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My Sciatica rollercoaster so far.

2

Comments

  • nutcase007nnutcase007 United StatesPosts: 947

    crzgaby - I think I kind-of understand your frustration.  My issues involve the other end of the spine, a shattered cervical spine.  Three neck surgeries and now since November, pain at the base of my neck that high doses of opioids will not even touch.  I've been told by my trusted neurosurgeon that he can not find anything that he can help me with any interventional procedure.  I've had to move on like you and I have had to schedule for another opinion with a neurosurgeon that specializes in spinal reconstruction.  So much for me.

    I applaud your diligent efforts that you have documented.  I quote a borrowed comment, "Do your due diligence,
    trust you know your body and question everything if it does not fit. Advocate
    for yourself and you will be surprised what will be revealed trusting your body
    and instinct
    ".

    I think you have already been listening to your body.  If it means anything to you, I think I'm on a similar journey like you.  I hope you find a solution.

  • Hi nutcase007 . Believe me, it means a lot to me! Sometimes we feel we are alone in our pain, but i find out that there is so many people in similar or worse conditions, in my country and other countries. And now i´m able to understand people who suffer with pain and disabilities. 

    And yes, i´m doing everything i can to find answers and a solution (medication, vitamins, move more, rest, acupuncture....the list goes on) , talking to people in similar condition, even reading medical papers...Because my other option is give up.

    I really hope you find a solution to! Take care!

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  • I’d ask the neurosurgeon how is your problem only a small disc bulge if your diagnosis is radicular in nature.

    I have radiculopathy too due to a herniated disc. I’ve never heard of someone having a radiculopathy diagnosis without at least a broad-based disc bulge with an annular tear or a herniated disc.

    It seems like maybe they’re trying to minimize your condition due to the fact not much time has passed since the onset of your symptoms. 

  • #Uptade#

    Hey guys! A few updates. 

    So, last week I went to the orthopedist. He is a spine surgeon. He was so nice to me, we talked for a long time, he saw the exams in detail and I was able to ask as many questions as I wanted. He seems the kind of doctor who really cares about the patient (very rare nowadays)

    Anyway, he saw the small protrusion in my l5s1 area and said it's not a surgical thing, but if I'm in pain I could try a nerve block. He was  very honest about the healing time and said it might take a while. We discussed medications and he prescribed "Duloxetine" to take along with the pregabalin. I didn't start it yet because I had read some really horrible experiences from people who took it. I talked  to a neurologist and he said that was ok take it but I'm not very confident in take something that causes dependence and withdrawal symptoms. Since I'm going to a neurosurgeon next month and book another appointment with an orthopedist in our hometown I will wait a little bit and ask their opinion. 

    In this past week the lower back pain was pretty controlled. I still can't do much physically but I had a few good days. The sciatica is still around but the burning is not as bad and the pins-and-needles sensation diminish a little. I still feel a lot of tingling and my feet get sensitive sometimes. 

    The orthopedist said it will be good if I walk more or swim. But not with pain. So this week I start to do some really gentle stretching and add a few more minutes to my small walks during the day. Sleep in the floor helps a lot too. And I'm following Dr Stuart Macgill advices, it's helping too. But I'm far from being well.

    And another sad thing is that I developed something called "Erythema ab igne", or heating pad burns. The appearance is not pretty and I'm using a burn balm now. I had to stop use my heating pads though. I was so used to them, even sleep using it. Now I see how dangerous it could be. 

  • #Uptade#

    Hi!

    So, this week started well, very well to be honest. The lower back pain was getting better (or i thought it was), i even did a few things around the house, i walked more and sciatica pain diminished too. I had some occasional pain in my right heel, but i could handle it well.

    But unfortunately everything changed yesterday. Me and husband went to shopping mall to buy a few things, i was feeling good and really want to get out of the house. But after 30 minutes walking the pain started, first just a nagging pain, not so strong. I pushed through it and decided do not sit or rest (why i was so stupid i dont know). After one more hour i was almost crying in the middle of the mall because the pain was unbearable, my heel was so sensitive and it felt like it was being stabbed with a hot knife! We decided go home and then something happened, i saw all that people walking and smiling and being happy, it was in the middle of afternoon, the sun was shinning....and there i was, in pain and unbelievably frustrated. I broke! Had nervous breakdown! My husband did not know what to do....I know that i must not push through the pain, but sometimes i get impatient and want to do everything like before....And now i´m back to ground zero.

    It´s being difficult to accept this. I´m really trying to be positive but i admit it is NOT easy, i like to walk, to travel, to do things and now i can do so little and i´m losing so much!!! It´s not easy dont be depressed. We decided that after we came back from our vacations I might book an appointment with a psychologist, husband is getting stressed as well so it might be good talk to a professional.

    Talking about vacations, we are going to our hometown this Friday and honestly i have no idea how i will endure the 2:30 hour flight. i´m trying not get to anxious about it. 

    We are also going to a hotel that has aqua therapy and thermal water therapy, we read that it helps. So we will see. 

    Good night.



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  • The user and all related content has been deleted.
  • Thanks your posts have been very helpful with my sciatica journey. 

  • The user and all related content has been deleted.
  • Hi I am new to this Forum but not new to pain.  In June 2015 I had a car accident, I was back seat passenger and a car crashed into us whilst we were stationary.  I felt pain immediately and ended up in the ER was given diazapam and cocodomal for the pain.  The pain just got worse and worse.  Over the 4 years I have seen a orthopedic consultant,I had about 3 MRI's, specialist PET scan and other tests, the answer is always the same, "there is no surgical option" (agreed by several orthopedic and neruosurgeons)!  They keep telling me this is good news that I don't need surgery but it is not good news to me when I am in agony every single day and dependant on Morphine (120mg per day).  I have had physio and hydro and like many others in here it did nothing.  My life is totally on hold as pain restricts my  ability to do normal daily activities.  My friends who are amazing constantly ask what is the point of being on morphine if you still can't do things, but without Morphine the pain is completely out of control.  I feel thoroughly miserable as I have had to stop working, with huge financial implications but more importantly I used to have a fantastic social life and that has reduced to barely going out at all.    

    My Pain is lower back, buttocks and leg pain and it feels like someone is squeezing and crushing my left leg all day every day!  It has got to the point that I want to ask my Doctor to amputate my leg as the pain is just unbareable  even with Morphine.  I have spasms every so often that make the pain even worse and just lately my Doctor has refused to give me Diazapam which really helps.  I only used to have 6 tablets  2 a day for 3 days and probably 4 times a year, but when I requested them the other week when I had a really bad spasm they were refused!  I think it is due to the focus on Opiates that is in the press.  I would love these people who make the decisions to reduce Opiates to live with my level of pain and tell me it is ok not to give me something that helps.  I am also refused anti sickness as apparently they have a sedative effect but the Morphine makes me feel sick, sometimes, particularly if I have to increase the dose.  I am with the Pain Management team who have given me a pain education half day and little else at the moment.  I am willing to try anything and I keep saying I will go back on all the nerve drugs to see if they help (they didn't the first time round) but nothing is done and I wait 6 months between appoints.  I am in the UK so I am lucky to have the NHS but I did spend £10k of my own money trying to get back to work after the accident.

    I have had a couple of successful radiofrequency treatments (privately) and they did help but now I am struggling to get this done on the NHS.

    I would really appreciate anyones view on the medication side of thing particularly diazapam (muscle relaxants) and Morphine and any advice on other tests that I may be able to request.  My MRi showed narrowing of the gap between disc and nerve, slight bulges to 2 discs, but they said there was no operation as it was not bad enough.

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