Hi my name is susan - I just turned 49. I have scoliosis.
When I was about 12, I had to wear the Milwaukee brace.
When I was 14, the dr.s said I had quit growing and things should remain the same. When I was about 25, I noticed sitting in an office chair was becoming unbearable. When I was 30 - I started getting a lot more pain. I know I should have had surgery but didn't feel I could check out of my life long enough to have surgery and time to recover. I started to babysit for 2 little girls out of my house - because I couldn't sit at a desk - and this at least allowed me to be flexible about what I did during the day.
I knew I was getting worse this spring but in October my back - it just went out on me. I went in to my primary dr. and she said, no more babysitting for you and sent me to a surgeon. I am having a spinal fusion - well, in 2 different operations a week apart - the anterior and then some days later the posterior. I see here is not that uncommon, February 24th is the first. I had a bone scan and an MRI and they have added a discectomy. I am having a lot fused and the surgeon said he will not be able to correct it all. But it will improve my quality of life and it really was not an option to not have the surgery. My spine is pushing on my diaprahm. I also have depression problems and have had trouble leaving the house. Riding in the car is miserable anyway. I did apply for social security disability and the surgeon said he will assist me in any way he can - but I realize I may not get it and even if I do it could be years. Naturally, I waited until the economy was bad to make a major decision which required me to close my little pleasant babysitting business. I couldn't pick up a baby safely anymore and when I did I was in terrible pain. So that's my story - and now I am just waiting. I have an attorney for the disability and an excellent surgeon and a good husband. Plus a really good therapist - the mental health kind. The surgeon said I will always have some pain but nothing like I have now. Yesterday I didn't take a pain pill until 5:00 p.m. just to see how I would be - and I could barely move around. I just wanted to know. All of your stories have helped me, I've been reading your posts for some time. It's very comforting to know others have similar experiences even though I am so sorry for anyone's pain. Thanks for listening, Susan