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Side Effects with NEW oxycontin OP

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Comments

  • Spunky, I am sorry to hear about y9ur ear problems...but I bet your stomach issues are from the new oxy...and flower...I am with you...I'm on the fence with this one. I like that it's "non abusable", but there is some agent in it that isn't fair for the real CP patients to have to suffer thru.
  • Yeah, it's frustrating because other than people changing to another medication, there's really nothing anyone can do. My stomach has been much better, but sometimes I think that pain control isn't as good. The thing is, my activity level has increased so much that it could be that.

    I really wonder how many patients are having trouble with this new medication. It's really hard to tell by reading online because many pain patients don't post.

    Flower
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  • as well as all of us who have had stomach issues...I really encourage you to call the manufacturer like my pharmacist told me to do. They need to know these side effects, so maybe they can work on the formulation or something. I called and left a message on the med complaint line after hours. I probably should call back again during business hours. I just looked up the 800 number online for Purdue Pharmaceuticals...thatn is what my pharmacist really encouraged me to do. He said they were compiling a list of these side effects and needed to hear from the patients. If we do not tell them, how do they ever know it's an issue?

    I think my stomach is getting better too now...so at least it seems to be a side effect that gets better with time. This med is the best med for me to cover my pain. I did aa search on it and the darn junkies are already giving new info on how to abuse this NEW formulation!!!!!! So, I guess they will get their fix no matter what, huh? so sad to be addicted in that way...I know I'm physically dependent, but to be an addict and be so desperate to find a way to abuse this new formula...gees. I was really hoping they'd lay off it, so the docs would have a more peaceful feeling when prescribing to REAL CP patients (thank God my doc is ok with it). I told him a while back that if he had a patient that he was 0prescribing for CP due to medical records and such, but felt they were also abusing, that kadian was a good med for him to prescribe those type people b;c I don't think you can abuse that one either.
  • I will be honest and tell you I am in AGONY. I have had the new formulation for 3 weeks now but I have had a mixture - I think my pharmacy gave me some of each. Therefore, I have had on and off withdrawal and pain levels varying.

    But the last few days, I had used only the new ones and was dying. Constant horrid pain, SCS wasn't even helping. I am wearing 3 lidocaine patches a day (never this much this often), taking ALL BT meds which is unusual for me, but my BT is Percocet, the same as Oxy, so this probably held off major withdrawal symptoms), stomach upset, nausea, what I call "rolling stomach"...where you think you have impending diarrhea coming but not sure.

    I wasn't connecting all the symptoms. First thought I had "done too much". Hubs begged me to call the doc and go in early, but I know they hate that and I didn't want to be a bother. And taking new and old off and on, didn't make it as obvious.

    So we did an experiment. We found 3 OLD oxy's in my bottle and took those today. Last night, this morning and at 2pm. Well, I woke up this morning in a fog, my head just felt weird. I thought I might pass out, so waited to take a shower when hubs was here. Then by an hour after the 2pm dose, I was nauseated and felt somewhat loopy. STILL was not connecting the oxy with the symptoms.

    The DUH - it hit me. Hubs asked "what I felt like" and I told him, I feel like I took 4 percocet in the last 30 minutes. DUH!!!!! On 3 doses of my REGULAR prescription, I am feeling like I overdosed. So just how much meds have I been getting with the NEW formulation?

    Obviously MUCH MUCH less than normal, hence the agony and massively increased pain levels.

    I go Tuesday to the pain clinic but will be calling the pharmacist in the morning. This is CRAP! All I do is follow the rules, take my meds as prescribed and for that I get to suffer like this? I don't know if my body just doesn't like this, allergic, or what, but I'm pissed. No way I can live like this without a change. Would it even be safe to move up to the next dose with the way my body is metabolizing this? (I take 40 3Xday, should I agree to 50 3Xaday?)

    Also, ITCHING all over my body but no rash. Just itch itch itch.

    I will update after my appointment. For those who haven't gotten it yet, the pills are much thicker and say "OP" instead of "OC".

    Good luck to everyone else,

    Cheri
  • please please please everyone call purdue pharm who makes this med...or better yet the FDA. I have read that the FDA is not happy with the complaints flooding in and that if it keeps occuring...they may have to bring back the original oxy's. Apparantly they still make both the old and new OP versions. I've done a lot of research the past couple of days and these complaints are on every forum...this med is not covering the pain and it causes all these stomach issues. It makes me wonder what the heck they put in these to hurt our stomachs like this.

    anyway, please call!!! it's so important. just google for the number.
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  • well, i reported it again to purdue and i also filled out an online med adverse reaction report to the FDA. I hope it helps and they bring back the old stuff. I know it's better for the ones who abuse it, but here, once again, the ones who really need it and take it according to the directions are paying/suffering the consequences of the abusers...this really sucks.
  • also just filled out an online adverse event form at the FDA and called my pharmacist this afternoon. I was their first complaint, although another patient would only accept the original oxy last week. They are now out and have only the new formulation.

    I will beg to be switched to a different med entirely, as I don't trust even going up in dose. Not at this pain level. The itching today was unbelievably awful after having had Sunday "off" while I took the 3 remaining original oxy. I truly believe I am reacting in some way, allergic or otherwise.

    I'll update when I can.

    Cheri
  • It just truely frightens me what they put in these pills to make everyone so sick..that has me concerned. I was going to call my pharmacist to ask if they could still order the old ones b/c I've read somewhere that they are making both types. I need to call tomorrow so just in case they can order it, I'd like it for my next refill. I have beenn thru so many meds and I'm so tired of switching around and finally this dose of oxy was working for me...then this! {screaam}

    Anyway, thasnks girl for filling out a form online. If everyone who had these side effects would do it...maybe we'd get somewhere. I think we will in the end...but I don't know how long it will take. With all the complaints...to the FDA and to the manufac....which is compiled in a report and given to the FDA, plus Purdues sales are going to drop off b/c noone wants these side effects. PLUS, the people getting these from their docs and selling them on the streets...well they will be requesting a different med b/c the addicts can't "get high" anymore...so I would expect, although a nice attempt to help the drug abuse problem which in turn ended up hurting all of us who are truely in pain everyday and need it...I just think they will be forced to go back to the old version.

    Anyone else have any thoughts on this?
  • Saw my PM today, told her all my symptoms and she left the room to go call the drug rep (said I was the 2nd patient to report symptoms). Rep said they are getting swamped with calls statewide/nationwide. SOMETHING is happening to SOME people.

    My doc took me immediately off oxy and put me on MsContin to try (I didn't want the Fentanyl patch at this time.) She said to expect tons of pain as she normally titrates patients down off oxy, but won't let me. Pulled me completely off, which made me VERY happy.

    I go back in 2 weeks to tweak my dose. I am SO glad.

    If you feel fine, GREAT. If not, don't suffer- go to your doc, report it to your pharmacy and fill out the forms online.

    At the end of the day, it could just be that Purdue Pharma WANTS to get rid of half their oxy clients - less liability.

    Take care,

    Cheri
  • I just can't imagine they want to get rid of them...b/c I;m sure they make millions or a billion or so a year off this med. Like I said, for the junkies out there, we are having to suffer the consequences of them snorting, curshing, smoking, injecting into vein(that one really appals me as it is not steril and going right into their bloodstream)! Arggggh Makes me so irritated!

    I really hope the Ms contin works well for you. I have been on it before...I always felt the oxy did better for pain, but I can't say that now. You know what was a good med? Kadian was a great one for me...I don't know why b.c its basically and ER of morphine, but it covered my pain pretty well. If I have to come off oxy, I will probably ask to go back to kadian, although a much higher copay. keep us posted on how you are doing with the ms contin. Did you start about the same dose of oxy you were on? I think they go mg to mg in strength...not sure though, Hope it helps!
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