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Hey! I'm a 27 year old mom of 2 with Cervical, Thoracic, and Lumbar stenosis. I finally was diagnosed last year (2017) after years of doctors not willing to find out why my symptoms were happening. I started looking for doctors in 2011.
My symptoms started in 2007 (17 years old) when I couldn't put my feet where I wanted them and started getting clumsy. In 2009 I started having lower back pain but lost about 70 lbs and that pain went away. In 2011 I started getting dizzy on and off and would have trouble walking, as in them not turning to jelly when trying to step down or stumbling all over the place like I was drunk The dizziness didn't help.
Well I got pregnant in 2013 and moved to a place with only one doctor for the whole town for my government insurance (I was only disability insurance at this point after being let go from my job because I was a liability and quitting school because of the walking, carrying things, and focus required - I figured I'd get better or take classes online later). My dizziness went away and my gait improved because of my consistent walking
After the birth, my back and neck pain started. In 2015, I have no idea what happened but stabbing and nonstop coldness pierced between my shoulder blades and my neck burned in pain as I struggled to keep my head up. You could feel the coldness to the touch and all of a sudden, any sort of coldness was painful and unbearable. I was still mobile at this point.
In late 2016 I got pregnant again and my symptoms spiraled out of control. I was clumsy and could barely walk, I was chronically exhausted and in immense pain second only to giving birth, and vomiting the entire time. I slept most of those 9 months away.
We moved to a new city that had much more medical care than the small town we were in. That's when doctors actually thought about my spine, took x-rays and mri's, then finally diagnosed me. I thought I would feel relief when I got the diagnosis. I thought there's be a cure or easy treatment. My two epidural injections have failed. I'm currently in water therapy because physical therapy hurt my thoracic and cervical too much. I'm allowed Norco 5-325mg, Baclofen, and Gabapentin, but doctors are weary about giving pain medication because I'm so young and stenosis is progressive. At least I'll be getting a nerve test later this year.
I am heartbroken because the life I wanted to have, the career I wanted, all the super physical things I wanted to do are severely limited now. I have trouble just playing with my kids let alone cleaning or doing extensive work. Even things I liked to do for fun is so restricted, I am always depressed and sometimes bitter because of all the things I can't do. I can't find any emotional support in real life for these chronic pain and mobility issues. I feel so alone, especially being so young and not having much information about my diagnoses. I'm hopeful that I'll have an at-home career one day, but right now all I can do is focus on reducing my symptoms and getting through my kids being super young (2 and 4) lol. Oh, and practicing radical acceptance that this my