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Long time pain sufferer feels worn out, troubles finding caring doctors in rural area

Hi! My name is Sue. I've had fibro, DDD, and related conditions for many years. I moved three years ago to a rural area where there is a wholesale war on pain patients going on. Complicating matters is that I work in a related field and fear losing my job if too much is known about my conditions or my treatment. (So grateful TO be working at all!) My pain doctor is great, but he cannot diagnose or treat anything but the pain. I'm getting a lot of renewed symptoms (extreme fatigue, "fibrofog", and headaches) as well as new ones (buzzing in my head, dark spots in my vision, and short episodes of what I can best describe as "going offline". I feel like I'm not in my body, sort of like I'm going to pass out. It only happens for a few seconds, but its scary.) I've been working on reducing my pain meds gradually for a long time and am starting to wonder if this is such a good idea. Dealing with pain for so long I'm not sure my perspective is very good on my pain level 1-10, but do feel much more aware of it lately. Anyway, my relationship with my PCP for the last two years has been increasingly unpleasant. She initially said she was comfortable with pain patients, but has sent me on some wild goose chases in evaluating the rest of me because she seems to believe the meds are going to destroy my liver, colon, make me fat, etc. At my last visit she interrogated me for information I have many times provided, then when I was leaving her office in the non-private lobby asked me if I was suicidal or not because she'd just heard a study about people stockpiling pain meds for suicide. I was stunned by the way she handled such a sensitive issue, and called her later to express my discomfort. She fired me. That is just as well, but I need to find a new PCP who I can trust in my area. None of them seem to want to take on pain patients, even when I explain that I don't need them prescribed for me.. Any encouragement or ideas about how to find one would be most appreciated. Thanks.


  • LizLiz Posts: 8,835
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
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    All of this will help make your threads better and improve the times and quality of responses you will receive.

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • jellyhalljjellyhall Posts: 4,372
    edited 07/26/2013 - 6:20 AM

    I can't really offer any useful advice to you because I am in the UK so don't know the system in the USA. (I assume that is where you are?)

    Having read your post though, I do feel for you and hope that someone else will post to help you.

    I just wanted to welcome you and encourage that there are others out here suffering too.

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