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Still not enough

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  • Hi D'Moon. I don't think your doc would appreciate your demanding certain drugs. He or she is, after all, the expert BUT I was recently given a drug for nerve pain called Zonisamide that I believe is an anti-seizure drug, that is, in the same family as Neurontin and Lyrica and one of the side effects is weight loss. In fact, on the package insert, it said this drug is also used for obesity. Now, I am within the normal weight range for my height though on the high side of normal but I really appreciated my doc taking the weight gain thing into account. All of us who suffer from chronic pain have reduced our activity and have gained weight. I sometimes thought "What is wrong with you. (I talk to myself) "You have this horrible pain and you're worried about gaining weight???" But I guess we all do. Its one of the losses we experience and grieve as a result of our injuries. Hang in there, girl. You'll figure it out. Susan.
  • dilaurodilauro ConnecticutPosts: 13,579
    Being a 32+ year person suffering with Chronic Pain, I can tell you first hand there will not be a type of pain medication that is going to 'take care' of your pain. Also over a period of time, you body will start to adjust to the levels of pain medications. Lets say Week #1 you take 2 vicodin a day to manage your problem, by Week #7, you may have to start taking 8 vicodin's a day to achieve that same level of pain relief

    I am a believer in using pain medications to help with chronic pain, but I am also more of a believer in that you need the correct 'blend' of medications and treatments to really manage chronic pain... And even then, the pain will not disappear.
    Besides the Pain medications, these could also be used to control a situation:
    - Nerve Pain medication such as Neurontin or Lyrica
    - Muscle relaxers such as Zanaflex, Soma, or Rhobaxin
    - Sleep Aids such as ambien or lunesta
    - Physical and Aqua Therapy
    - Massage Therapy
    - Passive Traction
    - Acunpuncture
    - Ultrasound and/or Home Tens units

    When you put all of this together, you will know that you have examined each area and are doing all the things that you need to to control and manage your pain.
    Increasing Narcotic Pain medications should not be the only route considered. Doctors will know based on medical tests and clinical observation if higher dosages would be justified.

    I have read so many times on these posts that 'Surgery is not an option' When I hear that, I want to know more, the details behind this and exactly why surgery is not being considered. There are doctors that select surgery as a last resort, while there are others that would operate after you first visit to them. There are not that many spinal situations that surgery is not an option.

    I would go for many different opinions to make sure there is total agreement. Realize that there are some doctors that are not comfortable with a given procedure, so they would say surgery is not an option

    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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  • Well said RON!! Have you only seen spinal surgeons or specialist or have you also seen Neurosurgeons? My NS is wonderful. He did my fusion and doesn't want to do another surgery yet he thinks I need another plate through my back. My first surgery was through my belly. So by the first of the year I should have an answer. Keep trying and eventually you will find a doctor that you feel is doing something for you!!!! Just like RON said " Realize that there are some doctors that are not comfortable with a given procedure, so they would say surgery is not an option".
    Also you will build a tolerance to medications so it does take a cocktail of meds sometimes. Not EVERYONE gains weight from nerve meds. It is a possible side effect but I know when I was on Lyrica or Neurontin I DID NOT gain weight at all. I thnk I seemed to be hungry more often but I would snack on fruits and vegis.
    Be careful when asking about your meds. If you ask for an increase or a change to a stronger med too often it will put up a red flag and quite possibly your doc will only give you a non narctic like Ultram, which does work for a lot of ppl.
    For me Methadone worked a heck of a lot better for me than the Oxycotin plus it was a lot cheaper. A lot of docs wont increase the dosage of Oxycotin due to the high abuse rate. Meds are a very touchy subject so be careful or like I said it MAY send up a red flag! Good luck and I hope you find the proper cocktail of meds that will work. IF you have nerve pain you need a nerve pain med to aleviate it. Oxy never took away my nerve pain. My daily pain lvl is about 6-7 around a 10 in the morning and evening. so if I hit a lvl 5 on the pain scale I feel very fortunate!! Good luck and keep us posted. MJ
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