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L5-S1 spinal fusion nightmare - HELP anyone else have this happen



  • I also awoke from surgery screaming of foot pain. Both my husband and myself asked for an x-ray (denied) they said it was probably the position I was in during surgery or the fact that my feet were taped together???? I also woke up during the 1st surgery a few times, they blame the fact that I had been on pain meds for so long that it was impossible to keep me asleep. What nightmares aye...
    I go on the internet as often as possible, but there are some days when I just can't. I'm sure some of us all have those unbarable pain days. Hope to talk further soon, SoCal Susan :* :S
  • Sdroxx, hello, welcome to SH. You will find this site is a great source of information and support. I am sorry your surgeries were not successful. As many have said spine surgery is a game of Russian Roulette, you just don't know if you'll get the loaded chamber and sounds like you did unfortunately. Can you tell us more about your self? What was the indication for your fusion, spondy, ddd, etc.? And did you have BMP? There have been several on here with bmp problems. I hope that you can find answers for your problem and get some pain relief. There are many here with SCS as well. Do you take any medication for nerve pain such as lyrica or neurontin? or steroids? Nerves are very slow to heal often taking a year or more. Good-luck in your journey and know that you will find great support here. Sue
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  • Lucy, I had fusion for spondy on August 5. My surgeon said 80% success rate. The indication for surgery often determine the success rate. I am doing very well, just starting PT to strengthen my muscles so I can back to work. This surgery is very intense with a long, slow recovery. My NS says this is the most painful surgery he performs and he kept apologizing for all my pain in the hospital. I have little pain now in my back and original symptoms are gone. Good-luck to you and check out the surgery section as there are lots of fusion patients posting there. Take-care, Sue
  • :) I tried to send you a pm but it was blocked. perhaps you want to consider changing that. a pm is a big part of the forum. sometimes it is better to communicate privately or maybe just becocme good friends. the pm is the only way to do that. anyway, something to think about if you want to make use of all the great features here. Jenny :)
  • Welcome to SH. I am so disheartened to read your post. I am looking at a fusion of L3/L4 - L5/S1. I have totally blown discs - torn all the way through from left to right and arthritis and I seem to worsen almost every day. When I read posts like yours I begin to wonder if I can live with this horrible pain. What if I only think it's horrible? What if it gets worse? Can I deal with that? I wish you the very best at finding some relief. I still have no idea what I am going to do.

    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
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  • I have had so many problems with my back and neck it almost isn't worth telling. Those reading this would be so boared reading it. Here goes. My first problem was in 1998. I had a decompressive cervical laminectomy. I don't think that was worth it. Then I got a new Pain Care doc and he and my neurologist decided an implanted neuro stimulator would be the answer to all my prayers. It works real well on my low back, legs and feet. In 2005 I had another neuro stimulator implanted in the other hip to help my cervical. My neurologist moved to San Antonio so I had to find a new neurologist. He also agreed with the stimulator mainly because it would help with the pain from the bone spurs left after my cervical surgery in '98. The new doc also took over the job of handeling my meds. I had tried accupuncture, pt, myofacial therapy (my ins quit paying their part of it, botox injections - my husband counted 58 injections and quit counting). My new neurologist/pain med manager put me on a new med and wanted me to have a pump inplanted. He arranged an appt. with my neuro surgeon who imfatically said NO..... So the doc increased my meds. I was falling, waking up in the middle of the night making sugar mountains with a tylenol on each one, sleeping wherever I fell, etc and he didn't do anything about it because he got a promotion to head up a rehab hospital. I ended up in the hospital. I had all these "specialists" but no family doc, so they turned me over to the medical students and their teacher. They pumped my stomach because they thought I was on street drugs, ha....I was taking enough prescription drugs to choak a horse. They found no drugs. not street drugs and none of my own meds. My family told them to contact my pain care doc because it might be my stimulator. NOOOOOOO, the doc was a god and he knew better. This went along for 4 days - I was tied to the bed and on a ventalator. My stimulator cycled. On fifteen minutes and off fifteen minutes. My husband went to my pain care doc's office first thing Monday morning and my doc was walking out of his office to come see about me. One of the nurses at the hospital called him and told him I was there and what they were doing to me. What my family told his was what was going on. The med I was on had an adverse effect on me and I broke he main lead in one of my stimulators. I was electrocuting myself every fifteen minutes. I never got a bill from the doc or the hospital, HA. Now I am having a reaction to my pain patch. My feet and legs are huge. I think I had better call my family doc tomorrow and let him look at them. Anyway, that is part of my story. I am interested in this message board and glad it is here. Viki :O
  • :) fauciabella, hi and welcome to the forum! :H you certainly have alot going on. check out the diferent forums and make yourself at home. good luck with your treatment. we are here if you need us! Jenny :)
  • had this operation done and now wish i hadnt i have had excactly the same happen as sdroxx can you please send me more details of how you are getting on thanks
  • Hi I realize this forum is from 08 but I hope it falls on some helpful eyes... I' was injured on July 23 2011..got ran around by work comp drs until finally having second opinion 7 months later and finding out the entire time I was being told nothing was wrong I had a compressed nerve smashed against my spine... Finally got surgery approved and was told I would be back to 80% well initially I did ok but after starting PT Everything fell apart and the dibilitating muscle spasms returned which has left me completely incompasitated I can barely walk... The spasms are so bad the pull my body 30 degrees to the right and antime on my feet it gets worse and worse.... Please if anyone reads this and has any info that could help me I'm at the end of my rope and I've been told by the surgeons this is as good as it gets.... There has to be something that can be done.... Hugs and love to all dealing with spine issues as this has been a real eye opener for me and I need HELP!!!? Thanks again
    My direct email adress is as follows as I'm not real sure how to use this site very well.... Dadss74@icloud.com
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