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27 year old mom with Cervical, Thoracic, and Lumbar Stenosis.

Hey! I'm a 27 year old mom of 2 with Cervical, Thoracic, and Lumbar stenosis. I finally was diagnosed last year (2017) after years of doctors not willing to find out why my symptoms were happening. I started looking for doctors in 2011.

My symptoms started in 2007 (17 years old) when I couldn't put my feet where I wanted them and started getting clumsy. In 2009  I started having lower back pain but lost about 70 lbs and that pain went away. In 2011 I started getting dizzy on and off and would have trouble walking, as in them not turning to jelly when trying to step down or stumbling all over the place like I was drunk  The dizziness didn't help.

Well I got pregnant in 2013 and moved to a place with only one doctor for the whole town for my government insurance (I was only disability insurance at this point after being let go from my job because I was a liability and quitting school because of the walking, carrying things, and focus required - I figured I'd get better or take classes online later). My dizziness went away and my gait improved because of my consistent walking  

After the birth, my back and neck pain started. In 2015, I have no idea what happened but stabbing and nonstop coldness pierced between my shoulder blades and my neck burned in pain as I struggled to keep my head up. You could feel the coldness to the touch and all of a sudden, any sort of coldness was painful and unbearable. I was still mobile at this point. 

In late 2016 I got pregnant again and my symptoms spiraled out of control. I was clumsy and could barely walk, I was chronically exhausted and in immense pain second only to giving birth, and vomiting the entire time. I slept most of those 9 months away. 

We moved to a new city that had much more medical care than the small town we were in. That's when doctors actually thought about my spine, took x-rays and mri's, then finally diagnosed me. I thought I would feel relief when I got the diagnosis. I thought there's be a cure or easy treatment. My two epidural injections have failed. I'm currently in water therapy because physical therapy hurt my thoracic and cervical too much. I'm allowed Norco 5-325mg, Baclofen, and Gabapentin, but doctors are weary about giving pain medication because I'm so young and stenosis is progressive. At least I'll be getting a nerve test later this year.

I am heartbroken because the life I wanted to have, the career I wanted, all the super physical things I wanted to do are severely limited now. I have trouble just playing with my kids  let alone cleaning or doing extensive work. Even things I liked to do for fun is so restricted, I am always depressed and sometimes bitter because of all the things I can't do. I can't find any emotional support in real life for these chronic pain and mobility issues. I feel so alone, especially being so young and not having much information about my diagnoses. I'm hopeful that I'll have an at-home career one day, but right now all I can do is focus on reducing my symptoms and getting through my kids being super young (2 and 4) lol. Oh, and practicing radical acceptance that this my 

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Comments

  • Welcome to the board. I read your post in the closed thread. I’m glad you started a new post.

    I would keep pushing forward and seeing all the relevant specialists you can for your particular issues.

    Don’t give up. It can take a very long time to get a proper diagnosis and even then you may see three specialists and have each one differ on what your plan of action should be.

    Hopefully more members will be by shortly to chime in.  

    Again, welcome to the forum!

  • Thank you so much  :) yeah, I got tired of being alone in this and just needed to finally reach out for emotional support. 

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  • memerainboltmemerainbolt IndianaPosts: 6,372

    hello moonbunny
    welcome to spine-health

    it always saddens me to see someone young to have to go through this. especially with 2 small children. being a mom is the most important job in the world and i know when you are in this much pain it's not fun. 
    i agree with l4-l5, don't give up with one diagnosis. my case is different but i have spinal stenosis in all three areas too. i have lived with it for years. you can get a lot of support and understanding here, also articles and videos if you would like. below is a link that maybe others around you would understand your pain. 
    we have had so many discussions on this forum on "what we've given up". we've all had to and it'snot easy. if you need to talk, then talk, we'll listen.

    please click on the welcome link below and tutorial for more information on getting you started on the forum.
    welcome to spine health


    take care and let me know if you would like some of the articles to read on stenosis.

    Sandra
    Veritas-Health Forum Moderator
    ---------------------------------------------------------------
    Please read my  Medical History
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