One thing I have learned in the past 6 months of searching for answers for my medical problems. You never want to here a neurologist say "Your an interesting case".
Mine started over a year ago with an injury to my lower back, pelvis and hips.
I have bulges at L3-L4 and L5-S1 with no cord compression or stenosis. I did however severely tear the acetabular larum linings in both hips. Debridement surgery on both resolved the hip and pelvis pain, but I still continue to have "heaviness" in both legs and "numbness, tingling, and coldness, with muscle fasicualtions" from my knees to my feet. After exertion or prolonged sitting, I development numbness in my pubic region and severe muscle spasms in the upper portion of my buttocks.
After seeing a multitude of local docs, (IM, Neuro, NS, Rehab, Pain MGT, ortho,) and having every test possible done, I was referred to a neurologist at Emory University. After repeating conduction and EMG studies and doing skin biopsies, here was what he said:
You have at least 2 seperate and distinct things going on. First, the conduction and EMG almost certainly suggest that you have a Myeopathy or Radiculopathy in the region between L4 and S2. The MRI's might not bear it out, but I feel certain it is there. Second, the skin biopsy (s) show rather severe small nerve fiber neuropathy which is consistent with the autonomic issues of postoral tachycardia, and intermitent bowel, bladder, and sexual dysfunction you having.
This neurologist said "well, at least now (after almost nine months) you have a dual diagnosis - Lumbar Radiculopathy and idopathic autonomic and peripheral neuropathy. At this point, I don't know where to go with this because all your imaging exams do not show a "surgical" pathology and all your blood work looking for systemic, bacterial, viral, genetic, metabolic, and immunologic causes of neuropathy and/or radiculopathy are normal. You are a very interesting case. We know what is going on. We just don't know the cause."
Any thoughts, suggestions, or ideas?