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The pain in my thoracic is absolutely horrible...suggestions?

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:26 AM in Upper Back Pain, Thoracic
So glad I found this site. I felt as though literally I was all alone in my thoracic pain.

I am working with two pain specialists and feel as though I am at the end of my rope. I have had several ESI and also just had a rhizotomy. I have two discs herniated in my thoracic and two in my cervical spine from an auto accident. I have had all of the tests and some more than once (MRI).

I have muscle pain, horrific nerve pain and also have permanent nerve damage. I feel as though I am on enough meds to knock me out, but it doesn't even knock out my pain.

I'm on Avinza, Zanaflex, Magnacet, Lyrica and Daypro. Why do I still have so much pain? Any suggestions on what I can do? PT didn't work either.

I'm lost. I'm 28 and have been dealing with this since Dec of 07. There are days I'm not sure I can make it.

Thanks for taking the time to read this. As my title suggests I just take one breath at a time bc I'm not sure what the next will bring me. :''(




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134

Comments

  • My name is Amber and I currently suffer from a thoracic disk herniation as well. :) Welcome to Spine-Health! I have not found a lot of people on here with this type of herniation, apparently it's rare? My Neurosurgeon says no surgery and doesn't believe that thoracic herniations don't cause pain, but I am sure as we both know, beg to differ! I have also found that no amount of medication helps my pain along with my reverse cervature of the neck. I have found though, that hot baths help, and soft rubs on that area helps. But, the pain not only causes shooting pains, aching pains, but it seems to cause stomach pains as well. If you have any questions, please feel free to PM me. I will say that you are lucky to have doctors. I suffered because of Florida No Fault Laws, and only saw a chiropractor most of the 2.5 years I have been injured from a mva as well. Contact me at any time.
  • I feel for your situation. I have had thoracic and cervical pain since 4/07 (not a contest - just know how you feel)....I am amazed what a toll this has taken on me - like you - on my body, mind and spirit. And as far as meds are concerned - it is such a battle - but when pain brings yo to your knees, you've got no choice. And then when they don't seem to make any dents - WOW - how frustrating. I have been sober since 8/2/94 and still very active in AA, it took me a nearly a year of pain to be willing to take any meds. And still now i can under take the presciption. (Ultram and now a muscle relator belaphen - 2 days)

    I now understand how chronic pain can bring on depression. I have an appt. with my pm doc on Wed and I am not leaving his office until we have a definite game plan. I feel like I have lost a year with my children and life - from being fatigued from pain and so intolerant - my work has suffered and so on.

    I have found much relief emotional and spiritual here at the forum....please know you are not alone.

    pfm
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  • Let me first say congrats on your sobriety. Such strength you have and have had. I'm glad to hear you are so strong. I know that message is bitter sweet to hear, bc I'm sure like me you're so sick and tired of being strong. You are an inspiration for me on multiple levels. So thank you for being so strong, I know it is hard.

    Oh, thank you so much. Keep holding on is exactly what we have to do. I also feel on the same page with you and how ppl sometimes try and get in a competition with us, so you acknowledging that makes me feel you have dealt with that too.

    My work has suffered too, I just have a battle in my head with it. After reading these posts it scares me even more how I push myself with work. Sounds like you do the same. Nobody will suffer when we push ourselves, but us (referring to work and how we push ourselves) and our bodies.

    Don't leave w/o a game plan! Please let me know how it goes. PM if you would like.

    Ty Ty Ty I can't say that enough for letting me know I am not alone.

    I am hoping I too can find spiritual and emotional relief on this site.

    Thanks again!
  • hiya, keep after the doc till ya start getting relief K?
    like araine i used to get relief from massage, till wc took it away, maybe ask if you can get your doc to precscribe?
    try another different muscle relaxer?
    good luck to ya your not alone here!
    William Garza
    Spine-Health Mod
    erator

    Welcome to Spine-Health

  • Thanks for the message. I appreciate it so much. :-)

    I will ask my doc about the massage. That's a good idea. Sometimes I wonder how much pain should we accept? Any thoughts on how you feel about that?

    Thanks Ranchhand. Good luck to you too. :-) Hope today is a good one.
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  • I understand the pain you are talking about. I was taking alot of meds and now am trying methodone. It stopped all the pain. But now I am struggling with severe nausea. I hope i can get the nausea under control so I can stay on the methodone. The doctor said it is the only one that helps with nerve pain ( sharp stabbing and burning pain). Lyria and oxycodone used to take the edge off enough for me to be at pain 9 or 9.5 instead of the 10 I always lived with. I am still on the mad search myself. I am hoping this methodone will work like the doctor says.
  • I can feel your pain!!! I have three herniated discs in my thoracic and the pain is unreal. I have had three other surgeries two cervical and one lumbar fusion, so I know a bit about pain. Is any of your problems surgical candidates. I can tell you personally that all of my surgeries have been great. Immediately the pain wemt away. I know some people dont like fusions but they have worked for me. Good luck with the pain. I guess being a recently retired cop, I have never liked pain medicine. I have always only wanted the weakest meds possible much to my doctors dismay. I am currently taking oxycontin 40 mg three times a day, and percocet 10/325 2 every four hours. It doesnt do shit for my pain but might help a bit. If I didnt take anything, i would committ hary cary!! Good luck

    Brian
  • I also have two herniated discs in my neck that are above & below a congenital fusion at C4/5. I also have 2 herniated discs in the T-spine. Does your pain go to your shoulder blades in the worst way? I was able to have the rhizotomy in the neck- but no lower than C6/7. Did you have any thoracic injections or procedures? What are they offering you in terms of pain relief?? I am now in a pain mgt. program. If you prefer heat over ice, I just tried the thermocare wraps ( generic ones), & they worked wonderfully between the neck & shoulder & next to my shoulder blade. I also use a TENS unit that I love. If you have time, I would like to chat with you more about this.


    I wish you all the best with your search for relief!!

    glo :)
  • I'm not sure I'm posting in the right place for this after reading your posts I think i can at least find help here. I had a fusion done of t5 to t10. I have 2 bars and 10 screws they cause me pain not only in the place that the fusion was done but it radiates all over my back and causes unreal headaches not to forget the odd things that happen like limbs randomly going completely numb. 1Breath I'm sure you know the fear and the problems with a social life these kinda thing causes I'm 26 and this has crippled my life in many ways. I couldn't have imagined so many people around my age have the problems I'm to a T. I was wondering how you all deal with this pain there's days I cant even find it in me to get out of bed. I've tried everything I could think of or find on the net to try and help it even a little bit and the neuro I just started to see gave me darvaset and zanaflex they helped for a week and now they dont even take the edge off. I also was wondering if anyone has had any odd symptoms with the pain and nerve damage like the limbs going completely numb as if they weren't there yet able to move them or any change in thought like completely forgetting things. Any help you could provide would help alot and thank you for taking the time to help.
  • not many people can find a doc willing to go into the t spine. when did you have this done? a very good friend had a surgery t spine for a tumor - that was making her limbs go numb. it was caught on a contrast mri by a neuro doc who just happened to be in the room during her mri.

    i have cervical and thoracic issues, though nothing has shown on an mri - i feel like i get stuck like a hinge on a door if i move my upper body at all...anyways, to let you know - laying down feels the best for me on a heating pad...but when i get up 80% of the time, my knees are numb and tingle, no other part of my legs. Sometimes the upper front thighes will tingle and get numb.

    the point is - it is all so strange, and interconnected and i have no answers, just symptoms - my arms do wierd things as well, but the numb knees can be oh so strange.

    hang in there - is someone working with you regarding your present status and pain?

    pfm
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