It looks like you're new here. If you want to get involved, click one of these buttons!
I am new to this forum and joined because I saw this thread.
My wife is 32 years old and has a failed pancreas transplant (not rejected), severe gastroparesis(paralyzed stomach), Type 1D plus many other issues as you can imagine.
She had her trial last month and it went ok. She passed it at least. We have a consult next week with the provider who will be the one to refill it and may put it in as well. Not sure as we have been passed around a lot it seems.
We have many concerns, but she just has to get off the oral pills because it takes too much and she has malabsorption from her stomach disease and pancreatitis, so they don't work well at all. Her Dr.'s are pushing for this pump which sounds great if it works well. Honestly, I hadn't heard many positive stories until seeing this thread.
Our main concern is infection. It is necessary for her to take immunosuppression medicine to protect her transplant. Even though it failed, it is still inside of her and her white blood cells will attack it if not on the anti-rejection medicine. Meaning she is always at high risk for infection.
Has anyone heard of or had any issues due to infections?
She had a chest port which had to be removed when she somehow had a staph infection in her blood. If she had another blood infection would it infect the pain pump as well? My understanding is that blood is like driving locally and the spine is like a superhighway when it comes to infection, yet the Dr.'s aren't concerned. Which to me, is concerning.
Would appreciate any insight or information possible.
Thank you all so much for the community you have formed!