Had a CT Myelogram on 11 March to see why I had not recovered from my last surgery in October last year and just wondering if anyone out there has had a similar experience with this test.
Because I live alone most of the time (my husband works on the other side of Australia) and live a long way away from the hospital (in a semi-rural community with limited access to public transport) my NS arranged an overnight stay so that I could recover from the Myelogram and then drive myself home the next day. Seemed like a good plan at the time - but ...
Everything started off okay. Was placed on the table in the required position, the doctor (not my NS) gave me a local and then started to inject the dye. While he was injecting it I felt a horrid pain deep in my spine. I remember moaning out loud but there was no response from the doctor so I thought that pain might be normal in this kind of procedure so I just gritted my teeth. Things didn't start to get really interesting, though, until they started to tilt the table in order to get the dye into my lumbar spine. All of a sudden a heap of muscles in both of my legs and feet went into a severe spasm and I couldn't move anything from the waist down. My legs, ankles and feet were twisted up so badly and in such an unnatural way. I remember the doctor and his assistants trying to straighten out my feet and they couldn't get them to move either. Even though I was crying in pain they managed to get a couple of images before I couldn't take it anymore. It took several people to turn me over so that the dye could move but once they did that the spasm started to slowly let go and they were able to take some side images as well. The other thing that happened at the same time was my blood pressure dropped from 126/67 to 89/54 (or somewhere in that region). The doctor told me that he had never seen that kind of reaction before.
That night when I was finally allowed to get up to go to the bathroom I realised that I couldn't walk without assistance. My initial thought was that it was just fallout from the horrible spasm and that it would pass. The next day, instead of going home like I was supposed to, I was kept in the hospital and was still there 5 days later. I only got to go home because I cried a lot and my husband had flown home from his job on the other side of the country so he could look after me.
I am now on more pain meds than I have ever been on except for post surgery recovery so I can no longer drive myself anywhere and my husband has gone back to work so I am stuck here. I'm also back on crutches for the most part
I am currently waiting for an admission date for a rehabilitation program aimed at strengthening some of my muscles and developing a better interim pain management plan and so I wont be seeing any of my team until then. I have also been advised by both my NS and my PM specialist that, given my intolerance to most of the drugs that could help me, I am going to need a Spinal Cord Stimulator.
Now - back to my original question (sorry if I have rambled on ...) - has anyone out there had a reaction like this to a Myelogram?