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  • I really wish you could get an infrared heating pad too. I was going through so many of the ThermaCare heating wraps each day, so the infrared heating pad pretty much paid for itself in a relatively short period of time. I still need to use the heating wraps when I go out and sometimes use them at night, when I get knotted up. Sometimes the Lidoderm patches work really well on the knots, too.

    Yes, it was a real bummer when the girls (my twin cousins) were diagnosed with Fibro. They were diagnosed about 8 months apart. Both girls were always very active, had wonderful jobs, married with kids, etc. My aunt (their mother) has Lupus, so the doctors believe their Fibro stems from their mother having Lupus. My aunt is very active, takes her medication and only needs to avoid direct sunlight. The girls can function with their medications, but they were declared disabled several years ago. There's no way they could ever work outside of the house again. They are both awesome mothers and still happily married. :)

    I've been fortunate... I don't have Fibro. (I'm knocking on wood). I've seen what my cousins have gone through over the years and my heart goes out to you (any anyone who has this). When they have flare-ups, I can't even hug them. The flare-ups are becoming less frequent with them, thanks to the medications.

    I take Neurontin for nerve pain in my thoracic area and tailbone area. (My thoracic pain also creates nerve pain in my chest, ribs and jaw). It really helps me and I'm keeping my fingers crossed you'll have great results with the Lyrica. Have you started it yet?

  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,745
    meydey, relaxtheback.com has a size small for $179
    They are all over the country including Virginia. You can order online or at a store. The large and medium size will cause severe sticker shock!
    good luck, Jim :)))
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
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  • Hi Meydey;

    Sorry to hear that you're going through this. I was sent to see a physiatrist a while ago, as my pm thinks I have fibro, but the physiatrist is a nutcase and said he didn't want to diagnose me because of the stigma attached to it, that he didn't want to "label me" and said I should stop taking the gabapentin and muscle relaxants and take more percocet. Yeah, he was a treat let me tell you. Anyways, after going back to my pcp, she switched me from gabapentin to Lyrica, that was about 3 weeks ago. I started at 75 mg twice a day, but am now up to 75, three times a day. The Lyrica has helped tremendously with all my tender spots, it no longer feels like someone has hit me with a brick when they touch me even gently. I haven't had any blurry vision, well nothing different than what I already had. I have found that my fingers swell a little though, and I'm not sure if it's just me, or because of the med, but I feel more bloated than usual since being on it. I also take 10-20 mg of nortriptyline at night, which is a cousin of amitriptyline, and I find that since I started the Lyrica with that, I have been getting more sleep. I still have the odd sleepless night (like tonight) but it's not as often as before, even while on the gaba.
    The only other thing that I find, is that the Lyrica is taking care of the pain that the gaba wasn't, but now some of the pain that the gaba did help with has come back a little bit... 6 of one, half a dozen of the other I suppose, but I'd rather live without feeling pain from anything, even a blanket or bed-sheet, touching me. I wear boots to work, and by the end of the day, my legs were excruciating where the top of my boots are, but now it's fine.
    I hope that it has started to work for you by now, and that it helps with your pain tremendously.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • hey mey
    i also was diagnosed with this invisible evil fibro
    i have tried all the nerve pain meds lyrica..got some side affects with it weight gain with in few wks.and my mind was a mess..but that could have been just one of many evils of fibro itself..

    i tried cymbaltia,neurontin few other things and flushed them all..
    i swim ok well exercise in water even if ya can waterwalk ..i have to set a time cause its easy for me to stay in too long..
    its hell getting out my legs feel like cement and drive home is hell but for that short time in water if worth it..
    i started on lyrica just at nite then was put on 2 x then 3 times and with all side affects ..was not good mix for me..
    i hope works for you
    keep in touch
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • Hey Tammy, it's so sad that it hurts to get a hug. I hope in time their symptoms diminish.

    Jimmy, that's a lot of money for an infrared heating pad but it's worth it for us spineys.

    Wow Kelly, I'm amazed that you're working with all that pain. I don't know how you do it but I'm glad that the Lyrica has helped you to keep on going.

    Mary, are you taking anything else for the fibro and nerve pain? Those side effects can get pretty bad but so far I'm doing okay with Lyrica. I also feel much better while in water and I enjoy aquatherapy very much.
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  • Longer term side effects are short term memory, lack of focus, and weight gain...

    That's part of the problem with FM. Not only are these side effects from Lyrica, but they can be symptoms of the FM itself. I take Lyrica 75mcg 2 at night. I tried taking it during the day, but It made me so sleepy during the day so I switched it to taking it at bed time. I noticed some relief within a month of taking it. I'd say my only side effect is occassional dizziness. I definately have short term memory issues. I've noticed it a lot recently, espically if I get to many things going. Other than that I feel like I've had pretty good luck with Lyrica.

    I still take it easy when I need to. I try not to over do it. I've had FM for about five years now. My Dad's sister has FM too. I know one thing I certainly don't want to go back to feeling like I did before I started taking Lyrica. Is it a mirecale drug by all means no, but it has helped for the most part. I wonder what the long term effects are for taking this drug. Is it one of those you can take for the rest of of your life like synthroid, which I take as well, or are their risk for taking it on a long term basis.
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