
    welcome to spine-health

    i am so sorry you are going through this. i's a tough decision, one that took me a year, a lot of research and finally finding my answers here on spine-health, not to mention all of the support i got and still get. i have a medtronics morphine 40 ml pump. my catheter was placed at t1 as the surgeon wanted to try and cover as much of my spine as possible. the meds stay in the interthecal canal, they do not go to your liver or kidneys so there is no "drug feeling". you never feel any different because the meds are continuous, 24/7.
    i do not have lupus but please read my medical history. i also have a thread "day 1 of the pain pump journey". it's a journal from start to now. anything else you would like to know i will be happy to answer, just ask.
    i know the pump has changed my life, from being basically bedridden to now being able to get out.

    please click on the welcome link below as well as the tutorial to help you get started on the forum.
    welcome to spine health

    take care and hope to hear from you soon.
    Veritas-Health Forum Moderator
    Please read my  Medical History
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