My son has arthritis, diagnosed last summer. Specifically, he has Enthesitis Related Arthritis and Hypermobility. He is being treated at a reputable children's hospital. He gets PT and OT weekly. He also recently started getting massages, too.
He is a fantastic kid, funny, wicked smart, sweet, kind. He swims twice per week. He shows dogs. He plays the ukulele, tenor and baritone, though he had to stop playing mandolin because it was too hard on his hands. Getting past the it just isn't fair part of the conversation, I came to the list looking for a sounding board for parenting decisions.
I have two children, my second, my daughter, is healthy with no more than the normal cold or flu. Parenting a child with chronic pain is taxing. We are instructed to keep him active and fit, but when is it too much? It is almost impossible to know when to push and when to back off and let him rest.
Thanks in advance.