I am looking to connect to anyone who may have had multiple cervical levels fused, with rods and /or bone marrow and cage.
I am 3 months post op having fixed failed hardware at C6-7 removed anterior and replaced; bone marrow and cage insertion at C6-7 anterior ; and rods inserted posterior to secure C3-C7 to correct collasping vertebrae above and below C3 and C7 I also had corpectomy at several levels and laminectomy C4-C7. . This was done on 11/12/13. Post operatively, I developed a blood clot and infection and the incision started to turn black/purple and was not healing necessitating a 2nd posterior surgery to clean everything out on 11/21/13. Previous to this surgery, I had 3 other spine fusions. I am healthy except for my spine.
I am still having discomfort, tire easily and cannot do my normal routine activities without pain or discomfort. The simple activities like grocery shopping and picking up a bag, or running the vacuuming in my house are now difficult and painful. I cannot sleep the night without medication otherwise I am up due to discomfort.
My neck muscles are on fire and burn. The discomfort is more pronounced with increased activity. This pain is is new and different from the PRE operative period. Any physical activity intensifies the burning sensation. Additionally, activity causes my incision line to itch terribly. Although the incision appears to be healed now- everyone tells me it is still healing, but I am questioning this 4 months post op!
One physical therapist tells me he is not concerned with the burning while another states he is. I have been in therapy for over 6 weeks. I am not sure what the recovery should be, but I am almost 4 months post op (late Nov. 2013) and struggling to go back to work. I do not feel I can since I will not be able to sit down, rest or take a break whenever I feel the pain or need. The more active I become, the more discomfort, burning, and itching I experience. I have even tried "simulated work days at home"and must lie down or walk away from the work task. My job requires me to either be on a computer all day, and/or phone or be at a client site to provide support implementation support. When I am at a client site I must carry my laptop, hot spot, training materials and projector for teaching. When I do on site support for go lives, I do not have headsets, or equipment to accomodate my limitations of bending my neck.
I am totally frustrated since I previously recovered within 6-8 weeks with my spine surgeries and was able to resume my normal activities including work on a graduated basis and finally totally without restrictions. I even went back to skiing!
This surgery has impacted me much differently, and negatively, b I do realize that I am now 20 years older.
Any thoughts about the burning an itching or words of encouragement are appreciated.