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why is it so painful

AnonymousUserAAnonymousUser Posts: 49,322
edited 06/11/2012 - 8:31 AM in Fibromyalgia
:''( why does fibromyalgia hurt so much? i have fibro pain and along with my pain i have a burning feeling on my skin and hurts terrible does anyone else have this burning sensation along with there pain from fibromyalgia? and have a sick feeling like u have a really bad flu in ur bones???

please let me know im new here thank u


  • So sorry to hear about your fibro pain. How long ago were you diagnosed? When mine is at it's worst I have burning pain and transient stabbing pain. And yes, it feels I like I got hit with a Mac truck in the morning, just putting my feet on the floor is painful. A good pain management program and light yoga has helped me a great deal. Some days it is hour by hour. You have my deepest empathy!
  • Yes I have the burning pain and the feeling like I just got run over by a Mac truck. At the moment I keep feeling like someone is taking a rubber band and snapping my tendons in my foot. Actually it DOES feel like someone is literally snapping my tendons. Pleasant, huh?

    There are times that I have other burning, but my worst feeling is that I've done a million calf raises...it's like the pain is like that in all the muscles. So I guess I have more muscle pain than what you seem to be experiencing is like nerve pain.

    I also cannot hold a thought for the life of me lately either. Those days, I am scared to drive b/c I am afraid of hurting someone! So I stay home and keep myself occupied that way!

    Hope you start feeling better soon! This is NO FUN, but it's almost better than an injury b/c at least you know it will never go away. With an injury, you never know how much pain you will be in!
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  • I am so sorry you are having such a trail right now. Just wondering how long you have been living with this and are you working with a physician/health team that understands fibromyalgia?

    For me, the pain was rough but the fibro fog was far more difficult to handle emotionally. The loss of short-term memory and the word finding problems were so embarrassing and frustrating.

    It never ceases to amaze me how many people I know that have fibromyalgia yet hide it for fear of being stigmatized!

    Please know that you are not alone in your struggles.
  • Hi there,

    I feel the same way too. Pain all the time - like a bad flu. Also tingling/stabbing pain - often my skin actually hurts to touch.

    It's been so so hard lately for some reason, and I'm SO tired of dealing with this. I've had this for 15 years or so - maybe more, I've lost track. Lately I feel like I just can't hack it anymore and I get so depressed. ~X(

    So I feel for you, hope you feel a bit better sometimes - hang in there.
  • "Like flu in your bones" - I like that description.

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  • Fibro is very dialibating disease to have. I have it along with peripheral neuropathy,B12 definency,central spinal stenosis,lumbar radiculopathy,cauda equine syndrome and other things going on with my body also osteoporosis. I have been fighting for SSDI since March of 2007, and guess what got a letter from ALJ saying I was approved and that they were going back to Sept. 30-2006. Got my letter from ALJ on July 31-2009, got paper from SSA about helping me with scripts and such today Aug.21 and should get my award letter tomorrow. They told me they sent it out Aug. 19th. Well let me know how all is handling all the pain that we are going through.If you know of anyone who needs help with SSDI tell them to go through Allsup and tell them that to say Wanda "Sue" Brown referred them. thanks so much. Hugs Sue Brown
  • So sorry you have to deal with this horrid disease. I too have the burning sensation on my skin, oddly mostly when I'm doing dishes. If I rest my arms on the edge of the sink without a towel there, it burns for hours afterward.

    Hoping you have some pain free (or pain light) days in the near future!
  • I have the horrid burning feeling on my skin as well. Fibro is not an easy thing to live with, nor is it easy for those nearest to you to understand. I really hate "But you don't LOOK sick", but it comes with the illness.

    The best thing I have ever done for myself with Fibro is to get up and move every so often to help ward off the nagging stiffness. Doing gentle stretches, and range of motion in my joints. Living with FMS is hard enough, but having all the little add ons (burning skin, soreness etc...) is like a double whammy.

    Hope you feel better soon.

  • I was on a Fibro message board for years. Left it for personal reasons. so far, the Spine-Health forum seems OK.

    The neuropathy..I do think sometimes it is worse that the nagging aching "flu in the bones" (I liked that one too) stiffness, brain fog and the infamous "But you don't LOOK sick!!!" (YUP, heard it all before.)
    GRRRRRRRRRR...I really connected with the description of the burning in lower arms after doing dishes! It felt like I was being shocked! Now I have proof that there is a reason why I can't do dishes! My B.F. does them. I refuse.

    Does anyone ever feel like their hair hurts? Or even their eyelashes? I have seen this expressed by others also. I know I have felt it. And Neurontin only briefly touched on the pain. Lyrica? What a joke! They have touted it on commercials as the wonder drug for Fibro to the point it makes me wanna hurl :sick: NOTHING really helps fibromyalgia, except, as some of you said, stretching, mild exercise and for me, soaking in the hot tub. It's an old one we picked up for a song, but it sure does help.

    There were some other weird phenomena we discussed that I may ask about here, later. It had to do with our "hardwiring". It sure seems different from others.

    Well, gotta go. I cannot type any longer. I'm curling up into a ball from stiffness ;)

    (sorry 'bout the gross 'smiley') But it is how I feel about Lyrica.
  • I have always wondered if I had fibro but from reading these posts I am now sure of it. I have had flu like symptoms for years but lab work never shows infection. I just had my potassium checked last week thinking that may be the reason my back, hips, thighs, calves and feet hurt so bad. Again, lab was normal. Thought I may have early dementia or alzheimers due to not being able to verbalize words or thoughts as quickly as I should. Thank you so much for your posts, I am going back to my PCP and demand a referral for a rheumatologist appt. I should have known....I went 12 years with debilitating migraines only to find out I had 3 bad discs in my neck with cord compression and severe spinal stenosis. Thanks again!!!
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