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new guy, old pain.

WramblerWWrambler Posts: 1,588
edited 06/11/2012 - 8:27 AM in New Member Introductions
So a quick story and my history.

On July 16, 2006 I crashed a mountainbike, went over the handlebars, fractured C7, T3, T4, T5, and my right collarbone was shattered into 4 pieces. Spent two days in the hospital after numerous C scans and xrays, Came home in a minerva brace, had the collarbone pinned 3 weeks later. The minerva brace came off in mid October and the pin was removed on Halloween.
My right shoulder was clicking and never stopped hurting, It was scoped on February 28, 2007 and nothing much was found. Lots of PT, Chronic right shoulder pain, s back pain. After two C-spine injections in fall of 2007 a second MRI was done December 1, 2007 and low and behold they found Avascular necrosis on the end of the humerous.
January 9, 2008 I had a partial shoulder replacement, cap put on the humerous. Extremely painful recovery. I suffered through PT all summer last year and made it through till the cold weather hit. At that point I could not manage the pain any more and returned to Hydrocodone use.
Now the one year point has past. No one has offered up a physical reason for the pain. It just is.
I am depressed, go figure. Life sucks. I don't do anything as anything makes the pain worse. I still go to wokr though I do nothing.
I received another opinion in December. They recomended a Nerve stimulator trial. I am now trying to get that trial approved. Still need the psych testing down. It is scheduled on Wednesday, but I am so depressed I do not believe it will be approved.

I'll quit for now,


  • Since I got the post up, I want to add some questions.
    Where do I go to get info on the nerve stimulator? I have no idea as to if it will be approved! I never even tried a Tens unit that some people have asked me about. The suggestion I got to try the nerve stimulator came from a hospital in Pittsburgh Pa and I am in Morgantown, WV. I do not want to stall or stop any option that has been suggested. I feel aweful as I said. I dread going to work, I dread the next Hydrocodone dose. The thought of not having it scares me more!
    My pain is in my shoulder joint and upper arm biceps and triceps areas. I also feel like someone is sliding a knife under my right shoulder blade at times. Sometimes I have pain sensations in my wrist, thumbs and fingers too. When I try and ignore my pain and do work I get a sensatin like someone has built a fire between my shoulder blades on top of all the other symptoms! Does any of this make sense?
    My orthopedic doc says he is done. My primary care doc is clueless and does not know enough to be of help. The local Pain clinic is a nightmare. They will not work with any pain meds. They don't return phone calls and generally have helped me slowly go crazy.
    I just want so desperately for this trial of the nerve stim to be approved and for it to work. I don't care if it is perfect. I don't care if it tingles. I just want a way to get rid of the pain without opening a bottle! I have tried most all the antidepressants, the antiinflammatories, neurontin, lyrica, Cymbalta, all of that. It all effects me worse than the pain. I can't function on them I have tried. That's why the doc in Pittsburgh suggested the neuro stim unit.
    Oh, I'm rambling here, sorry. I really need some support and some way to get through this mess.
  • You are among lots of people that truly understand your pain and depression here. I have been battling with depression for the past year and still trying to find a med that will help. Have you considered talking to your doc about the depression? It really is much easier to get under control in the beginning phases than after it gets severe. Depression goes hand in hand with chronic pain for most folks.
    Are you on any type of meds that help with the pain at all? I admire you for being able to hold a job with all of the issues that you have. I truly hope that you find some type of relief soon and please keep us posted.
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  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. i am sorry you are feeling so down. ~X( i hope being around others who are feeling as you do will give you some comfort. please stop by whenever you feel the need. good luck on your doctor appointment. =D> Jenny :)
  • I do not have the answer to your questions about the stimulator. Take a look at the Pain Management section as there is alot of discussion there about them. I do understand what you are saying about the meds and side effects. Have you tried any of the long acting pain meds? In my case, and I do not tolerate side effects well, I had some side effects when I started but they disappeared after about 2 weeks. Cymbalta was the worse for me. It was awful being on it and worse getting off of it. Maybe there will be some members here from your area that can give you some suggestions on a decent pain management doc. Please feel free to ramble here anytime that you want or need to. This is a very supportive forum and there are always people here to listen and support you when you need it. Hopefully somebody will be along soon that will give you better suggestions than I have. Good luck.
  • Your Physiotherapist should have a TENs unit? I just bought a 4 pad accupressure massager on EBy for $4.00 and it's something like a TENS. I hope you can find something to help your pain. I had arthroscopic shoulder surgery but just to clean up a subluxation. I found ultrasound helped and that was in '95 and have no pain now. I hope you review your meds with your Dr. and find something to help. Do you have a Pain Management Dr? He may be able to help. I had to find another PM Dr. also because they were all injections to get you off meds. The new Dr. helped with my facet joints so another opinion may be worthwhile. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
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  • Thanks for the replies, things are always slightly better in the light of day. Not much though.
    PM docs around here a few and far between. The one clinic that exists in Morgantown pushes injections and has banners and sign everywhere telling you they do not write scripts for pain meds! Now, excuse me if I'm wrong, but does that not seem like a potential problem? Anyway, I'm not really here to complain about that clinic. Though the thought does cheer me up.
    My PCP doc is a good guy, but knows next to nothing about pain management, so I have Hydrocodone 10/325, which I average about 6 a day. They just make me OK enough to get to tomorrow. I take Desipramine 10mg for the depression and it was helping even at that low dose. Not so much anymore. I epxerimented with stopping it three times and could tell within 2-3 days that I had stopped. More had some side effects I did not like. I can't remember exactly what side effects as my memory is shot. Go figure! I also sometimes take 300mg of Neurontin at bedtime. Higher doses of it left me too confused to work. I have had depression for 12-15 years. It's not new, the accident just helps it hang around! Cymbalta for me and others I have met can be an aweful-aweful drug! I tried it twice about a year apart. Nasty stuff, I took it for ten days and I swear the withdrawal side effects lasted longer then I took it! EWE, never again! It has me real scared to try any of those meds again. Even though I have tried the lot, probably twice thru now!
    I know I need to find a new pain management clinic, but the hope is that the nerve stimulator will be approved and it will work. Till I get that done, no one I see wants to do anything else.
    I just sometimes have a real hard time getting to the next day.

  • I have tried almost everything for my pain and I believe the most important thing is to find the right diagnosis. I have a cervical fusion with a rogers wiring, C4 thru C7. I have scoliosis below the fusion, I also have coccyx pain, with recent episodes of sciatica and frozen shoulder syndrome in both shoulders. Numbness in fingers and toes. I have Menicus tears in both knees and had to have them repaired, this has put me sitting for 4 months now, it has taken longer to heal due to needing knee replacements. I am seeing a surgeon/specialist in the town I live in, I moved here only 3 years ago and it has been a merry go round trying to find a good doctor. I recently went to see a Chiropractor who actually adjusted me (Yes I was terrified) She had a scanner and they scanned my spine, it showed where a nerve was being beat up by a muscle that was trying to protect my spine where the scoliosis is. After being adjusted I was out of pain in that area for the 1st time in years. (The nerve was free) I still have a lot of pain in different areas, however the difference is that the pain medications I take now actually helps. I did try the TENS unit, however you have to get it above the pain and with my fusion being so high I could not do it. "That was when I had neck pain only" I get discouraged, every doctor I go to just wants to treat me with pain meds and muscle relaxers. I can't work anymore and can't get disability due to moving
    here. That is when I became unable to work and I did not have a doctor to help me. It's amazing to me, I have a bad back, bad neck and bad knees and unable to qualify for disability. Anyway, I'm hoping the new doctors will help me with the pain or the disability. I am looking into natural healing products and found out that calcium and magnesium will help with muscle spasms! Even the chiropractor has told me I will always have to have pain meds and she is not the first one. My doctor's tell I am unrealistic for not wanting to take pain meds. I have been on everything and it does not work unless I'm almost comatose when I was working every day. Anyway, I read an article where when it comes to your health and pain you have to be the captain of the ship. So the moral is that I am more in control, I read everything I can find and try natural first. I am actually only taking loratabs and somas now and plan to get off the somas next month! But I've got to go back to work and dont know how that is going to be. God Bless!
  • terrip06,hi! :H i see this is your first post and i want to welcome you to the forum. you will find many people here who use pain medications as part of their pain program on a daily basis. =D> i have been using them for over 30 years and can tell you that what is offered today has made my life so much better. time released medications avert the need to take pills all day long and offer the first real pain relief many of us have ever had. i can totally understand your need to "try natural" first wherever possible. :? i use alot of vitamins and supplements as well as medical marijuana. :D this is about as natural as it comes and is legal in many states. it helps everything from pain to sleep to relaxation. I) the "Pain Medications" forum has some good posts about medical marijuana. goodluck as you search for pain relief. =D> keep us posted. Jenny :)
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