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Hello...I'm new to the site today. My background includes a hip placement in March 2012, which was totally successful. A few months later and still having unidentidied pain , my doctor ordered a ct that found a Pars defect at S1, L5, L4. The neurosurgeon I went to said "we fix". So October 2012, he fixed me from S1 to L3. Shortly after surgery I noticed something wasn't right. The surgeon said it's normal...it will take about a year t o heal. Every time I went back to him he said t he same thing. Frustrated I lived with the pain. Jump to October 2017. When I could no longer bear the pain, I went to a new neurosurgeon. X-rays showed two broken screws and the cap of one back out and was floating. The rods were positioned too far forward causing me the most pain and caused the hardware to fail. The new surgeon was confident that he could remove and replace the old hardware and correctly position the rods to the natural curve. November 17, 2017, a simple surgery turned into "extreme" but I made it through the 10 hour surgery and a nicked Dura causing a CSF leak. 72 staples....from S1 to T12 - a shiny new peek cage bolted to my pelvic bones, 19 new screws, 2 old ones remain in bone. But instead of being kept flat of my back to let the patched leak heal, hospital doctors had me up walking down the hall less than 24 hours after surgery. When I got back to my room my BP bottomed out sending me to cardiac ICU for 3 days. Note cardiac care nurses don't know how to care for extreme back surgery patients. After 9 days I'm released. I go home on no blood thinners and supposed to start physical therapy within 24 hrs. Two and a half weeks later, no PT. Dec 14, I'm in the hospital with a PE blood clot in my lung. 5 days later I'm home again and with blood thinner meds. Two weeks later tthe CSF leak is full blown - positional headache, nausea and vomiting. The surgeon pretends my symptoms might not be from the leak. Two other doctors tell me - it's a fluid leak. Frustrated with the surgeon, I read everything I could about CSF leaks and treated myself. Three weeks later the symptoms go away. The home health care company was a joke - no PT from them so I do it myself. 4 months since the surgery, I still have issues with numbness and pain and using a cane. I returned to work 1 month ago. A desk job and sitting is painful. For the last week or so, I've had terrible pain with my tailbone! I searched Google to see if other people have similar tailbone issues and I'm not alone. After thinking it might get better on its own I've decided to call the surgeon next week. But I'm terrified at the thought of another surgery.