For 5 yrs I have been suffering from what I'm told is "Small Fiber Peripheral Neuropathy/Radiculopathy" in BOTH legs with no 'known cause', so I'm 'idiopathic'.
I describe the pain as severe BURNING. It is piercing pain at the knees, radiating outward as burning. In full flare mode it feels as though each leg weighs 200lbs! It is getting more difficult to walk or stand for very long and VERY painful when going up stairs.
Bloodwork did reveal severe HyPOthyroid. I'm taking Sinthroid 125mcg/day for that.
It has been a very tedious process of elimination as far as getting a clear diagnosis (which I'm sure most of you are aware). No auto-immune factors, No injury (except for the fact that I DID have surgery on my left hand due to fracture). This is within 3 or 4 months of the neuropathy onset. At that time, I had joined a gym and was trying to get back in shape from the hand fracture and went a bit overboard on the treadmill (walking 100 miles/month).
THIS is when I noticed the severe knee pain onset, which has progressed to consume the entire legs. SO
it would seem that the overuse of the legs would be the culprit. I must have damaged the nerves.
I've tried all the standard meds targeting Neuropathy (Neurontin, Lyrica, Amitriptyline....) to no avail. I currently use the Fentanyl 100mcg patch, and Hydrocodone for breakthru. Without these meds, I most certainly would have lost my mind by now. But I desperately want to get off of the strong narcotics. I am aware that the SCS is not a cure. But if i have success with it, I am hoping to be able to cut wayyy back on the drugs so that I can live a normal life and be a better wife and mother to my family.
Input would be MUCH appreciated! Good OR bad. Does anyone else get relief from SCS for bilateral leg pain, or do most have back/surgery issues?