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Pain Pain Pain

Hi, I'm a newbie. I am just so frustrated with all the pain I have been having lately.
My DX as of a year and a half ago (Have not been able to go to a Dr. as S1 vertebral margin and Bilateral Pars defects. With a component of instability. Bilateral Spondylolisthesis at the L5-S1 and mild multilevel Spondylosis.

I am just trying to grasp this all.

My pain is getting unbearable, my lower back spasms and hurts, pain shoots down my legs, my legs and feet get numb and tingly. my hips hurt and ache. Sometimes I can feels something slipping??? don't know what.. my hips pop if that makes sense...

I have gone to a chiropractor more than a few times, he says he has to keep putting my pelvis /hips in place????

I don't sleep well, I cannot get comfortable. I cannot walk around that long at all anymore. I cannot work, I cannot lift , carry, bend etc...

Already have Major depression this is making it worse.

I guess I just want to vent to people who understand, this is debilitating... I have no life anymore.. I just wanna scream and cry.

Thanks for listening..



  • L5-S1 50 % slippage.No insurance.
  • KimTinkKKimTink Posts: 3
    edited 12/10/2013 - 4:16 AM
    flexural is all I take. only ay to get pain meds is ER trip....:-(....
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  • LizLiz Posts: 9,708
    edited 12/11/2013 - 9:10 AM
    please take the time to read this post and refer to it when you have questions

    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and growing.
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    as a bonus, spine-health provides these patient forums. here you can meet thousands of people who understand and can relate to your situation. you will soon become part of the spiney family[/u] who provide comfort and the advantages of a support system. you are now part of this family that is approximately 27,00 international members and growing daily.


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    i am positive any member, new or old will find this chroinc pain - step by step thread very valuable.

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    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • have you had someone explain all of the doctor speak that you wrote? most of us do not understand this and it is best to ask your doctor what this all means. two issues, going to a chiropractor with back pain and back issues is a really bad idea. they always give you the same stuff, back is out of alignment and needs to be fixed. so they have you coming back for more. you need to see a neurosurgeon or an orthosurgeon not a chiropractor. also trips to the er are a bad idea because people coming in with back pain sends up red flags with the staff and if you keep going they will label you as a drug seeker. why not go to a regular doctor instead of the er? er is more expensive, a lot lot lot more expensive than a regular doctor. you say you have insurance issues but why go when it can be up to a thousand dollars or more to a trip to the er? they won't just give out drugs. before they treat you they will give you x-rays, cat scans, and other tests they feel are necessary which really drives up the monies. It is cheaper to go to a family doctor and then get a referral to a specialist or better yet go to a pain doctor. i'm surprised they give you pain meds if you go all of the time to the er. just some suggestions. how do you pay for er trips without insurance?
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • first, i am sorry for the pain that you are experiencing.
    then i want to caution you about continuing to go to the chiropractor. when you have mechanical issues in the spine or nerve related symptoms, the worst thing that you can do is allow someone to manipulate your spine.
    i am including a link to the spine health glossary which can be found in the faq section of the forums on the left hand side of your screen. https://www.spine-health.com/glossary
    while you should always discuss the findings on any imaging study or test with your ordering physician, it might help you to understand a bit more what is happening in your spine.
    the next thing would be to find a board certified spine surgeon. he or she can go over your results with you and discuss treatment options, rather than returning to the er. terror is correct, they are there to handle emergency medical concerns, not to treat chronic problems, and they certainly in most cases are not going to treat the condition past the point where it is no longer life threatening and they will continuously refer you back to your primary doctor.
    if you can not afford to see a surgeon, talk to the hospital and they can refer you to a low cost or sliding scale clinic if there is one in your area.
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  • I could no longer work either. Lost my insurance an everything. I went to a sliding scale clinic an they referred me to pain mgmt. I am on indigent care. Check with health dept an see if clinic in your area.

    I have some of the same thing I know how you feel.
  • AmberLianneAmberLianne Posts: 2
    edited 12/13/2013 - 10:54 AM
    I get a lot of pain in my lower back when I sit or stand for too long, I think mainly from my scoliosis, and I also get tonnes of pain in my neck due to a missing C1 vert, resulting in a constant pinched nerve. I really like cold therapy for relieving the aches and pain. There is a great back wrap EDIT and a wrist wrap that I actually use for my neck. You get 3 cold gels and they are really flexible and keep the cold sooo long. I love them. I added the website in case you guys want to take a peak.

    Link removed, solicitation not permitted.Please read the Forum rules
    Post Edited by Liz The Spine-Health Moderator Team
  • Try to get a referral to a Pain Specialist. My pain was so bad that I talked/begged my GP into giving me Demerol Injections on three different occasions over a three months period. After three months my GP referred me to a Pain Doctor who gave me a prescription for Avinza, which was godsend. Avinza is a time released Morphine Sulfate and it gave me a good part of my life back. The only bad part was the relief was short lived (one or two months) before the dosage strength needed to be increased. Fact is I'm still on it (eight years) and I did get up to 600 MG per day, but I'm weaning myself now and I'm down to 180 MG and going for 90 MG soon.

    Anyhow, a Pain Management Doctor can possibly give you part of your life back.
  • you're not on your own many of the symptoms you have mentioned many of us have too .coping with intractable pain is very difficult .I have dealing with it for 17 years ,I too can only sleep for 2 hours max .I like you can't do many things that I once could ..it very annoying ..I would say that the popping you here is not borne .its the gas in between the joints ...as for getting comfy a decent rise and recline recliner with pillows where you need them is about as good as it gets ,,I have a very good one and would be lost without it.i also have a electrical adjustable bed with a octaspring second generation memory foam mattress and its extremely comfy BUT I still only get 2 hours then pain will wake me is very annoying .I always end up on my recliner and have done so for the last ten years ...making life as easy for yourself as possible is a start ..in my case we spent a lot of money ..installing a downstairs toilet and washroom and ripping the family bathroom out and turning it to a wet room with a massive walk in shower .I have a grabber to help with dropped items and I have a 4x4 car so I can get in and out with relative ease .....maybe a trip to your consultant to maybe have some more medical photography ?? could be a positive move .a chat with your doctor to sort your pain medication out may also be a way to go ? I have been living this pain and associated problems for a long time and I still can't get rid of the pain ..only make my life as comfy as possible ..I am under investigation for possible sacroiliac problems or/and adjacent disk problems following my ALIF fusion ..life with back pain tends to just go on and on ! .again welcome feel free to ask any questions
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • Best of luck to in your quest to find a good pain management M.D. Along with my pain medication I was also issued a T.E.N.S. unit. I still use my TENS unit occasionally and it does help me get more comfortable.
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