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Long time listener, first time caller

ianGiianG Posts: 1
edited 05/22/2018 - 2:54 AM in New Member Introductions

Hello Friends,

My name is Ian and this is my first post here.  I've been dealing with constant back pain for 30 years. I'm 48 with a long history of injuries, but I believe it is Tarlov cysts that are the cause of most of my current problems.

I had an artificial disc inserted at L4-L5 over 4 years ago to replace a damaged disc. I also have treated SI joint and facet joint pain with several rounds of stem cell injections. I was diagnosed with 3 Tarlov cysts 5 years ago (told they were not pain generators), and an additional 2 cysts in a recent MRI. The cysts range in size from 1.7 x 1.7 cm to 1 x 3 cm all along S1/S2. Pain emanates from my sacrum and spreads into my low back and down my left leg, and also into my hips.  Standing or sitting are incredibly difficult. Until recently I was able to push through the pain and enjoy my activities, which include very high level mountain biking and mountaineering. But now I struggle to walk around the block. Nothing helps.

So, I'm doing my due diligence. I have an appt booked with [edit] in Dallas in June for a consult. I'm waiting to hear back from UCSF and Johns Hopkins spine centers. Our options seem only to be aspiration or surgery. I'm hoping to delay surgery and try aspiration first. But so far just trying to schedule an appointment has been tough.

[edit] I'm also interested in hearing about procedures anyone may have undergone that offered some relief.

Thank you

Edited by Liz, Spine-health Moderator Removed name of medical profession. 

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