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Bad experience at the neurologist and now I'm at rock bottom



  • Good to hear that you're going to be checked at the Mayo! Please keep us posted. Sending positive vibes your way that they will find an answer....

    Best wishes to you,

  • I really hope they can help you at the Mayo clinic. Honestly the first step is to just find someone who is willing to listen to the whole story and find the clues there which can lead to a proper diagnosis. In the end though the key is to just keep trying till you find the right doctor. You are too you ng to go through this type of stuff.

    I went to a neurologist and honestly he was a nice guy but the lamest of the bunch. Basically he said just muscular...please. I have been through now every type of doctor you can see...in the end I just want the proper diagnosis and so should you.

    I really feel talking to these doctors that they really do not understand pain. Everyone gets their day and so will they.

    BTW, if you take the emg, they will finally understand that you are in pain. That is what happen to me. I explained I was in acute pain but until they had to shoot electric through my body and some silly meter showed them it they could not believe. After that test they were all treating me differently!
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  • I'm very sorry to hear of your horrible experience with the neurologist, Jessy, it sounds unbelieveable! Maybe you should bring up a complaint against him- sounds like a right arse.

    So I take it you have had the MRI and it didn't show anything major? Well that is good and bad... of course you are not faking the pain and it is awful for that man to suggest so, but at least there is no evident spinal abnormality and you don't have a major disc injury hanging over you.

    I'm not sure what to suggest, but I saw another thread just now about positional MRI's - i.e. standing or sitting. These can show what your spine looks like under load - maybe it will look different and help diagnose your pain. Though I'm not sure how easy it is to get one.

    The only other thing I can suggest is a muscular problem though it sounds unlikely... as far as I know there's 4 major causes of sciatica - disc herniation, spondylo (slipped vertebra), spinal stenosis and piriformis syndrome. Piriformis syndrome is where the nerve is trapped by a muscle - the piriformis - which is situated in the buttock and the nerve runs through it. It can mimick the symptoms of a disc. Though I'm not sure how painful this syndrome can be. Also, are you still having problems with urination? I was worried when I read about that symtpom in your other post - it sounded like cauda equina syndrome (CES) to me.

    Jessy, can you tell me about what feels more painful? Does it hurt much more to bend forward? If you are sitting, try raise each leg at a time straight out in front of you (gently) - does it start to hurt more? Do the same lying down, raise a leg straight up. Does it hurt? Do you feel tension in the back? Does bending the knee remove all this tension?

    Also have a look at your back using 2 mirrors if you can (one in front, one behind). Just stand normally and can you see any crookedness? Any involuntary bending to one side? When I first herniated a disc in my back I was totally crooked to one side - I had antalgia, a postural reflex where the body bends away from the pain. Though if you have pain in both sides, I'm not sure how it would look! But do so for me. It may be a subtle asymmetry.

    Please keep us informed about what is happening, I'm 19 too and had back problems for what seems like eternity- it is awful. By the way did you have any injury or accident of any type? (I'm assuming no since the neuro insisted you 'had to have one'). I really hope you can get to the bottom of the pain very soon and start getting better. Take care.
  • University hospital in Denver (part of Colo University) is supposedly good too, I had to tell the representative of the neorosciences department that the MRI department appears to be incompetent. They couldn't understand the MRI order and had to have some big pow-wow of doctors to figure out exactly what pictures to take because of the diagnosis they want to rule out (or confirm). It was comical to hear the head of the MRI department call me to basically say they weren't incompetent and just making sure they were doing what the neuro doctor wanted. It's something that a doctor doesn't see but maybe once in their career. Anyway, long story short, after a week I was actually able to get the MRI scheduled.

    Sounds like your mom wasn't satisfied either! Just keep the same attitude and never give up, you may have many poor doctor experiences. I know I've had my share!! I hope the Mayo clinic is just the ticket for you!
  • I had a disc fragment that was wrapped up in a nerve. It was undetectable on my MRI's. I had severe pain and difficulty walking for 3 years. I even had a doctor shrug at me. No one had a clue! I kept looking until I found a doctor who'd listen. He did a exploratory surgery and found the fragment. I was able to walk again but was left with permanent nerve damage. We know our bodies and we must fight for our lives! Never give up. If I had given up, I'd be in a wheelchair now. I hope Mayo Clinic will give you the answers you're looking for and that you get some relief soon.
    Faith M

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  • Hi - I was diagnosed with Piriformis syndrome about 3 years ago. I tried all of the less invasive therapies ie; phyical therapy, massage, etc. I finally received 3 steroid shots that helped a lot. I wasn't pain-free, but could manage with Aleve. The pain just recently came back with a vengeance! I had the same 3 injections and then went on to have 2 more injections. They were both Phenol injections. A week after the last phenol injection I was in extreme pain and continue to be now, 2 weeks later. The Dr. has put me on an anti-inflammatory and a muscle relaxant. I am taking those plus Percocet for the pain. HELP ... does anyone have any answers? The pain is unbearable when in a seated position.
  • Hi there, my back pain started when I was 16 years old so I have been in your shoes. It took me 10 years before I found a doctor who would believe me... so just hang in there! You're on the right track, and kudos to your mom for backing you up! You are truly lucky to have her support.

    I agree that you should see a pain management specialist. If possible, go see a different neurosurgeon. Get 12 different opinions if you have to. Just keep trying... you will find one that you get along with, I promise. It just may take time.

    Feel free to send me a PM, I totally know what you're going through. Unfortunately there are too many doctors out there who think their *** doesn't stink, if you catch my drift. Ignore them and move onto the next.

    Oh also, some advice from my uncle who is an orthopedic surgeon. When I told him how much I hated PT and felt like it wasn't helping... he reminded me that it needs to be done at MY pace. If something really hurts, tell them to stop. Of course, try to push yourself as much as you can... but if it really crosses the line you bet you can tell them to STOP and they need to listen.

    EDIT: I didn't realize this thread was from September. I hope the original poster has gotten pain relief since then. TWEDE, instead of posting on this old thread, starting your own would allow people to better help you.

  • Hi - I have never been on a forum or started a new thread. Please inform me how to do this.
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