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19 weeks, is this par for the course?

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:23 AM in Back Surgery and Neck Surgery
19 wks. L$-S1 fused....I walk 2 miles in the a.m. and 1 in the p.m -have been doing this for a couple months. I have been weaning the brace off over the last 6 weeks....it's been troublesome getting the muscles to settle down without the brace but I only wear the brace when sitting now.

1)has anyone taken months to wean off their brace

2) Does anyone experience burning under the sacrum and
tightness & burning in the low back

3)Have you ever experienced a 'flare up' with nothing you can think of triggering it?

I'd love to hear if anyone else has any of these issues??
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1

Comments

  • Hi carol, I am 20 weeks L3-S1 but I didn't have a brace.
    Like you I walk about the same sometimes more

    Yes, I have had the burning, tightness etc in the lower back as well as other things and you know sometimes I can work out what has caused it and other times it just seems to be out of the blue.
    PMT is a bad time for me, and our hormones often do make a difference so maybe this the case with you.
    Either way you are doing well if you are keeping walking, remember that this is not like having our tonsils out, it is a big surgery.

    Keep smiling and know that all is good

    Blessings Sara O:)
  • Thanks Sara, I was hoping I'd hear from you. Makes me feel good many of my symptoms are common to yours....must just be part of the game. BTW, I always love your attitude. You have such a great perspective; it flows to all the rest of us~thanks!!!
    Hey Sara, when you sit; are you able to sit all the way back. Like in a kitchen chair, are you able to sit with your back against the chair with no problem?
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  • I am about a month behind you guys, June 10th but I can relate to some of your issues. I weaned off my brace at 8 weeks. Dr.told me when I could stop using it I could drive, it was gone in a week and a half. When I sit very long I get spasms, but they are not painful, just annoying. I always have that tightness that goes with the stiffness in lower back, I keep believing it will go away with time(but I guess more that 4 weeks)and sometimes burning when overdoing. Like Sara said sometimes I can pinpoint what causes a bad day sometimes I can't. I agree with you Carol, Sara you do have a great attitude and are very encouraging, being a few weeks behind you, I have followed a lot of your posts. Oh and the chairs, I still have pillows in all of mine. Happy Healing!
  • Hi Carol and Seeking help,
    Thanks you both for your kind words, I do feel that this is a place to help each other and a positive attitude goes a long way!
    Having said that it is also a place for people to come and let it all out :))( when we have worries or concerns it really helps to share it and our friends/families do not always understand.
    I know if I share any concerns with my mum she turns it into a molehill and practically has me on the op table! ~X(

    Carol I find sitting back is Ok but I do often feel like something is digging or pressing into me if I do. The OT gave me a frame with soft wiring that I use if I sit in the sofa chair but my dining or computer chair I do tend to sit forwards a bit.
    Big hugs to you both!
    Sara O:)

  • Thats the one thing I'm finding even after last years old site. People that have had to have braces on loose alot of their core strength. So its going to be awhile before that is back to "norm" again.
    Once ya all start PT if you already havn't that should help.
    And yes PILLOWS PILLOW PILLOWS.
    Right now I only have to sit on one. But believe me last years surgery I had to use several to sit in a chair. I carried my pillow everywhere I went.

    Just keep hanging in there. If its pain that is annoying you to much and becomes bothersome. Please call your dr and let them know. If your on a muscle relaxer that might have to be changed etc. Personal opinion. Some meds stop working after awhile we are on them, and we need a change.
    Heat/ice whatever makes your muscles feel better.
    You will find the more walking you do it will eventually turn out good in the long run.
    Plus PT will have exercises to strengthen those core muscles that have been locked up in that brace for so long..

    HANG IN THERE YOU CAN ALL DO THIS!!!
    Terri :D >:D< :*
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  • Ahhhh, so the chairs are a nemesis. I thought weaning the brace from sitting would be a breeze but the walking would be harder.....just the opposite. So tell me more, you sit on pillows and put pillows behind your back. I have a little lumbar pillow but I tend to sit forward a bit now that I'm fused. I'm thinking I need a bigger pillow? Tell me how y'all sit in a kitchen chair and I'll devise my plan. ;) And Sara, you are soooo right. Info. here is so much more reassuring than mom afraid I'm going to get addicted to pain pills, hubby saying tomorrow will be better and sis-in-law saying just be patient. You guys are doing it right along with me and we can compare issues then help each other through them. Big Hugs to my Spiney Friends-don't know what I'd do without them!; they are a true blessing!!

  • Hi Carol & all!

    Yes, sitting is a biggie..can't do it for very long, yet, or maybe never..

    Pillows of all kinds, including many TempurPedic chair pads (respond to body heat & mold themselves to your bottom, etc)

    I've also found that putting a pillow in my lumbar area is too painful, so I move it up a little, to my mid/upper back, as it helps then to keep the lumbar area straight but puts no pressure on my fusion area or the wound site.

    But yes, it's a challenge to sit comfy! I'm always wiggling around & then just get up & move when I can't bear it any longer.

    and yes, what a wonderful supportive group to talk to! I truly believe that unless someone has personally gone thru this, they just CAN'T "get it"---and to come here where others truly get it, well....makes me wanna sit & write some more, but can't....but you're all in my thoughts for sure!

    May we all find a comfy position for some of those great new tv shows this week!

    Diversion! :)

    ~Lakeside
  • Alright, so now I know that I need more to rest my back on while I'm weaning the brace while sitting. Why oh why do they not tell you these things at the docs office. Lakeside, we really do need to get a pamphlet made up for each time a pt. visits after surgery...what you may experience next. Wouldn't that be great if they gave you one for each phase of recovery.
  • I use old flattened bed pillows on my kitchen chairs, one on the seat and one wrapped around the back. I am just starting to be able to sit in recliner, still a bit uncomfortable, but I put a pillow under me and a small one just above incision area to take pressure off like Lakeside. I sat for about an hour in recliner today,that was the longest. I am hoping this sitting gets better as I was just given a return to work date of Nov 3rd. I sit all day tied to a headset. I am getting very nervous. I had to be back by Dec 1 to keep my job so figure if I go back Nov I can start half days. I see all these people who say they go back because it is a sedentary job, but I don't have the luxury to walk around any time I want. OOPs sorry to go off on a tangent. Yes the pillows really help. You guys are so right, having something to tell you what you may expect next would be great, I guess since everyone is so different it would be hard to do, but the doctor(and I love mine)doesn't really give you a clue. He keeps telling me keep doing what your doing. OK and I do feel like I am doing really well considering everything,but what next. Enjoy the new TV shows. Seeking
  • Thanks girls, just knowing I am not alone sure helps. My b-day is Nov. 29th. For my b-day I want to be rid of the brace. Lord help!!
    Hey ladies, another ? since we are all so similar.....do you find as you are trying to sit more, wean braces, try new things, all kinds of different muscles start acting up and giving you yanks?? Thanks for your time and feedbacks.
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