Here's a subject thats near and dear to my heart and after reading a lot of stories I have found is quite common on here.
My case started with a ruptured disk at L5-S1 and my disk was pressing against my backbone it hurt for 6 years, took nsaids, had epidurals, PT, discogram, nothing helped. Then I got a Laminectomy and disectomy done on it thinking, it would finally be solved. When the doctor(neurosurgeon) was in there, he said after he did the laminectomy the disk was moving so well he decided against the discetomy. We'll there were other things. One my doctor lied to me, he said he was going to use all new techniques, like do it microdisectomy and also the laminectomy the same way. We'll he didn't, he just cut right thru my back muscles and did it the old way.
Then it got fun, while I was healing from all this, which my pain was still there. My neuro was part of a doctors group, suddenly 2 weeks after my surgery he left the group. I was freaking thinking it was for malpractice, but it turned out it was over money. And my doctor was a Pediatric neurosurgeon, he got a job at a local childrens hospital.
So then for me, I got a new neurosurgeon that hadn't done my case, he was just looking at the MRI. My previous doctor told me if it didn't work they could stablize it some how but the new doctor this went right out the window. I was still in pain but they kept looking at the MRI and saying your MRI is perfect so you must be fine. Then I would ask why am I in Pain????
They couldn't do anything so I was sent to a PM, more epidurals, and triggerpoint injections, PT, signing medicine contracts, etc..... And they kept saying your MRI looks perfect, your healed and I'm asking then why I'm still in pain? I was getting ticked by this point, I thought my first doctor had botched the surgery and should have done the disectomy. And they we're thinking, that it was nerves or it was just in my head. So they tried me on Gabipintin and Lyrica, which Lyrica I hated and I felt lethargic from both. And they thought I was just trying to get pills, NO I was just in pain and them going you shouldn't be in pain its not on your MRI, and me screaming then WHY AM I IN PAIN.
By this point it had been a year since the surgery and I got another MRI and I went to get a 2nd opinion from another neurosurgeon, got the same answer, fibromyalgia and or in my head nothing on the MRI.
I gave up, I took Nsaids for the next year and a half and PT, while the pain got worse and worse. :S
Then thru my work I switched insurances because all the doctors were thru my HMO(Kaiser). I switched insurances where I could go to my mothers boss, a great Orthopedic surgeon in Atlanta. He was who I should have gone with to begin with but my insurance wouldn't cover going to him.
Anyway I went to a PM in his group and she said the disk was herniated again, i don't think it was ever fixed. Couple epidurals didn't fix it. I got a new MRI and I went to see my new surgeon, I'm thinking, hoping I would just have to get a disectomy. He said the previous doctors did a good job.
and this time, the disk was herniated and was DDD totally black on the MRI, it was shot. Finally vindication.
I had the ALIF fusion on L5-S1 with disectomy and cage done 15 days ago and healing fine.
It took over 2 years for something to pop up on my MRI, even though I was in pain the whole time. I have gotten a real dislike for neurosurgeons and PMs, but I know it wasn't their fault they couldn't see anything. But its frustrating telling them something and their looking at you like your making it up. :S
Anybody else have their story of them not seeing your problem? I think its a common story.