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leg pain and numbness since myelogram

hotcoffee29hhotcoffee29 Posts: 327
Hi again!!

I am concerned about what is happening to me since my myelogram 5 days ago.

I know alot of folks have had no bother with them and others have had the terrible spinal headache, maybe my symptoms are quite unrelated to this test but its scary to me when my legs don't want to work properly!

I had the myelogram Monday, no probs, had the stinging, head rush, back pain but they gave me pain meds, stayed in recovery for 5 hours and pushed caffeine and I was fine.

Came home, stayed in bed and got up the next day and went to work. I was feeling yucky, headache but not severe, my legs were going into spasms and tingling. Came home and called the hospital, they told me I probably aggrivated my symptoms by going to work, rest and push more caffeine. I stayed in bed until I went to work the next day, was starting to feel more headaches, dizzy and weakness in legs, came home went to bed until I got up again for work yesterday, I ride a school bus and by the time I got to work I was so dizzy, so sick, I couldn't barely feel my legs, I had t be taken into the school in a wheelchair!! I was sent home and I called my doctor and explained what had happened to me, they said I was doing pretty good!! This can last 7 days!!

Advice is to stay flat, bed rest and push thee caffeine. I have stayed in bed and followed doc orders. My headache is much better today and is controlled with excedrin migraine, but my legs is another story!!! I have pins and needles feeling in both legs and feet, non stop, my legs feel weak and if I try to walk I am real shaky. My usual pain down my left side is really bad, worse than ever, they said tht is increased due to the dye irritating my nerves. I just took a shower and my left leg is going into spasms, and the tingly feeling is driving me crazy.

Doc is not concerned, still can't get results of myelogram, called twice so I am not sure if they saw anything or not (had negtive discogram last month) continued scitic pain down left hip/butt/ leg since lami/disc at l5-S1 6 months ago.

Maybe I am just over reacting to this creepy feeling in my legs, doc isn't worried so maybe I shouldn't be either, I just wondered if anyone else suffered from this feeling in their legs, its from my waist down actually and did it pass, I have had to take another day off work as I couldn't go in today again and I hate feeling so unreliable. I am hopeing this passes over the weekend, my regular pain is hard enough to handle every day at work!!

Just seeking thoughts and anyone else who might share a similar experience. Sorry for my long post.




  • Good grief! Not what you needed. I have never had a myelogram so cannot comment from personal experience. I think any time we have something invasive, we run the risk that it can further aggravate our nerve symptoms. I hope you can stay in bed all weekend. That will provide the best chance for recovery.

    I think if you get up and keep pushing yourself, you may go through a cycle where you feel a little better, then a bit worse...and it will just continue to go back and forth.

    I know it is hard for a busy mom to take to her bed...but if you possibly can, I believe it would be best for you. Try icing every hour for ten minutes on your lower back. If that makes you feel too cold, use a heating pad on your upper body just to trick yourself into thinking you are warm!!
  • count on you for good advice!

    I have stayed in bed since I was sent home from work yesterday except for taking a shower today, my daughter did my hair and just brought me coffee, so my kids are taking care of me! LOL

    I was icing yesterday, but i will resume that today because it does help with the low back pain. I was so embarressed yesterday at work, needing my co-workers to help me becauase I couldn't walk!! Just really scared me.

    I plan to stay in bed until I feel better, I was just unsure if this was contributing to my tingling in my legs because I am not moving much, just praying it passes soon.

    Thanks Gwennie,
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  • Hi Sandra.

    I'm thinking about you and wondering how your symptoms are doing today. Please let us know how you're doing - I'm concerned about you.

    Hope to see you post soon.
  • I am still on bed rest, my headaches are getting better but my legs are still numb and tingly feeling, with pain and muscle spasms in my left leg, I am hoping it resolves itself within the next few days.

    I am disappointed my doctor did not call me with my results of my myelogram, I know he has the report, his secretary told me they would get back to me, so now I have to wait until Monday.

    Thanks for your concern Cath, its really nice to know people care and I am not alone.

  • Hi Sandra ~

    Depending on what the report shows, I think you may want to have a consultation with another spinal specialist. A new set of eyes may be helpful in trying to determine what is causing all your pain.

    Don't be embarrassed by what happened at work. At least, now your co-workers will realize that your pain is very real.

    How nice to have a daughter to help you. I miss having mine around!!

    Have a good night's rest, and some more tomorrow!! I did some reading on myelograms after seeing your first post. Of course they all say that side effects are very rare...but when they develop it sounds like it can take quite awhile to resolve...

    I'm afraid you just did too much too soon, even though you were told you could go back to work the following day. Your body thought otherwise. You may have had a nasty reaction to the dye or it may be that the dye aggravated the nerve somehow.

    Try not to worry. You'll get this resolved....It may just take longer than planned....

    Good night.
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  • Wow, that doesn't sound fun at all. I have to agree with everyone, it sounds like you overdid things. Hey, but the key is, to get things to calm down now. The spasms could easily be caused by the nerve being irritated, I know that's happens to me. Do you have the feeling of pressure at all in your lower back? From the point where you feel the weakness? Just curious.

    Just take care of yourself and don't try to be mom of the year just yet. It's okay to let everyone else pamper you once in a while. If things for some weird reason get worse, don't hesitate to go to the ER and have them contact your doc.

    Hope to hear better news soon.

  • I hope you had a good night's sleep and are feeling a tad better today.

    It is damp and cold today...the kind that cuts right through you...not what you have too often where you live!!

    Just checking in to see how you're doing ....

    xx Gwennie
  • sunny1966ssunny1966 VIRGINIAPosts: 1,362
    I hope you're feeling better. I just wanted to let you know that I had a myelogram that caused me to have lbp/tailbone/leg weakness and pain. My pain started as soon as the dye was injected. They said it had irritated a nerve and should improve. I still have the same problem now. One year and 3 days later. I had the myelogram on my cervical spine. I really hope that your symptoms don't last long and that you are completely over it soon. Good luck.

  • Thanks to all who posted with your concern, I have had another rough day, just dizzy and back and leg pain, slept through most of it!! I am up now and I have a friend coming to visit so I am going to attempt to sit up this evening and see how that goes!

    I feel my legs are getting better, tingly but not so weak, low back pain is like i am being stabbed with a knife and the spasms continue on my left side, headaches still being managed with excedrin, but I feel so sick to my stomach, I am trying to eat but it could be from all the meds I am taking versus anything else going on.

    "C" - I don't feel pressure in my low back, just pain, but the tingling starts from the waist down which feels strange to me. I don't want to over analyze all my symptoms so I am staying positive this will pass. I do have some hesitancy when using the restroom but I am sure thats normal for me becauae I had all that post-op.

    I'll keep you posted, I am not getting worse so I think that is good sign, tomorrow I told my husband that I would like to go a walk and get some fresh air and see how that feels, as I have work on Monday!!!

    Sorry your weather is not so good Gwennie, hope Spring arrives early! Yes its a little muggy here in Florida!

    Debbie, I am sorry to hear of your on going symptoms, thats not good, where do you go from here? I wish you the best also.

    I really appreciate all the concern, it means a whole lot to me, wishing us all well!!!

  • Hello...

    Just wanted to update, last night got really bad, I was unable to sit up, my legs just turn to jelly and don't work with painful spasms. I am unable to walk very far.

    Its a week tomorrow since the test, I should be feeling somewhat back to normal by now, I have followed all my doctors recommendations.

    I am considering going to the ER, I believe now I need to get some treatment and some answers.

    I'll keep you posted,
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