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Bad Burning pain !! So tired of dealing with this all! Please read sorry so long!

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:26 AM in Chronic Pain
Hey all,
Some may already know me from my old screen name.."Chrissy1311

I was in a car accident in July 2007, and then in Jan of 2008 had a posterior cervical foraminotomy at C 3-4 and C 4-5...What an awful surgery. I had a neuro who did this first neck surgery.
He told me right form the start that later I would probably need to be fused but he did not like to fuse people my ag...
To make a really long story short I later found out that he was thinking I was in my late 20's and I at that time was38.
As I continued under his care and after the foraminotomy he just started to be rude and not understanding.

One of the symptoms I had ever since the car accident besides all the neck pain issues, was a terrible down right debilitationg burning in the upper mid back area someplaec in and around T4-7 and close to sort of the bottom to middle of the scapular area.

I changed to an Ortho Spinal surgeon who is more caring and understanding and we ruled out any rotator cuff injuries..

We wnet forwar and on September 3, 2008 ( almost 4 months ago) I had a 2 level ACDF C 4-6. While I feel the fusion has helped some of my neck pain and I am happy that I made the choice to do so even though it was a 50-50 percent chance it would help me because I did NOT have and spinal cord contact from my moderate to sever bulging, torn annulus discs with fissuers from C3-7...
I took the risk anyway because of the quality of life.

While my quality of life has improved some...I am tomented by this burning in the upper-mid spine and scapular area.

I recently started PT ordered by my spinal surgeon and some of the thing that are done ther aggrivate this burning really really bad!!!

Interestingly I saw one of my check up x-rays in the ortho's office and noticed an area where the vertebraes looked as though they are touching! I did not mention it becasue I was not sure that was what I was really seeing.
I never said anything to anyone about it...although the Surgeon is aware I have had this pain there since before surgery.

I went to the PT and the gal was doing an examination on the way my spine moves and actually said out loud.."thats weird...it feels like your spinous processes are touching right here" She at that time was touching in the general area of the buring pain and we talked a bit about it.

The next time at therapy a gal there did some massage work on me and it really aggrivated that burning area so much I canceled the next appointment as I had to travel to my parents for Christmas...This pain has been elevated even more then usual now since before christmas..

My parents live 130 miles away and I am allowed to drive, but opted to have my mom come and pick me up because I can not yet drive that distance comfortably,,,

I am so sorry this is so long, but I am so concerned about this area of burning...

I do have scoliosis but it has never really been termed as severe!

I need some advice! Some input please....Has anyone or does anyone have this kind of pain???

When my accident occured I had a split second to react and ni the split second I pressed my back into the drivers seat and locked my elbows as a natural scared reaction which is the worst thing to do because I just made my body so rigid upon impact...I was not at fault! Thank God, but I have already had two surgeries and my case has been settled already...I am fine it has been settled because the other's persons insurance was so miniscule my personal car insurance took up the deal...

Please you all I am so sick of this pain...I really feel I could go downon the medications if it were not for this tormenting burning pain...

I did not know where to post all this becasue I have tried several other areas with little or no response...I am at my witts end and will for starters tell my surgeon in Jan when I see him of the burning aggrivating and down right excruciating pain that is still plaugeing me...

Since I had a workers comp case before this car accident I have not worked in a long time. I started to go to school to be a nurse and applying to the nursng program has been put off util I am physically better....

To be honest I just wasnt to get better enough to work again...and right now with that burning----well how could I when it is so easily aggrivated...

Okay...I think I have gone on enough and hope that someone will respond to my very long post...

Formerly Chrissy1311



  • sweetie , I think you should really make sure that your doc understands just how bad this is affecting your life.....time to pull of the gloves and tell it like it is. The doc can only go on what you tell him. This is affecting your quality of life so now is the time to take action hon. I understand your pain because I have that type of pain as well....my right shoulder blade area and right arm , hand , fingers , etc...always bother me and the pain does wear you out.

    Please keep us posted as to what you do and what you find out. If you ever need to talk then just shoot me a PM , I will always reply....take care , Miki
  • I understand and wish I could do or say something to give you hope. I agree that you do need to discuss this with your doctor. Maybe it would help if you wrote down your symptoms and gave them to him to read. Sometimes i wonder if the doctors really listen, but if they have a piece of paper in their hands and we give them time to read it, they sort of have to "listen".

    There has to be something that can help you. Maybe a change in medications would decrease the burning a bit. Keep trying and never give up. Good luck with your appointment in January, but in the meantime, I hope you can find some relief to help you get through. Heat and Ice and TENS units are my best friends, but nothing really takes the burning away. Listen to your body and try to figure out what triggers the bad flares. Good luck, and remember that we understand and if you need to vent, someone will be around to offer support.

    Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!
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  • I am sorry you are experiencing this. I agree with Priestess. You should let your doc know. I've seen other's mention a pain diary and always think of doing one myself and maybe that is something that will help you. I too have had burning in my spine in between my shoulder blades or lower at times. I've noticed it more lately and started after my fusion of L5/S1. I often wonder if it's because of the fusion and putting added pressure on my other discs. It's so hard to know. Keep pushing the docs until you get the results you are comfortable with. If you aren't satisfied go for a 2nd and even 3rd opinion. I'm in the process of getting a second opinion as I am getting frustrated with my docs.
  • HI HUN
    it sounds like you are suffering from thoracic out let syndrome.this is where the nerves and blood vessels and crushed from the car crash that you had ..i have TOS but mine is congenital
    its worth you having is checked out
    good luck
    you can email me for more info on TOS if you want to
  • Hey everyone!!

    Well thank you all for the replies..
    I stopped using my wedge pillow a few days ago. I had purchased it for after the 2 level ACDF. It worked well then to keep me on my back and helped me to not move around, but now I seem to move and want to sleep on my side so I took it off the bed.

    I so appreciate everyone's advice.

    I don'thave my calendar in front of me, but I think my next surgeon appt is in mid to end of Jan.

    I will also start college again in the end of Jan. I am again only taking one class ( Phlebotomy ) and hoping to try and return to work by May.

    When I go to the surgeons office I will request for them to take an X ray of my T-spine...Maybe my entire spine for that matter! I have scoliosis and I think it is just time to have it all looked at...Hope fully the docs office can give me the X-rayto take and have a radiologist read it... we will have to see..they may have one in the practice because it is a large practice with at the least 6-8 Ortho's all with certain specialties...Mine is a Spinal Specialist.

    Oh boy....I just got to keep the fears from creaping in on me...Try to focus on my daily tasks rather then let the little fears play out in my head.

    The good thing is that my neck feels overall better and the arm weakness has gone away since the 2 levels got fused...or i should say are in the process of being fused.

    Straker...I will do some research on TOS and someone else another time mentioned to me RSD so I will do some searching around today hopefuly.

    Do you all think I should call my surgeon tomorrow morning and let them know what the PT people are having me do in therapy???

    My Therapy appt tomorrw is at 11:30 am so there could be a chance I might hace a call back before then

    I will keep everyone posted on how things go...at least this morning I did not have such a hard time getting out of the bed although I had woken up two times during the night and gotup so that might have been why.
    Thanks again...
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  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,732
    The Doc. is so used to reading med files and reports that, writing maybe best. Keep it short sweet and to the point.
    MedicineNet.com. Check list to ask your Doctor. Has a excellent checklist to copy if you have a printer.
    Good luck, Jim
    ps. Definitely call you Doc. and tell them of the pain p.t is causing.
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Hey all,
    I went to see the PA at my surgeons office whom I do not think to highly of but at least I got to have some x-rays done of my T-spine and she set up and MRI for the T-spine since the old one I had was over a year old.

    I will have the MRI tomorrow and then I will pick up the radiologist report either on Sat. or Monday.

    My PM and I have discussed doing an ESI in that area so I will have the x-rays, and the current MRI for him when I see himon the 8th, and then I will see the surgeon again on the 15th.

    As far as my Neck Fusion is is slowly coming along.

    My PT has been set up again and now we will be doing some pool therapy instead to see if that will help.

    I also despite my pain levels have walked 1/2 to 1 mile every day or every other day...

    It does not seem to aggrivate that area unless I swing my arms to hard while doing it...
    SO I put them in my pockets and just try to walk at a medium pace...

    The last thing I want to have happen is my weight creep up any higher then is has already...
    When the accident happened I weighed 148 ... I was so proud becaue I was 218 and I am 5'6'...It took me a few years to get to that weight and when the accident happened I could no longer go to the gym and no more walking and hiking 15-20 miles either...Now the weight is back up to 177. It was 180 but I got it down now a few pounds by continuing to walk.

    I just can't stop moving ...not yet.. I need that movement to help with my fusion!

    I should get a paper copy of my MRI films tomorrow so Hopefully in the next few days I will have something to update you all on!

    Thanks for all your suggestions and help!
  • I hope your MRI gives your doctor some clear direction on what might be wrong. Meanwhile, take it easy and no more physical therapy until you find something out!

  • Hey everyoone!!!

    Cheri i have been okay'ey for pool therapy. I will have my first appt today!
    It has been really cold here and a bit windy this morning so I woke at 4 am not feeling very good in that area...

    I cant really see anything on the MRI, but I would not know what to look for other then I do know what cord impingment looks like and I don't see any of that. There is only one place where the something looks as though it could be real close to the cord and then another something that I have no idea what it is...interestinly I looked at the one from a bit over a year ago and this big blak area is not there so we shall see. Hopefully the report will be available to me today.

    If so I will post the results...

    What I am wondering is if there is a Probable hemangioma how do they go about finding out if it is or is not a hemangioma and is some other thing???
    HJust some of those thoughts that roll around in your head you know..

    In the mean time I am actually looking forward to being in the pool today. I hope the water is nice and warm and it will not make me hurt likt the other therapy did. We shall see.

    Thanks everyone for your thoughts and experience!!
  • I have had a miicrodiscectomy and have had the same burning pain almost to the point it drives you crazy, my doctor said I am having nerve pain and put me on lyrica which I have not even taken because of the side effects, I know what you are going through and it hurts so bad I cry alot.I hope you feel better and I will pray for you..
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