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It's been several months since I've been active on this board. I had alot of personal things going on. A cancer scare with my daughter. I've only mentioned a few times that my husband died of colon cancer first dx when he was 38. When my daughter age 36 started bleeding it was like history repeating itself. Ends up it's not cancer but she does have a congenital condition venus malformation and I am also dealing with mounting stress from worker comp .
First off..I'm not looking for sympathy..I guess it more or less a warning for all those yet affected by the opioid crisis about the destruction of many innocent people lives as well as their health.
Unless you've been affected the true volume of what they are doing cant be felt only imagine. I know from seeing post I'm not the only one..but I am about to share a little of how its affecting me personally.
I've spoken to a few on this forum about my struggles..some have been very supportive even though deep down I'm sure their thinking good god... I myself have tried to be supportive even when I really had very little strength to do so...
My nightmare started in June of 2017. I had been seeing my ex PM for 14 years. I was always compliant and I fully trusted him ( LESSON LEARNED) never put your full trust in any doctor. When push come to shove you will be the one that loses...at that appointment I was told I had to wean down due to the insurance company request as well as the CDC guidelines. So we weaned month by month..and as that happened my pain went higher and higher. Ofcourse for awhile they told me it was just a reaction to being lower . Back in April my ex PM closed down so I had to find new ones..first thing they did is lower my meds even more. I also had recently moved so had to find a new primary care doctor so basically starting over with all of them and we are all still learning to trust each other. In today's environment that wasnt good.
I'll admit I've grown timid scared to speak up ..I've been trying to let both my new PMS ( there's 2 of them) and my primary know I'm not doing well pain wise and other wise only to be repeatedly told sorry nothing we can do our hands are tied ( LIE)..I have fought months and months with my wc insurance company to be seen by my spine specialist..they kept refusing..why cause in their eyes I was just trying to get more pain meds..their exact words..do you know how hard it is to be treated like that ? And still manage to hold your head high ? So what did they do..cut my PM off..I finally got the approval to see my spine specialist..the insurance company allowed it cause they thought it would show nothing and prove I really didnt need pm... wrong..it proved I do have major issues and surgery is recommended to extend my c4-7 fusion two more levels making it c3-t1..I'm still fighting them though to reinstate my pm..how they are handling it is so outrageous and childish. They aren't acknowledging request by not returning call or emails. (Shaking my head) so right now the cost of my PM for my wc injury ( neck ) and medication are on me because it is wc so my health insurance wont pay..so the nightmare continues .this is a old wc case so yes I have a lawyer who are all but useless..its all about $$$ since it's a old case the lawyer wont make much so that spells wont do much..really I just wish a Medicare set a side would happen..they can go their happy way and I'll go mine.
Now along with that is how hard it is to get my new primary to listen which doesn't help that I now feel I need to be so careful what I say in fear again being labeled a drug seeker..
During the time all this colon issue was going on with my daughter in Nov/dec I started have extreme lack of appetite. I figured stress ofcourse was causing it. Right after xmas I notice a strange bump on the top of my shoulder. Right were your clavicle meets your shoulder joint. I knew my shoulder had been bothering but I figured it was being caused by my neck issues. So the bump was something new so I went to my primary to figure out what it maybe..right off the bat they remind me I wouldn't be given any pain meds..hello duh I know that..I was told oh it's a bone spur put ice and heat on it..so I've been calling it my unicorn horn this past month. Yesterday I had a follow up with 1 of my pms..she the one that caring for my non wc problems of si joint dysfunction. So I thought Id show her it..hoping maybe I could get a cortisone injection to help with the discomfort. She was sitting across the room when I pulled my arm/shoulder out to show her. She jumped up..came over took her hand turned sideways on the top of my shoulder and said..that little bump your feeling is only part of the tumor that's growing there..and she took my hand showing me from were her hand was going towards my neck that it was larger then I thought. Tumor ?..so now I have to see a orthopedic surgeon for a biopsy and even more fun was this pass week my legs broke out in red blotches so I showed her those...oh she says your platelet are low...wth... so now Tues I have a appointment to see my primary for bloodwork..
What I'm mainly getting at is..since this so called opioids crisis my healthcare has all but gone to crap..I cant seem to get proper health care everything always goes back to me seeking or wanting more drug which I've never done or even asked for but that doesn't matter...when I went to my primary about the shoulder thats all the pa focus on..not properly dxing my shoulder..I should get the same care when presenting myself to a doctor then anyone else..my money is the same as other that aren't chronic pain suffers.. My daughter told me something that made sense of all of this...chronic pain suffer are now considered a liability and a threat to doctors and their practices..see what our lovely government has done..doctors fear us..they dont want us around in fear of getting in trouble...