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Localized pain.

I have finally been able to pinpoint my pain after many procedures and tests.  The pain I have is in my lower lumbar on the right side which radiates into my upper buttocks.  It is extremely painful during extension of my lower back and gives an all together different pain when in flexion.  I am just posting this to see if anyone else suffers from this similarly and possibly has anything they could share that I should look into.  In the morning I can hardly move but by late morning or lunch it is slightly better but still not fun.  when evening comes on it starts to go back downhill and sleeping is always an adventure. 

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Comments

  • Richardson, what procedures and test have you had and what did they find? That info will be important for us to help.....Thanks...David

    DavidG

    Veritas-Health Forum Moderator

  • dilaurodilauro ConnecticutPosts: 13,528

    Was this diagnosis done by your doctor?

    If so, what was the action plan from them?

    You have given us some information, but we could use more   New Member Guidelines and Checklist

    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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  • I had a Microdiscectomy in November of 2017 which led to the hospital for a week due to pulmonary embolisms.  Took a while to recover from that and was a detriment to my recovery from surgery.  I have had 5 injections, 1 epidural cortisone and 4 Facet blocks. Injections had zero affect.  I am in PT currently but it isn't helping either.  I have been to many specialists over the years leading up to and after surgery. Since surgery, I haven't really been given any answers that point at the root of my pain.  The latest thought is that I have some extreme arthritis in my facet joints but I would've thought that they facet blocks would've helped if that were the case.  with the pain being a familiar companion and having been trying to diagnose something for so long now, I have been able to pin point my pain in the lower right lumber and in my upper right buttocks.  when I am in flexion, or bending forward, I get a pulling type stinging pain in the area of my surgery and down the right side of my lumbar.  when I am in extension, which is far worse, it is a deep sharp aching pain that radiates from the right side of my lumbar into the upper portion of my hip on the right side i.e. upper right buttocks area.  I have read about Sacroiliac Joint Dysfunction and, while I don't like to self diagnose on the internet, it seems to outline exactly what is causing me distress.  Thanks.  I understand there are no medical professionals here but figured I would try this to see if anyone else has similar issues and whether or not they have found relief one way or another. 

  • Hi Richardson,

    Sorry I'm a little late to see this one, but I do have some experience from my neck issue that may be pertinent.  I had a very degenerative C5-6 disc that caused some of the typical DDD pain and facet pain.  Degenerative disc and facet pain seem to go together frequently, and they definitely did for me.  

    Unfortunately my experience was that it can be difficult to give the doctor good feedback on the facet block under those conditions, because if you have muscle spasms etc from the degenerative disc, it can be hard to tell you had improvement from the first few hours of the facet block where the lidocaine is really working.  

    When I had my failed ADR, the pain was 100% facet generated... and even after revision I have arthritis / facet pain further up in the neck.  For me, it's much worse in the morning, best late afternoon, and extension hurts much more than flexion... so for what it's worth, at least in my case some of those symptoms at least seem to rhyme with yours.  Particularly the pain being worst in the morning is a very typical hallmark of arthritic pain... 

    If your PM doctor is willing, maybe the RFA would be worth a try to see how much it does.  You never know, even if you get 50% pain relief, that may make a huge difference for you.  

    All the best,

    Kevin

  • boo9989bboo9989 Posts: 493
    edited 05/11/2019 - 4:51 AM

    @Richardson

       Not that I'm a doctor or expert but has anyone looked into possible si joint dysfunction.  Only reason I'm asking is how your describe your pain. Si joint pain is often just to the right or left of the spine at the very top of the butt..its one of the test they use..they have you point to exactly were the pain is....many get this certain spot they can point too right away..its right were the spine meets the lilac crest of the hip close to the spine.

    P.s. I would read up on it on this site see if any of it matches what going on.

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  • RichardsonRRichardson Posts: 31
    edited 05/13/2019 - 8:38 AM

    @broncofan I appreciate your feedback on your experience and yes, it does seem that a few of your symptoms rhyme with mine.  I would love to go ahead with the RFA just to see if I get any relief, unfortunately, the insurance company won't pay for the RFA if I didn't respond with at least an 80% pain relief from Facet Block injections.  So unfortunately I won't be able to see if that helps.

    @boo9989 I have mentioned the possibility of a problem in my SI joint as I have been doing exhaustive research to try to find out what is going on.  When I mentioned it the doctor that I was speaking to at the time just kind of shrugged it off without a second thought almost as if to say, "who are you to try to tell me what it might be".  Needless to say I don't see that doctor anymore but I will bring it up again at my next appointment with my new, current doctor.  Thanks.  I thought the same thing...the pain that I deal with sure does have the tell tale signs of an SI joint problem.  Unfortunately now I am dealing with a right hip problem and it is very difficult to discern the pain differences between what I feel in my hip and what I feel in my lower back.  Trying to tackle one thing at a time and I can only hope that somehow they are both linked and we can get to a solution at some point soon.  Thanks for the feedback, have a good day.

  • dilaurodilauro ConnecticutPosts: 13,528

    @Richardson

    It can be very difficult to finally isolate what the root cause of the problem is.   Take a look at these set of articles,

    All about Diagnostic testing

    Back in 2012, I was having right hip/lower back problems.  I had lumbar mri which identified mild lumbar stenosis at L2/L3, and some irritation at L4/L5.  Also had hip x-rays which showed pretty much bone on bone in the joint.   So, I was back and forth between the spinal doctor and the orthopedic doctor to isolate where the major problem was.

    They used ESI and Steroids as diagnostic tools.  I had an ESI in L2/L3 to see if I would get any relief.  If I got some, then they might point to L2/L3 as the problem, if I didnt get any relief, the next step was steroid injections into my hip.  Again, depending on the results would help isolate the problem.   The steroid did in fact help with  my hip pain, so both doctors concurred that the major problem that needed to be addressed was in my right hip.  Shortly after I had a complete right help replacement surgery.   Since I have already had a complete left hip replacement, I knew what to expect.   Everything went fine and my hips are good as of today.

    I've also dealt with SI Joint problems for several years.  It was always hard to distinguish between that pain in lower back/hip pain.  Many times it manifested itself like sciatica does, but the pain stayed in the hip and did not travel down the leg.    A SI Joint 
    injection cleared that up almost immediately.   Several years later I had the same SI joint problem in the same hip (left).  Again a SI Joint injection cleared that up.   But to compound things, I had meniscus surgery on my right knee, which wasnt showed it wasnt a bad tear, but I have bone on bone there and will be going in for a complete right knee replacement.    What was happening, because of my gait being off from my hip, that was throwing my SI joint off and kept inflaming that.    My doctor said as long as my gait was off, I could expect more SI Joint problems.

    The point is that many times it is so difficult to isolate the root cause of the problem.  It takes a team of doctors all working together with you to diagnose the problem.  It may take time, but having doctors who wont give up will prove things in the end.

    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
  • @dilauro Thanks for the story, I appreciate your being transparent with your personal experiences.

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